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Three whines today. Contacted admin because I was only receiving the ocassional email notification. they said they had reset everything. Have not had a single notification for 2 days. minor whine.
Went to the lab this am to get my PT and INR checked. Looked on the website for the results and both were fine but they had been entered in the wrong order so it looked as though I had a severe bleeding risk. got that sorted.
Went to the pharmacy to pick up my second steroid inhalor and the pharmacist told me I should not be using two. I told him I was inhaling one and swallowing the other. He still said it was bad for me and would damage my heart and kidneys. I told him I knew that very little is absorbed into the blood stream when taken this way, He still insisted and said I needed to discuss with Dr. I almost asked him which one Gastroenterologist, cardiologist , immunologist or neurologist or maybe PCG. Anyway I left because I was quite upset ahving spent so much time with drs in the past few months adding conditions to my problem list I never knew I had. Anyway hubby is going down there to hit him round the ear with his stethospcope. The elderly Immunologist asked me when I first protested "Do you want to live a long or healthy life". I told him I had been a hospice nurse and would settle for quality over quantity. He had explained that if I did not treat my oesophagus it would likely get strictures then I really could not swallow and they would have to be stretched and that carried the risks of tears and bleeding. That's it for me today don't want to contemplate tube feeding
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Hugs Hope just couldnt begin to know the stress of moving a house AND trying to look after mum i dont think i could cope! I dream of the day a big skip arrives here and this house will be decluttered once and forall!
Mum decided to go UNDER the stairs today and you cant move in the hallway now when i look i get a twinge in my chest then i know "LET IT GO" walk away go for coffee PRAY? thankgod she cant get up into the attic then id lock myself up in a padded cell and throw away the key!
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Captain, yes I am a fan of the heavy duty garbage bags. I have a ton of towels and sheets so will use those to wrap up and buffer the breakables as I will want to wash all of it once it is home here...I have learned to fix things by myself as well ..for one my Daddy let me pal around with him and help him with all kinds of repairs..it was like adventure to me...and later on I sure was glad . I took out the toilet and pulled all the carpet, pad and torn vinyl and put down ceramic tile in the bath and adjoining foyer by myself...Had gotten a ridiculous, although average price to have it done...and did it myself for a little over $70 in materials...it took me a little while but I got it done and it look great and still doesn....I did have a toilet sitting in my living room for a little while...but no big deal..lol......

