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Lois your are an angel... Your family is lucky to have you..
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At least you are trying - taking her out for some fun things.. Would it work to take along a healthy snack, if there is one she likes? Or even a sandwich, etc..

'Sounds to me like you are doing a great job! Hugs..
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Just to mention yesterday....Sunday...was a pretty good day with family coming over to swim. I was hoping to give Mom a day to visit the babies and family. It started out fun as we all walked to the pool (which is not far). But when we got to the pool mom starts her "I'm hungry, I need something to eat" crap. (Just a note: mom is constantly eating). It's really her fidgety thing she does when we go somewhere. I try to distract her for a bit because she has just eaten breakfast and snacked. But she will still start the complaining about something--especially food. It's not so much that she does it because I am used to that. It's how she does it---interrupting me while I am speaking with someone else or doing something else and she blurts it out loudly/rudely. She threatens to walk back home (even though we just got there) and get her own lunch. Now on the weekends, I am the one who furnishes her meals (not Meals on Wheels). This means if I let her go back alone, she will eat ice cream or whatever snacky thing she can find instead of a good lunch and then sit down and watch tv. True, I could have let her do that but I was trying to get her to socialize a little.
So now...I decide to walk home and fix lunch for her and bring it back because I can do it quicker. I know that if I don't, she will either keep hounding or walk home anyway. Now I am trying not to be annoyed but I am. I am trying to get over the fact that she is behaving self-centeredly and childish and just do it.
Sometimes I just think I shouldn't bother taking her anywhere because it becomes such a hassle.
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Over the past year My husband (vascular dementia - 90 yo) has been pestering me to allow him to go to our lower level where he has a desk and his 'important' papers on building our retirement home - 25 years ago. He thinks that there is information in his old records that will prove who his wife is, really!

He cannot manage the stairs anymore and I have agreed to drive him around on the lawn to go in from the lower ground level. He refuses that since it is 'drastic'. He, one day, wanted to call our son to come over and move his 'file' upstairs so he could examine his old records. I resisted this, even though he had gone into the attached garage to find a good space for the file cabinet, etc. This dispute often got so loud that our black lab ran and hid!

Yesterday (for the second time in 6 months) I went down and pulled all the files and spread them out on the dining room table. Oh, he was so happy... Now, once and for all he could prove that I am not the girl he married 70 years ago!

He pulled out his glasses and went through the top several files and came up to me, saying that he forgot what he was looking for and I could return the files to 'his' file cabinet now.

Without the advice of many here, I most likely would have continued to resist in this matter, since I had already presented out marriage license and Living Trust papers. It is sooo much easier to just give in and do the ridiculous than insist on the assumption that you can change his mind!

I am now going to put together a special cardboard box and place these important, to him, files where he can find them at any time - here upstairs - mostly to save me the effort and energy and time to retrieve them again soon, since he will have forgotten this latest examination.

Argument is totally worthless - but it is difficult to understand how he can mistake his actual wife as some stranger who is the only one who "does anything around here.. My wife should not let you do all this work!" If only...

I still could have it so much worse. Our children and grandchildren are so understanding, though busy; he is not violent - yet - just confused and depressed cause he cannot do 'anything' and wishes to die, stating this often.

Looking back, I have had a great life, mostly loving husband, and wonderful, normal children - four - who will appear whenever I give up and ask for help. My wish is that all of you without this good luck will prosper and gain insight and strength as time goes on and continue to whine when necessary to keep your sanity!

Blessings to all!
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Looloo… sigh. What can you say.

And why, exactly, would you want to 'reach out'?

Because your brother will help sugar the pill for your mother? - nope.
Because your brother will offer support and sympathy for you? - nope.
Because your brother is entitled to know what is going on with his mother? - well arguably, but hey he can always express an interest if he wants to know, can't he? - why would you want to make the running?
Because… er I can't think of any other reasons.

