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@ Margaret , I understand what you're saying, different areas have different experiences, I am trying to understand that and not judge so much.

Like my area is cannabis capital of NY, it grows like weeds here. 😂. But I've had to learn to not talk about it because, other areas are like 😲
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BOJ- ill second that!
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Isthisrealllyreal, we want you back!!
🌈🍀⭐️🌸🥰
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MargaretMcKen and DrivingDaisy, ITRR has been disrespectful and nasty to others on this site when she didn't like what or how something was said (and not just to me). She didn't attempt to adhere to the Member Comment Policy. *Maybe* you didn't see those posts because they were rightfully reported and quickly removed. Drivingdaisy, some of them were on *your* post about your husband's health issue. You saw them and supported them. And you also were rude and disrespectful to me on that thread.
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Alva (and Deb), what I found in research described it as a "pre-cancer".
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Deb,
According to the internet there is this about dipnech cancer:
"DIPNECH has an indolent course and only rarely leads to respiratory failure or death; progression to overt neuroendocrine tumor (carcinoid) of the lung occurs in a minority of patients. Of available therapies, somatostatin analogs and mechanistic target of rapamycin inhibitors are the most promising."
I am quite fascinated, as I am an old retired RN, a cancer survivor (so far!) times two, and never heard of this cancer. From the little I can find your MD is correct, but I certainly would be the last to know anything much about this cancer. I wish I had more for you.
Admins: I am also hoping this post from Deb can move up to questions, somehow. Self-reporting.
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Admins, Please relocate DebGary70�s post to Questions.
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I have Dipnec cancer and always exhausted. Caretaker of my husband for 22 years, who has had four spinal fusions from cervical spine down to lumbosacral spine. He also developed severe neuropathy and TD from Lyrica. His quality of life is improved only by morphine under control by monthly visits to pain mgmt Dr. I have lung cancer,resectioned left lobe surgery in Nov.2024. My walks around neighborhood and daily yoga routine stopped after my surgery until Feb., but then husband needed knee surgery and was unable to walk without walker and I could not leave him unattended. For the 2 months of taking care of him for knee surgery,I could not leave house for walks, weather freezing also, and tending to everything plus his care prevented me from yoga. My own health,mental and physical, failing. Got psychiatrist and trying to motivate self to start walking and doing yoga. Hired landscaper since I can’t do that. Now I feel I must hire housekeeper. Constantly worried I am weakening what was a strong body recovering well from cancer.
I have lost all motivation and limited to reading and watching tv.Visits with friends and relatives limited,because I feel nauseous all the time. What can I do to regain momentum? i don’t know what is causing my lack of motivation and my fatigue. Hypothyroidism,
medications and see endocrinologist every six months. Clinical depression,now on meds I think are making me nauseous. Is this just part of aging? I’m 70,but before surgery felt like I was 50. My husband is 75.
way too long a post, but can anyone help? Does dipnec do this to body? Nobody,including my doctors know how to treat it. Thoracic surgeon diagnosed it and called in oncologist…who tells me not to worry about it.
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hope you’re ok Isthisrealllyreal!!
🌈🍀⭐️🌸🥰
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Ohhh, I didn't know that. 😓😖
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”anonymous” only happens if you delete your account (she wouldn’t do that)…or if you’ve been blocked (temporarily or permanently) by admin.
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BOJ I didn't see anything that would get her locked off, my phone got a virus for a while and I couldn't get on, a few apps wouldnt work, that's why I changed my name.
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seriously, if Isthisrealllyreal has been permanently kicked out, it’s crazy. she is an extremely valuable member for years.
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THANKS Golden! Very much appreciated! And THANKS Bundle of Joy! Yes, a flower popping through concrete!
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((((venting))))) sorry you got bad news.

itrr - hope you sre out there and coming back.