Mama chose today to be a pill. I have to move the old junky stuff out of the basement and to the curb today and the weather forecast shows temps nearing 100 today...so I have excellent timing...Still trying to get Mama to eat a bite but about to get it done and stop whining about having to do it.....I should have started early when I got up before it got so hot...but then it was already hot and steamy at 6:30 this morning....ah well.....gotta love the south
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Oh Captain your poor mum ouch! god love her that must have been so painful no wonder she never recovered big trauma to happen at such a young age yep some people get thier kak in life not fair never seems to happen to bad people?
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I also keep remembering things I have that I had bought for my home that have never been taken out of their packaging...new bedspread sets, towels, even clothes and shoes and handbags that I had gotten and never moved them home...so maybe if I look at it like a fascinating "discovery" experience it will easier to get a handle on.... maybe???
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Thanks V...one of my friends bought a pallett of the medium sized moving boxes and the really heavy duty contrator refuse bags for me and those are waiting. I got some that were a little smaller for the things like china, glassware, etc., I rented the furniture dolly and the appliance dolly and in my mind have virtually loaded the truck a hundred times it seems. today's mission is to free up enough space to put the furniture I am moving home...I decided I will donate as much as i can to the humane society animal rescue that has a little flea market down there...it is easier to let go of things if I know it is helping the animals....I am hoping this will be such a huge burden off my mind that it will help me in more ways than one just to have it done and once and for all be GONE from that place...Sad how a place that you used to call HOME is now called a place...but after they killed my ducks so brutally, I would never want to be part of a community like that again...nonetheless, it is strange how the closer the day gets the more stress I am feeling. I think there is more mentally going on there than I am admitting and at some point I'm guessing I will have a "moment"...my brother I know is expecting it....I am thankful he is going with me...the way this has happened I think is bothering him more than it is me at this point and it may be a way that he and I can heal our relationship....keeping in my head that all things work together for good....some days just better at it than others....
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Kaz the pencil trick was a new one to me we used a whip on the horses - need to stand clear of those hind legs!!!!!!!!!!!!
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Hope Mom will be fine and be well cared for in respite. Visit but don't make it your priority. Label everything as you pack so you won't be running round like a headless chicken when it comes time to unpack.
Start out with three boxes or bins keep, garbage, donate like they do on the hoarders shows.
I get good sturdy boxes from the liquor store.
I would not leave the house littered with garbage but heavy things you don't want just leave them. Save yourself all the energy you can. Rent a dumpster if there is a lot to get rid off. It is not too expensive and saves a lot of work and trips to the dump. get one of the walk in ones. You can do it girl, you have faced bigger challenges. We are all here with virtual helping hands - for what thats worth. Good practice for when we have to move ladeeM into her new doublewide. hugs and a nice take out pizza with the works.
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my mother had two fingers hacked off by a chopping axe in the forest at about 12 yrs of age . her brothers had sought employment in the factories and grandpa was trying to make do with three daughters and himself battling health problems . my mom suffered ptsd and depression for the remainder of her life and it greatly affected her mental health and ability to be a patient and nurturing mother . edna threw us in her bathtub , fed us a few times a week , kept our toenails trimmed , cut my hair , etc . she was a big deal during my childhood and 50 yrs later im honored to return the love and nurturing ..
hope,
much time and energy can be saved by packing household small stuff into heavy duty garbage bags . they hold so much more than boxes . glasswares can be preserved by wrapping them loosely inside towels and clothing .
next time you are able to buy a house buy a small fixer upper . the low monthly payment leaves you money to remodel it and will expedite you towards an early semi retirement . i know what im talking about . at the age of 55 my mortgage is 174 per month and the payoff is at around 22k right now .. it gives me options ..
yes you can remodel by yourself . home improvement stores have videos on everything from drywall , plumbing , to ceramic tile installation . nice home improvement materials have never been cheaper than right now .
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Veronica, you are lovely woman. Thank you once again for putting this into perspective.

