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Way, oof, Lewy is tough. Mom was misdiagnosed with Lewy, but it turned out she had bad medication reactions. She definitely has some form of atypical dementia, but not LBD. Sending you all my best.
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HappyRobin,

thanks for the tips .
I do believe she may have undiagnosed dementia possibly Lewy Body as well.

I’m not driving the boat . Her son is .
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Need, why is it that the stupid bottles with the pain meds give us such a pain to get into?!! My thumbs are in solidarity with your thumbs.
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Way,
when you go see your sister, make sure the hospital is following delirium protocol. A surprising number don’t.

Lights need to be on and bright near sunrise, on throughout the day, then off to near darkness at night. If they can medically, request they not wake her during the night for vitals or blood draws and turn off the beeps in the room for the monitoring gear. Ideally curtains open at dawn as well and drawn at dusk.

We also requested coffee with the lid off first thing in the morning even if she was not awake because the smell sense is powerful.

use sound as well: noisy during the day, TV or radio on, then in the evening start winding it down and TV off and gentle music until quiet by about 10.

if you can get her there, sit in the full sun with her for at least 20 to 30 min before noon every day. exercise if she’s in rehab is also good.

Reorient her constantly. Make sure her board has the correct day and date. Add the weather.

My mom had hospital or post-surgical delirium every time. She once tried to escape a hospital because she thought she was late to an MRI. Nurse said they’d never had someone trying to escape to go TO the place they were!

Hospital delirium often can be managed by environmental and social cues and does not always need or respond well to medication. Glad she has folks to be with her!
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Way,

This just started so, I will wait and see how I feel later.

We tend to take things for granted until we are in pain. Could be a lot worse. I shouldn’t be complaining about it.

I am going to finish listening to the podcast that I fell asleep on last night when I get in the tub.

I have a very comfy tub with whirlpool jets so I think it will relax me even if it doesn’t alleviate any pain.
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Need,

Oh geez. The use of the thumb is so important to be able to use your hand in general . Uggh .
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I just tried to tear a paper towel off of the roll and couldn’t manage to do it. Pain shot up my hand.

Oh well…I am going to try soaking it in a hot bath to see if that relaxes me.

The Advil liquid gels aren’t working. They work for my headaches. Was hoping that they would help ease the discomfort.

I had a really tough time opening up the Advil bottle. I couldn’t pull open a ziplock bag either to get an English muffin out for breakfast. Will eat cereal.
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Way,

It certainly does sound like she needs Ativan to soothe her anxiety. Ativan definitely helped my mom’s anxiety.
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Need,

My nephew told me what the nurse said.
Luckily she can’t get very far with her walker and moving really slow like she does . The nurse also said she was carrying her overnight bag . It’s a pretty big cloth duffel bag . That must have been a sight , the walker , the bag and in a hospital gown . She even hooked her foley bag onto the walker , but she had ripped out her IV . She told the nurse she was going home . She was so resistive , they called security and my nephew. Then they brought in a one on one nurses aide for her . This is really bad . I hope they can give her Ativan or something .
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Way,

Oh wow, that’s disturbing that she tried to escape.

True, you don’t know what her reaction will be.

I understand that you want to see your sister though. I would feel the same way as you.
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Need. I’m going to go visit her today because she says I “ need to see what they are doing to me.”

I don’t know if it’s going to calm her down to go there so she doesn’t think I’m ignoring her , or if it’s going to agitate her because she’s angry because she thinks I put her “ in some place “, and she wants to go home.

Yesterday she tried to escape. The nurse called my nephew . He left work to go there to calm her down .
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Way,

Yes! Coffee is mandatory! LOL 😆

My husband said the same thing as you, that perhaps I slept funny. Who knows?

Don’t you wish that men could have babies? LOL 😆 I can’t imagine what my husband would have been like pregnant!

Oh gosh, I am so sorry that your sister is struggling. That’s so hard on both of you.
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I visited my sister on Saturday at the hospital ( she had back surgery ) . After I visited her she began experiencing delirium and doesn’t understand why she is there . She has been leaving messages on my phone the last two days saying that I “ dumped her there and left “ . This is the same thing my mother told me when I put her in assisted living . My sister also said that I should try to make things better for old people .
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Need,

maybe you slept funny with your hand under you ?