So oddly, no, I don't suppose you did especially want to hear that, did you? On account of it's complete bollocks. Dear darling husband. In the words of my mother's most damning faint praise: "he ***means*** well, darling."
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Sorry for the multiple posts - the discussion about sibling involvement, or lack of it, was one of the things that I go through, and my husband, meaning well, just pushed my buttons big time last week. Warning -- this is a long post, sorry again!
My family was very dysfunctional growing up. My brother and I were probably close until the age of about 4, and then the difficulties started, and got progressively worse. He had alcohol, drug problems, spent time in jail, and we saw each other maybe 6 times at most throughout our 20's, 30's, and 40's. He has been sober for decades now, which is great, but he is still not good at coping with his own life, let alone the problems of others. My parents continued to give him money over the years, and although he's not the worst person imaginable, I suspect he remains minimally 'in the picture' because he's always relied on them for money for each crisis in his life.
W/in the past several weeks, he called me this time, hitting me up for money that he assumed was rightfully his (he asked me if our father had left him anything in his will). I explained that our dad's will left everything to our mother, so, no, there is no money of his that hasn't been given to him. He then asked me, since I'm POA, if I would give him money. I explained that I couldn't, but then suggested he talk to our mother (who isn't 100% addled yet). He didn't do that (probably because he's not a sociopath, which is lovely -- and also because he probably doesn't want her to know about his latest financial troubles).
I was furious, because we don't have a relationship. Plain and simple. There's no "How are YOU doing?" And absolutely no offers of real assistance, because he has no coping skills. He just falls off the radar, unless HE needs something. So, after dealing with my own sense of disappointment, lonliness (this is my family!!???), etc., I decided to stop contacting him. I don't want to try to involve him, I don't want to try to keep him informed, and I certainly don't want the obligation of sending him birthday and holiday emails w/stupid gift cards.
SO -- what really chapped my hide last week? When dealing w/the latest issue of my mother's (her driving privileges being revoked), my husband says to me, "You're not going to want to hear this, but I really think you should reach out to your brother, and let him know what's going on." AAAARRRRRGGGGHHHH!!!!!
No, I will not.
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Just wanted to add a p.s. to my earlier post this morning -- when I mentioned getting bad advice, I meant from the people I work with, and my husband actually! You folks are literally a life-saver for me! I've gotten such sound advice from you all, such great insight, such loving support. Thank you, thank you, I really mean it! :)
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Veronica91...you make a valid point...and I have wondered about that. I know my brother was not raised to ignore his parents..and growing up, while the usual sibling aggravation was present, he was a pretty good brother..but once he married and he married two doozies.....(not at same time of course..haha....) but I often wonder if one reason he does as he does because of "other" issues and he doens't want us figuring it out because it's too embarrassing to him...I don't know...I know I have a very strange dynamic in my sibling situation. This weekend was much better and Mama enjoyed herself, but as glad said...sometimes it is easier when they don't come at all....but then when he doesn't she starts eventually wondering about that too...and it is strange as with the dementia one might think she would kind forget but when it comes to him, she surely does not....but one thing I think we can all agree on, until you've done this...you just can't really imagine...
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I guess I had it easy as I was never my mother's caregiver.She used to write to me and expect to recieve a letter in return the same day. If she did not get one I would recieve one that started out." Hope everything is alright I looked for your letter yesterday...." fortunately she never had a phone so I used to have to send her a telegram which had to start "everything is OK phone me" That was in the dark ages when I was home with three little ones and there was talk of being able to send letters over the phone!!!!!!!!!!!!!
Don't know why I just wrote all that but it got me wondering if those uncaring siblings don't contact the aging parent as they actually don't want the parent to know what is really going on in their lives. I know that was the case with me, I just could not share anything with her and closely guarded any emotions. It's just a thought maybe because it is breakfast time and i am reluctant to start the day.
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Sallie same here. For me though it is easier on me when mom does not hear from siblings. When they do contact her many times she will start the worrying about her little girls. I have resolved for myself to realizethere is nothing I can do to change my siblings attitude about my mom and her illness, absolutely nothing. It is such a waste of energy for me to get upset about sibs not being in touch. I need energy for other things.
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Siblings who don't do the caregiving have no clue what it's like. I wish they would all look at these site's to see just how stressful it really is. It's made even more stressful with their ignorance and unhelpful ways! My mom went another week without a single phone call from my 4 siblings. One sister text her every morning with a set text of ( "how's everything") When my mom text " everything's ok" she receives a set text of " ok, I'll call u later" . There is rarely a call later!
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57twin, the next time your sister accuses you of abandoning your father, look in the calendar for a long 3-day weekend. When sis gets in your case, pull out your calendar and tell her these dates, and that She Too must not abandon their father just because she lives 1000 miles away. There is the train, the airplane or something. Offer your place as a free place to stay so that she cannot complain about the expenses. And tell her that when she comes, she needs to visit father several hours EACH day. That he is not only your father, but also hers.