She will not go to bed. Up. Down
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Captain, I loved your post..what a nice guy... :) Your aunt Edna is so blessed to have you!
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Zero energy...zero......for the first time in almost three years, I am finally going to let Mama go to respite ...the main reason is so I can go and retrieve my belongings before my house is gone....for some reason I am dreading it ...dreading the feeling of her not being in the house, and surely dreading all the loading and packing my brother and I will be doing that day...on what looks to be one of the hottest days of the summer....but I know this is something that has been looming for some time, so maybe afterwards, I will still have a day or two to just relax and regroup, then bring Mama back home and everyone will be rejuvenated...hoping hoping......
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just went to see edna and im glad i did . she was freezing even in her best sweater . i scurried to the goodwill and got her a really pretty slightly heavier sweater and a little hamburger . pointed out the returning mouth thrush and an ingrown toenail to male nurse and left with edna feeling loved , listened to and cozy warm in her 4 dollar sweater , pia hates my guts because i listen to edna and resolve her major concerns . pia shouldnt feel threatened she should just learn to listen to edna ..
pia rubbed lotion on ednas feet yesterday . great , but that doesnt relieve a mechanically ingrown toenail . we each still have important functions . pia fights with humana on the phone all day , im still the personal comfort advocate and very much listened to by staff . liability is a big concern by staff . we communicate with nods and smiles .. he he
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V did you not learn the "pencil" with those randy old men!! my friend was a nurse she said the nurses would whack thier hard ons with a pencil!!! said it worked everytime of course these were not even demented patients!!
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When we are young there is a lot about getting old that we don't know. Not only does it come as a big shock to our caring famillies but also to the aging parent too.
years ago ALZ was never mentioned. I knew the patients I cared for in geriatric wards usually became what we called "senile" and we kept our distance from those likety to be violent and watched outselves with the old men with wandering hands. Depends had not been invented so we changed a lot of bed linens which we were required to rinse off before sending them out to the laundry. A few I definitely remember. the old man who kept his cane on his lap and one morning picked up his cup of early morning tea to throw at me. luckily he was the first one served and it spilled on his hand and burnt.. Another one when you rolled him over one of his hand would try and find it's way up your skirt. A quick slap soon stopped that and he just laughed. One 85 year old who had what we used to call in the stallion a fifth leg. I threw a pillow and he laughed and told me he hadn't had a woman in five years. Then dear little Alfie who showed me lille rolled up balls of poop he had found in his bed. I just put my arm around him and said 'malteezers got in your bed again Alfie" CM and Kaz will know what malteezers are. Of course they were all demented but that was not something recognised in those far off days
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Not a whine? just sitting here thinking about the last year or so and how little i knew about Dementia?Alz? I mean i truly thought that you lose your mind and you are placed ina home i guess i had no idea just how long and slow this illness can go on? Just thinking back and how naive we can be when we know nothing about this illlness i thought you just straight away lose your memory but how wrong that is now inn fact in mums case her memory is the last thing i think will go! when my friend told me 3yrs ago that her mum was ina home as she had alz i didnt think anything more well of course shes in a home? i had no idea the journey she and her family went through way before she ended up in a home im sure there people out there who think like i did. Im glad its becoming more common on tv now in some programmes as people should know just how hard this is!
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Daughter52, I feel for you. What a stunt for your mom to pull. They make us feel guilty don't they? I go away once and a while for short trips. My 28 year old daughter is usually home (we live next door to mom). It seems lately every time I go away mom doesn't feel well, but not bad enough to go to the doc. I call her when I'm away and she sounds so I'll over the phone. I ask her to call my sister who lives 40 minutes away. Mom tells me she doesn't want to bother her. Mom seems fine when I get back. I hope I never go through what you had to deal with.
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looloo mum really enjoyed the movie!!! and if mum enjoyed it then it must be funny shes a hard one to please!!
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Ha JB yes i went to the pub which was even more depressing than sitting here with nothing to do? there was noone there so we had one and came home! should have known after a bank holiday theres noone out really just a few a**holes watching football does football season EVER end i mean soccer!!
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There is!! It's also good for me to know it's there. Keep us all in check! Including el Madre' ;)
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Be careful JB, there might be a camera on ya !!!! lol
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I think Kaz is scooted up to the bar sippin on something refreshingly numbing :)

Mom's been in a "You're going to kill me" or "They're going to kill" me mode all day.

I was mopping up her crumbs in the kitchen. Put the mop into the bucket and she said with a very straight face "You're going to hit me with it"!! Oh mother of all that is good in life... ARGH! I might hit myself with it.
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Captain is THAT where my car keys have got to..???
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Kazzaa, I've been wanting to see that movie! It looks totally stoopid/hilarious! I think the guy who does Family Guy did this movie, and he's the voice of the bear.
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I have a lovely pic of my liver, all in color and not grainy! The pic is a good 20 years old but still looks good enough to eat!

Ted was ridiculously funny!!
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gosh mums here watching a movie called "ted" about a teddy bear Its blue? shes laughing her head off! im outta here, a foul mouthed teddy bear? what next?
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ive had one down my throat too . i dont know what theyre looking for but g d*mmit i dont have it .
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Excellent points ladee!! I really appreciate your input and your perspective as a paid caregiver. (I still have to figure out HOW to work it) LOL! Nice little camera, great features for what I need and the price wasn't too bad to boot!!

Cap.... uhm, yeah ok. YUCK! TMI
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ive actually had a camera up my a** at the va . they even gave me a grainy 8 x 10 pic to keep . i never photograph well but that pic was just terrible ..
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JB, thank you for respecting the paid caregivers rights too... but like I said.... if your caregiver is told there is a camera in place and doesn't flinch, you are good to go... it will help to see who is a good fit for your mom.... I would respect a person for keeping an eye on their loved one and who ever is taking care of them..... that would earn you some instant respect from me..... because that would be a good thing in case of an accident, the caregiver has proof also of what happened..... its the not being told I would have a problem with....
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