Pregnant. Lol😂😂😂😂

You are determined to muddle through for that coffee !! 😁😁😁Many would understand that . I’m not a coffee or tea drinker, but I have to have my one can of Coke a day early afternoon for the caffeine boost .
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So, I woke up this morning with my thumb up to my wrist hurting. The worst part is that it’s my right hand and I am right handed. I just took Advil. Hopefully, it will help.

I have no idea why it would be hurting. Could this be arthritis?

I don’t remember doing any awkward movements or lifting anything heavy.

The only time I’ve ever had trouble before was when I was pregnant and the baby was resting on a nerve which caused carpal tunnel in my left wrist. It was so bad that I had to take cortisone shots for awhile.

Lord knows that I am not pregnant at 68 years old! LOL 😂 So, I have a mystery injury. I went to bed around 10:00 and was fine. Woke up in this pain. I might go see if a hot bath will help.

I had to drink my coffee with my left hand this morning because I couldn’t hold my mug in my right hand.
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Bounce , being a nurse is what perpetuated my lifelong servitude to my mother . I wonder if she would have followed me out of state when she was in her later 70’s like she did , had I not been a nurse . She said I was the nurse so I would be the one to take care of her. My DH was very upset when my parents followed . We had moved because my husband’s job moved .
Not long after my mother died I gave up my ( part time ) nursing job . Mom killed it for me . I nanny babies because I enjoy it . It’s the opposite of watching decline . It keeps me going .
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Speedy recover for her, Way.
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Thanks Hothouseflower.
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Way, sorry to hear about your sister. I hope she recovers soon.
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Thanks guys ,

This is the only sibling I am close to . She almost died this past spring , she had delirium then also. She has a myriad of medical problems , 2 of which are rare .
My poor nephew has been running her to so many doctor appts . I’m worried about him . She needs assisted living but all she has is a SS check . She was never good with money and didn’t make a lot and had 2 terrible exes . Her only child (son ) took her in 10 years ago . He’s been divorced a long time , no children . He also has the rare autoimmune disease that she has. I know he’s been spending some of his own money on her too . They live too far for me to really help . I offered to come stay a while last spring after she came home from rehab to take her to some appts , but my nephew is adamant that I did enough for my parents and that it’s his responsibility .
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way: So sorry that your sister isn't doing well.
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Barb: So sorry for your foot problems.
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Way,

That’s sad. Hard for her and hard for you because we feel helpless in these situations.
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Need ,

she’s been calling and attempting to text all day . Not making sense .
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Way,

Ouch! I hope your sister’s situation improves soon.
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My sister had surgery last Thursday for compression fractures of vertebrae and is experiencing delirium right now . She’s a bad 68yo with multiple medical problems .
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To any of you with foot pain--

I went to my podiatrist today with a laundry list of foot issues, one of which is burning in my great toe.

He said that is likely compression is L4 and L5 discs as they terminate in or near the great toe. Who knew?
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Need Help,
Thinking of you this weekend as your join with family to mourn the loss of your dear brother.
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My whine moment today..I shared that my mom was in hospice under my care with a coworker who I also see outside of work. She immediately launched into what an honor it was to walk through hospice with her mom (for 1 month I think.) Her mom was an an exclusive facility that also cared for family members. She said when she went there to visit they would immediately offer to have her sit down and make her a cup of tea. She used the word “honor” at least 4 times and didn’t once ask what I might be going through.

For all I know this nice lady is on this forum. But from what I am living and what I read here every day, hospice care mostly entails toileting, hard work, sometimes demanding and unreasonable elders, family infighting, family wanting other family to pay for care, or take mom in, etc.

Maybe it will be an honor to hold moms hand when she takes her last breath. But in the meantime it’s messy, stressful, frustrating and just a lot of hard, unending work.
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Wow, that’s the first I heard of the earthquake. That’s my neck of the woods.

Sounhappy, vent away. Hope it goes okay for you.
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