Also tell her that since she lives 1000 miles, the least SHE can do is call him daily (just like she expects you to call him daily.) And not just a quick 'hello. how are you doing?" If she calls, to make it worth it, then try to stay on the phone for atleast 10-15 minutes. Do her daughterly duty of alleviating his lonesomeness. I wonder how long that would last????
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57twin, I've had one of those weeks, where I got all the wrong feedback from people. I've been pretty stressed out, and hearing their opinions and comments was extremely irritating and unhelpful. Your sister has no idea what is really going on, or what is best, and her comments reflect it. It's yet another thing we have to handle, and some days I handle it better than others.
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Oops living here since March.
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So my sister asked me if I am going to have dad over for dinner every week once we get him moved into AL. She lives 1000 miles away and only sees parents, now just dad 2-3 times/year.
I told her I don't know as he is going to have an adjustment period and I do not want to confuse him by coming back to my house where he has been living since June. She said you aren't just going to dump him there! again she sees hardly ever. I told her I will be stopping in 2-3 times a week but the visits will be brief. Getting frustrated with her comments.
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Well JB im still waiting to have family experience her "tantrums". My friend told me to ask my "angels" and hers to show my sister when she arrives just how mad she can get as they have never seen this side to her! and yes she uses dreadful language! right now shes making noises upstairs like moving furniture she lost her "teeth" and is probably searching the room for them.
Mm? i think thats about the 5th time this week she has lost them i wonder if you can get something to tie them around her neck like a necklace with her teeth on it??
Its 1.30am here and i have to listen to this moving stuff around now for hours until she gets tired i suppose? What a life? meanwhile the couple nextdoor have gone to Italy!!!!
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Oh theres no point in fighting as they dont know how bad they are. I just leave the room! I know its not her fault but yep gross!
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Yes Kazaa they got to witness it firsthand today.........BUT, they have friends with relatives with AD. Not as if they didn't know. Denial.
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My mom does that too or she pulls them out and picks stuff out of them with her longest fingernail and eats it again soooooo gross we got into our one and only fight about it.
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Sitting here TRYING to watch tv mum is sucking her teeth a new disgusting habit shes doing now............ id love to just run and keep running!
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Oh JB that sounds awful but at least your brothers get to see what shes like!
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Welcome Somedaysmile ...Since you've reading this site for 6 months you realize by now that you're not alone and it is not your fault. So many wise people here... tired, lonely, depressed but very wise loving caring people.

Seems like aggressive argumentative foul mouth dementia loved ones is in the air this lovely (ha) Sunday.

