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The morphine she is on is for osteo arthritis, basically her pelvis is falling apart, surgery is not an option. The morphine keeps her moving though and some quality of life.Right now she is in her little art studio with my friend that is basically a paid helper about once or twice a week. I have had to set a lot of boundaries with my mother ,it works because she realizes I am all that keeps her out of a AL or a NH. Here she has 2 old nurses to herself whereas in a NH the ratio or RN to patient would be about 10 to 1 , mostly she would see CNA's and she wouldn't be able to have her 2 little dogs with her.Also in a NH you get a bath on their schedule. That's why I got so mad this AM, I actually felt a little stronger and when her majesty basically said she wasn't ready yet I told her well your chance for one today just went out the window. After some valium for me and some help from my friend she did get her bath, but I once again reminded her I only have so much time and strength and if I say I can do a bath you better take me up on it.I am 55 and my husband is 58, we both have had now lumbar laminectomies and cervical laminectomies, we are not atheletes.Just keeping the house clean and I am the outside person ,just keeping a house up at this stage is a chore, basically at this point we are an AL for her.
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Tex why did she need a bath on a Monday surely she did not go to church without one? whatever would the other ladies have thought!!!!!!!!!!!
Of course you are emotional. most people are after major surgery it is just that hospital nurses don't see it. Have a good cry whenever you feel like it and stop doing stuff for mother. Isn't she capable of running her own bath water? By all means go in and help her wash back and feet if she can't reach, but otherwise sit on the toilet and make sure she is safe. Alert hubby before you start so he can check on you from time to time. If there is a problem DO NOT stress your neck you still have a lot of healing to do and the PT will be quite tiring. It is quite enough to get yourself bathed let alone that old witch as well. Hugs and take care.
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p.s. you are so fortunate you have a husband. I have no one, not even the kids want to hear about nana. They just don't want to hear about it because it 'depresses' them to think of 'nana like that'.

I still think it's too early for you to be folding even towels! I don't know what your mother's problem is because I haven't followed and I'm hungry right now but I'll look through the posts. Can't she fold towels while sitting down or something? Can she do anything? I see she's on morphine, so don't know what the problem is, but I have to tell you, you are one trooper. Just read about your surgery and ouch! That neck thing with me was so painful I sat at the pharmacy while waiting for the meds watching as older people passed by all stooped and for the first time understood what PAIN was. I cried. That's how bad it was and I can't imagine you not crying. Just let her know how you really feel. So what if it makes her feel bad. Gees, why do we always have to care if our elders feel bad? They make us feel bad at times. And we're supposed to take that? Sure, it's called 'respect for our elders' but some of our elders don't deserve it, quite frankly. Like my MIL once told me, older people are just younger people who got old. They don't change.
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Tex - Tell your mom under no uncertain circumstances are you required to care for her and that you have your own problems. Tell her you have no obligation to do this, that you're looking into homes for her, and you, yourself, are very sick.

I, too, have slammed the door, and said the same thing. "God, I'm so mad!" Then I feel like I've abused her in some way.

You need to get better and this isn't helping. About three years ago, I suffered with spurs growing in my C4/5/6 and T-2whatever along my back. God, that hurt. Pain killers, PT, etc. If I had my mom here, there's no way I could have given her a bath, let alone myself a bath! And I never had surgery like you! Can't even imagine it without some sort of help or without my being alone to take care of ME.

Huge hugs to you. This caregiving thing is a NIGHTMARE.
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She is an only child as I am I. I am an old retired nurse as is my husband. Today is just a bad day. It was only 12 days ago I had an anterior cervical discectomy on 2 levels with graft and instrumentation, just getting old and nursing can be a very physical job. I was just hurting. My mother however, has NPD, fancy name for she is a self centered bitch and always has been. We didn't have much to do with each other from 1978 until 2012 when it became obivious she could no longer live alone due to mobility issues form OA.Mentally,she is alert, oriented even though she is on 180mg morphine a day which is a lot but it was gradually increased over about a 18 month person. She should be the happiest one in the house.It's just at times she acts like Lady Astor and thinks as soon as she say something everyone should stop what they are doing and serve her. With the help of therapist I am handling her a lot better and actually the good that has come from my surgery it has really opened her beady little eyes that I am no longer a teenager and that her quality of life depends on my health.
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Tex, bottom line - is there any way you can get that woman out of your house?