I wish we were a little better informed too.
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BOJ, I know , I feel like administration should at least tell us what's going on, or let them at least tell us and say goodbye if they are not ever coming back. I feel that it's wrong, to just leave us hanging
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that’s totally crazy if that’s what happened to
Isthisrealllyreal.

all her comments are extremely valuable!!!
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Anyone know what happened? Forum participants who don't adhere to the Member Conduct Policy can be subject to discipline by the admins and monitors of this site: "We retain the right to determine which comments violate this Member Comment Policy and AgingCare.com shall have, in its sole discretion, the right to edit, refuse or remove any member comments and content from the site. The views expressed within posted comments do not necessarily reflect those of AgingCare.com. Site leadership and forum moderators may enact the following strikes policy at their discretion: � First strike: 7-day suspension � Second strike: 14-day suspension � Third strike: Permanent account closure Site leadership reserves the right to skip the strikes process and close accounts immediately based on member conduct. Moderators do not have the authority to reverse suspensions or removals and will not discuss them with other members." That's probably what happened.
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Isthisrealllyreal, are you still here , I went to reply to your PM, and I can't and it just says annamonis?? Anyone know what happened?
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dear venting,
🥰🌈

“When life gets tough and you’re faced with defeat,

remember somewhere in the world a flower is popping through some concrete.”
🙂🌸
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Just need to vent. I’m in a terrible mood. Some bad news. Life is hard sometimes.
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Another topic. I am thinking about getting a new washer and dryer. They have to be stackable front loaders to fit here. I was told recently that the new washers with the energy and water regs don't wash as well as the old ones which use more energy and water. About 14 years ago I got a new front loader HE washer and dryer and they worked OK.

Does anyone have any experience with this?
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Golden, I'm glad hubs is feeling better, live and learn, though our ever changing environment.

Glad you are having good weather. You are going to be totally shocked , we had rain 🌧️ 🌧️ 🌧️ today. 😂 30 percent chance turned into all day rain. We did have 48 hours without rain, just started to dry up a little last night.

Hubs getting sick I wouldn't stress so much, but getting sick in another country, I just couldn't handle that!
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(((((Daisy))))) actually makes sense to me. Aa we get older it takes longer to get over things, and takes more of our available energy to deal with things. I get that you worry about your husband's health and am sure your son will understand too and appreciate your gift.

R is healing quite well, even without his meds for a few days. it's not a photosensitivity as he apparently hasn't been taking any supplements for a while. He has a few tender spots but over all he looks much better, the itching has stopped and the swelling is down. I guess we have some ideas for when the air quality gets bad again which it probably will. Thankful for some rain and humidity, and today a lovely bright sunny day with temps around 21C (70F).
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Kinda sad, but I feel good about it, I made the decision, we are not going to Ireland, for my sons wedding. It's just to much stress, after all the stress we have had the last few months. Honestly I don't wanna leave the country, or go on such a long plane ride, I'm also very worried hubs will get sick , in another country.

Will give my son a nice generous sum of money.
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cw - Thank you. That did cross my mind, He's not on any prescription meds at present but takes a few supplements/vitamins. It's definitely worth checking them for photosensitivity. This has happened before in Fort Mc. When the pollution at a certain plant was bad he got a reaction when he went there but this time it is so much worse. He doesn't take his supplements regularly so I'll check and see what he has been taking. Apparently Vit B6 could do it.
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Cwillie, that's a great point!!
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Golden - your mention of R's meds gave me a thought; what with all his recent health issues it wouldn't hurt to review any different medications he is on for photo sensitivity, I know that can be a side effect that is often overlooked.
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Golden oh I here you there!! At least he is trying and not getting worse

We got some pretty decent weather today, been about 24 hours since we last saw rain, it's drying up a bit. Got a good walk in, doing some lawn work.

We have a friend just like your husband and mine. He is constantly complaining about his aches and pains, went to doc, told the doctors it's gout. Doc gave him steroids. So me and my husband call him everyday to tell him to get tested for tick illness, and see how he is feeling. He finally SAYS, he will get tested tomorrow. Will see, he digs ponds and septics for a living. So gosh darn stubborn, he says a rattle snake can bit him and the rattler goes and dies!! Lol. Sometimes you just can't fix stupid. 😂

Anyways my other friend who had a brother in hospital, I never heard the out come. Friendship issues, 😂 , way to much drama in her life for me.
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Distraction helps -and also not keeping unhealthy foods in the house. It's hard to overdo it on salad. I get keto brownies. They are tiny and rich and frozen so you have to stop and nuke it. One goes a long way. The highly available junk foods are too easy to overeat.

Daisy - Thanks for asking. it is not clearing up fast but it is healing. The backs of his hands were still swollen a couple of days ago.Thankfully the air quality is good these days. He realizes he needs to wear gloves and a brimmed hat outside. I told him he would look good in a Crocodile Dundee hat lol. He forgot his meds here the other day and has been out at the farm since which won't help but he has baking soda out there which will. I know he is busy. What can you do???
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