Mom slept in which was lovely.... but oh my did she turn into a raging accusatory bitch shortly thereafter. Just so happens both my older brothers stopped by to finally witness what I go through... she cussed them out, told them if they liked me then she hated them. She was ridiculous.... on and on about people trying to kill her, kill the dogs.... she told them they could just go and F themselves... needless to say they didn't stay long. They did try and appease her but there is NO appeasing a raging demented person. I just sat there wide eyed, teary and tired.... no matter how much I do, how I try and initiate activities with her, keep her involved.. none of it ever matters ....sigh
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Somedays so many people here will feel your whine about the TP it should be a symptom of ALZ Keep reading but don't forget to comment and ask questions. There is not such a thing as a stupid question. sorry no answer for the T/P except to buy one roll a day and keep you share under your matress or start using newspaper. at least mom is creative.
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Brazilian you have taken on an almost impossible task. Your Mom is only 61 and could easily live many more years so now is probably the time to make some hard decisions. You could wait another 10 -15 years and end up in poor health and many years older than your real age. That is not responsible for you or your Mom.
She is agressive and argumentative and this will only get worse. if she has dementia she is only going to get worse. She is not the same person and her personality will slowly continue to slip away.
The time to consider placing in her a the nicest facility you can find is now. Let yourself grow up and in the future you may be in a position to bring her home if her personality becomes more mellow.
Don't expect her to like this decision or even easily agree to it but stay firm and finally it will happen.
Do not feel guilty about making a decision like this, you will be doing the best for her and you. No loving mother would expect her daughter to give up her whole life and freedom and any hope of having her own family. You certainly have my blessing for whatever that is worth. I have been married 50 years and at 21 was a recently graduated RN and just about to meet my husband. Many Hugs. Keep talking to us many people are here to help.
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Ive been reading this site for 6 months and today it made me laugh so hard my mom insisted I read it to her. This was the first time we have shared a laugh in weeks. I helped take care of mom and dad when my father had lung cancer. I drove 130 miles round trip twice a week and according to them that wasn't nearly enough. My dad accused me of shunning them lol. Dad lost his battle in 2011 and I moved my mother into my one bedroom apt with me. She has the bedroom and my bed resides by the front door. And, I have a bell hanging from the highest point above the door as an extra percausion from nightly excapes. My complaint for the day is silly but true. I'm done taking care of this elderly baby. Like the rest of you I miss having a life and I'm tied of try to fix something that's not fixable. I love my mom but lately every little thing she does bothers me to the point of sarcasm in my own head. I have hatefull thoughts not to be confused with evil thoughts. Thoughts like "shut up" "are you stupid" "leave me alone" are at the tip of my tongue to often. Mom uses 4-5 rolls of toilet paper a day to make her 'pads' and no matter where I hide it she finds it. She has even lined her entire 'wet' bed with toilet paper and slept it. I'm tired of cooking rich meals for her 74 pound body only to gain 40 pounds myself this past three years. Anyway, the sad part is that she is a very sweet lady with a cruel case of Alzheimer's. I wish she had had another daughter to help us both.
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Boy, I cannot imagine what it is like at the age of 21 having to take on that responsibility. I am 90, but have lived more years than I could have anticipated; health is not too bad and am looking forward to a few more years..

At 21 I was married and awaiting my husband's return from England after WW2 ended. We began a family immediately and enjoyed 70+ years of marriage - so I cannot complain too much about having to care for my husband now that he needs me.

It is difficult to understand where he is coming from when we converse - never know what is coming out this time, but it is a challenge and sometimes quite annoying. Understanding dementia is the challenge and this site has been a great help.

I hope there are others in your family who can step in and take their turn in caring for your mother... I do not envy your challenge! Hugs..
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This is more than anything just a vent post, but boy I really feel the need to whine.
Caretaker promised mom she would take her to church today... another promise fell through and cancelled plans :/ I feel like it's honestly impossible to find someone who is at least the majority of time reliable! I wish I could afford to go through hiring someone individually, unfortunately the rates that some people expect for care for my mom.. :(
It makes me really sad to say that I feel like NH isn't far at all from now. It is coming to be so much to take care of my mom. I have always felt weak at moments, but was able to bring strength from myself and still be able to help mom... but it's getting bad. I am drained and I don't have time to take care of my physical or emotional help. My mother is 61 and I am 40 years younger. I want to fit helping her into my life with school, work, a SOCIAL LIFE! for goodness sake.. but it is very challenging. at the same time, she is very argumentative, and at some times aggressive. I find myself having a hard time controlling what I say to her, too. I have never felt this way towards anyone. At some points, I just feel like it's not my mother I'm taking care of anymore...
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She rushed through the door as hubby was slamming it. Big howl. I thought of hanging it from the mirror of his car like a lucky rabbits foot, but resisted. It was only the last couple of inches but she was not amused.
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How did your cat lose his tail??? LOL
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Pam at least toe nails grow back not like the end of our old cat's tail
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