Glad LinkedIn can be useful but, like any other social media, you need to join some of its groups and participate so you get noticed. I was quite active on it at one time, until care giving sucked the life out of my and consumed my life 24/7. What line of work were you in?
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Well, after I slammed a couple of doors, mother attitude changed, I was crying and just absolutely fed up. My poor husband ,caught in the middle, he just came up to me and told me he knew I was stronger than this,I just don't like being helpless. But my mother's imperious tone , like she is the queen is what really set me off. Oh she is all sugar and spice now that my friend came over to help clean, so I did get mother bathed, friend is cleaning mother's room ,will vacuuma and mop floors, I will fold laundry husband has washed dryed, and to day I have supposed to have my first PT session. I think mother and he saw I was just not gonna keep a stiff upper lip anymore.
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Loo, I am beginning to think this is the beginning of the end. Thinking of updating my LinkedIn profile but just don't know how. I feel like the last three years have been for naught. Put my life on hold, now I don't know what to do with it.
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I wish there were multiple 'likes' for the sleeping schedule thing, gladimhere!
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Glad, Tex, Book -- I don't know how you manage it. I would have flipped out a long time ago. I have that not-so-constructive habit of saying nothing, saying nothing, then... BAMM! Armegeddon all over the place.
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My whine?
Just as I adjust to changing my schedule to accommodate Mom sleeping longer, then she starts getting up two hours earlier, than she did before the late sleeping! AAARRGH!
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Book, too much! Lazy sister! Ants and cockroaches?! And dad without water, spills, etc! I am tired thinking about it. I could/would not work full time. If/when, if ever, I return to work that will be facility time. Don't know how you do it!
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Tex, your mom had her chance to shower. So she missed it, too bad. When she knocks on your bedroom door that she's now ready for her shower, tell her that she had her chance. Now you're resting from your surgery. She will just have to wait until tomorrow. And if she does the same thing again tomorrow, then too bad. It's not hurting you but her. Tell her like it is. Suffer the consequences. She'll learn.
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Did I forget to also mention that when I opened the door, there was a large trail of black ants from the the outside ceiling, crawling to the doorway, down the ledge, and entering the house below the door? And that is just the ONE trail. On his side table, it was covered with lots of ants. And there was a Second Trail down the table to the opposite side, followed it from the kitchen and lost it somewhere. I have Ant Sprays in the bathroom, in the hallway, 2 in the kitchens (for cockroaches - strategically placed to spray and run.) So, before I can even change my clothes, I had to spray along the ant trails. The shower is getting dirty. So, after I showered, I sprayed it with the vinegar/Dawn Soap mix. I'll scrub/wash it the next time I go to the restroom. You get the idea? I not only change dad's pampers by myself, but I also do the house cleaning, along with my full time job.
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Right now I am so mad I think my nose will bleed. I am now post op day #12 after surgery, still in pain, strength not so good and haven't started PT yet. Mother informs me she wants a bath this AM , fine, I get up , I get the bathroom ready, get the water warm, I only have so much strength, so when I tell her the bathroom ready, she informs me in a stern voice I know so well,that she was eating breadfast now and she wasn't ready, when she asked me she made it sound like she was ready for the bath that minute, I got so made I slammed the bathroom door, told her she could kiss her bath goodby for the day and slammed my bedroom door which didn' t help my neck, god I am so mad.
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My sister is driving me crazy! I come home from work, and dad's dirty dishes is in the sink. She fed him ice cream. What? She expects bedridden dad to get up and wash his dishes? She can stand there and wash HER dishes, but she cannot do his? I wanted take-out for dinner but I didn't feel like buying for her also. So, no take outs. Just the microwavable dinner. Threw in some green beans. // We have 2 jars for water. Dad was thirsty, I was going to pour some water into his cup and both water jars are empty. He spilled his drink on the floor and side table. Does she clean it up? No. I always end up doing it...when i change his pamper. She used to clean up his side table, etc... Now she doesn't. I'm soooo tired.
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((((((hugs)))))) Christine Hope you find someone for the afternoon soon.
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My whine for the day...Charles works afternoon/evening and I work early morning till supper time. FIL has late stage dementia. MIL has been trying to take care of him and hide his condition for the past 3.5 years, and then they rather suddenly came to live with us. FIL is incontinent. Today he had a diarrhea bowel movement, apparently tore his depends in half, and made a giant mess everywhere. While they were home alone for a couple of hours between when Charles left and I got home. Of course. So I came home to a bathtub full of poop and clothes, the bathroom floor smeared in poop, and just a big mess in general. MIL got FIL into the bathtub and cleaned him off as best she could. When I got home she told me in great detail what had happened. I had to clean everything up after making dinner. Lovely. Poor MIL is exhausted and her back hurts from bending down and trying to help him. They are both asleep in the living room right now.

I am by no means the perfect caregiver. I am exhausted and worried. And I have to vent when things like this happen. We are trying to get some help during the afternoon to cover the gap. It is hard to get things done like this when we both work full time. Charles took last week off to try to get some things in place. One thing is the POA, which FIL is not wanting. He somehow thinks he is in charge of things. Dementia is something out of my realm. And it is difficult for me to feel like I am the mayor of Crazytown. When FIL starts talking about some thing or the other, he sounds rational at times, and then I find out that what he was talking about never happened. So I just listen, and nod, and go along with him. I am finding that I have a lot more patience than I ever imagined.

Anyway, that is my whine for the day. Right now it is quiet and peaceful.
Bliss.
Christine
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Not everyone will be a perfect Caregiver, we each have our own way of doing things, even my significant other and I will disagree on what to do with my parents who refuse to move to a more elder friendly home life instead of living in their own 3 story home....

How I wished I wasn't an only child and had a sibling willing to drive my parents where ever they wished, got their groceries, took them to their doctor appointments, barber, hardware store, and picked up their mail at their post office box.
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And another famous comment...I can't see to drive at night.....well, they seem to be able to drive blind folded when they want to don their fancy duds and bouffant hairdos and motor to these social functions. I suppose me and Mama and our lift bed and chair just don't generate enough excitement for them....gak.....
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Countrymouse...exactly right...I have still fumed all day long over this issue...just raising cain to no one but myself all day long...it just befuddles me how they are on death's door most of the time...even when they call on the phone..they sound like someone needs to be propping them up on the other end..."oh...I've been feeling sooo bad...cough cough....wack wack wack....this hurts, that hurts....can't walk, stopped up, stuffed up...and on and on it goes...but let one event be forthcoming where all will be whooping and hollering and here they come in droves and masses...ready to laugh and whoop tee do all over the place....and the kicker is...this venue ...to get to it...every one of these yahoos passed within ONE MILE of our home to get there....stinking nimrods.... I hope their girdles pinched them mercilesslly all the way home and they got a chafing rash in that heat....
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Jeanette, I feel for you...and again, while I know accidents happen, and they happen quickly, it seems that whenever someone else is watching Mama for even a nano second, that is when something happens for sure...and it all points to the fact that many times folks who are not here doing it all the time 24/7 they really don't have a clue how fast they can get in a mess...just like children but bigger. One of Mama's big things is that since she is bedfast, she has to be watched constantly if she is upright in the bed..otherwise her head will topple forward and she can quickly pass out....My brother was visiting the other day and he was sitting beside her and while I have told him a million times not to stop watching her when she is upright, he did and I walked in and her head was tumpled over....it was very quick so all was ok, but folks don't realize how fast our little charges can get in trouble....I guess it's one reason I'm afraid to leave her with anyone..never fails when I do something happens...
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Hope, I don't think the Facebook thing counts as a whine. I think you deserve a medal for not wanting to turn up there like the Wicked Fairy Godmother and do your dear family a mischief. B*stards.

I get a similar thing - oh it's so far, oh we're so busy, oh it's so hard to find the time. They can find the d*mn time when it suits them, can't they? - like your relatives can suddenly bounce back to rude health when there's a glass of Champagne in the offing. Fume seethe.
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Jeanette I feel for you. It is SO hard to find a way of telling defensive people (like brothers) how to handle their parent safely without putting their noses out of joint. But if you then decide to 'pick another battle' and don't yell "LOOK MORON IF YOU DON'T HANDLE HER RIGHT SHE WILL FALL" then look what happens - she falls. When I find the right formula of words to stop my brother fluttering around like a wet butterfly and my SIL practically frog-marching my mother around (you should see the grip marks on her upper arms after one of those) I will share it. Sorry.
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It just seems they always return her hurt and yes I understand accident's happen. However, AD patients lose their stability and become wobbly. Their perception of surroundings changes and... well, you know. sigh

Last time I attempted to take her to day care, which was just to look around, she threatened to find a knife and stab some of the staff. Trust me, they know all about her and will have a plan upon next arrival. She then spent the rest of the day being as mean as she could be, which is pretty darn mean!!

Is there such a thing as a peaceful co existence with an AD parent?
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Jeanette, that is more than whine material! But things will happen wherever they are. Do not tell her she is going to day care! That always sets my mom off and she has been going for two and a half years. Any excuse to get her to go willingly will do. Tell her she is going to see some friends. YOU need to tell a therapeutic white lie. Nothing wrong with that unless it is harming her in some way. Let staff at day care know how difficult it is to get mom there so they are breath when you arrive. They are masters at redirection!
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JeanetteB, think of it this way, your Mom could no matter who she is visiting.... she could fall at day care.... at her doctor's office.... even at your own house.

That gash on her arm sounds like she caught the corner of the counter top in the kitchen. I tend to bump into those, myself.... the corner of my desk at work... and the tall foot board at the end of the bed. I need to baby proof the home from me !!
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im with ya hope . cuz pulled that social event s*it on me 2 weeks ago . she had a big night planned with her kids and grandkids while i was on my sixth night of round the clock caring for her mother . i left edna surrounded by 7 adoring family members and went to chicago to see my grandkids . it was a good decision . i knew it then and know it now .
reconnected with edna today at the waters nursing home and right on time i must say . she didnt know if id been gone for 3 hours or three months . just wanted to know where id been . i told her i had to go to chicago and see my grandkids . shes content , knowing ill be by in the morning with the krispy kreeme donut and as always , poa is just a minor irritant .
d*mn , aps done a good job . they used me a time or two but they got edna placed , thats what matters . my hats off to them but ill have to write and tell em they never had me flim - flammed at any moment . this is my second rodeo with the same two caseworkers .
the waters girls recognized me from 6 months ago and fed me lunch . it dont get any better than this . maybe it does . im gonna cut some more firewood and me and ike are going back to chicago . ike heard that s*it , hes only 8 feet outside the door ..
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Big big whine... some days I find it so hard to believe this has become my life.

Sent mom to my oldest brothers for a week... mom had been obsessing over her going to day care (attempt # 2) and started having a giant tantrum. I finally called the EMT's, they came, said she wasn't hurt, just upset, had me call my brothers to come get her. They did. Oldest brother's wife apparently had mom duty..

Oldest bro brought her home yesterday afternoon. Mom had one of those purple stretchy wraps on her right forearm, the kind that holds bandages in place. I asked what happened. She fell. I unwrapped it and saw a 10 inch gash running down her arm with at least 20 butterfly band-aid's ... SHE FELL ON WHAT? He only would say she fell while in the kitchen. She hadn't bathed in a week so I gave her a nice long soak in lavender salts only to find big bruises on her from the apparent fall. This morning she is very sore, her back hurts and she has a headache. I am taking her to her Drs tomorrow. She wants to die. Of course she still hates me and says I'm trying to kill her. Both brothers are mad (again) at me because this happens to be the second time they've brought her home bloodied and bruised. Last time she fell down concrete steps and busted her face. I'd had enough and blew several gaskets on them yesterday. They say they're never coming back here. Good riddance.
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Here is my whine of the day.... my Dad keeps [92] forgetting I don't like driving, it all stems from driving my parents for the past 5 years where ever they wanted to go after Dad stopped driving, I had to use vacation days and sick days. All that stress of rescheduling work caused me to get panic attacks behind the wheel... now I hate to drive. My parents insist I use their car, which feels like I am trying to drive a cruise ship down the road !!

Today, as soon as I got in the door from work, Dad called, he wanted me to drive him to his primary doctor... already I started to panic and here I wasn't even in the car yet, plus I had an appointment for myself which I probably would have to reschedule.... Dad said had to go to his doctor because the on-line pharmacy wanted him to get a check-up for they wouldn't renew one set of pills. Told Dad to check with his doctor, as we were just there a few months ago. Calls went back and worth. I am still not sure what is going on, but Dad is an adult and he needs to manage his own health needs, I will be just the driver and his set of ears at the doctors. Egads, I am a senior driving a senior :P
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