This seems to be a question that is not asked enough or we think what we are feeling is not as important as what our loved one is going through. This job we have taken on is a tough one and there are days when I think my "stress rope" cannot be pulled any tighter. Then there are other times that make those bad days just a memory. Do you feel like banging your head against a wall one day? And then the next day your loved one is attentive and loving and comprehends whatever you say? There are some who keep those feelings bottled up within themselves; others take the time for outside resources and others who look at sites such as this for some understanding. I do better when I have someone else to bounce my feelings off of. Let's face it....we aren't superhuman and besides ourselves and perhaps a family to take care of we now have taken on the responsibility of another human who is incapable of taking care of themselves. Do you breeze through the care giving without a problem? If so, I would like to know how you do it, maybe you can offer some new ideas; do you have feelings of frustration and need to talk about those? Come and talk and know that you can speak freely and without judgement and without finger pointing.
I am caring for my mother-in-law and have been for about 1 1/2 years. She has moderate dementia and incontinence. Other than that she is very healthy. Sometimes that short amount of time feels like 10 years and I wonder how long I will be able to do this job. I get so very tired of hearing the same thing day in and day out, but I have to remind myself that to her, each time she sees me, she is offering new information. At times I have no problems communicating with her, but it seems like more and more she cannot retain a thought longer than 5 minutes. We have had to make signs for her so she will know what she can and cannot do. So far it's working, but for how long? Maybe I will have to end up making her a "Book of Do Nots". She is on memory drugs, which don't seem to make a difference. So why do I continue to dole them out to her? I guess I'm afraid of what might happen or how she might act without them. I might have to rent a boat or buy a helmet! Sometimes I see something in her that leads me to believe that she could get aggressive and what would be my reaction to that? At the end of each and every day, after she is tucked into bed, I breathe such a sigh of relief. The "inner beast" is quiet at last, or at least for a few hours.
Pull up a chair and visit........I would like to know how you are coping everyday..be it good or with handfuls of stress.
ASG...I hope your better days will last a long time. Maybe she has been there long enough to get smitten with the kids and the dog. Whatever it is, let's hope it lasts a lloooooonng time. Now that summer is here, she may as well get used to them, right? God, I loved summer as a kid, never enough time to explore, but it was a different time, too.
I must get a shower and get ready to do errands. I needed a little more time to get ready, so I have until 11 am. Hubby is home today with sinus headahe. We need rain to clear the air.....and get the poison ivy off my green beans..........
I think you might have hit the nail on the head with my husband, I had not thought about that, it's a sad thought though that he had to wait all these years to get it out, he's 63 now and she died when he was 4. His dad was left with 2 small kids and no clue as to what to do. He basically shipped them off after their mom died.
hopefully he is feeling better today, it's going to be a quiet day around here, not sure if we are expecting anyone from hospice today, had the nurse yesterday, the CNA the other day, haven't seen the Chaplin yet this week, so maybe he'll be out.
Well so much for her feeling good, up at 630 am doing well, and now she's started moaning again. Lasted about 45 minutes, that isn't too bad, got her pain pills in her and we'll see where we go from here. one thing after another it seems.
Starri, I hate to hear she is not in agreement to the morphine, can only imagine how hard that is for you to watch and hear her pain and know there is something you can do. but I also understand the position you are in, wanting to honor her wishes...Is there anyone that could talk to her about the positive side to the morphine? Sometimes they will listen to someone else and not us.... I am sorry to hear how hard this is on your husband.. all of you are hurting, and you can not take care of everyone all the time, you have to take care of you too. prayers and hugs to you today..
ASG, Aunt Weird, gotta love it...I am happy to hear she is treating the kids better. Maybe she will really try to enjoy the kiddos and it will be better for everyone. What did your son say about her touching her on his face??? Maybe she is doing a little grieving herself.. and accepting the situation and understanding what you have done by taking her in. No telling, maybe she was being ugly sometimes to keep from loving all of you and protecting herself... who knows, just happy to hear she is trying to enjoy the kids more... they will keep her entertained if she lets them...
Seeme, I am reading along this morning and BOOM, my morning laugh, about green beans and poison ivy,,, Thanks for getting my day started with a seeme-fix... you never answered about the bunnies , and I do have to say that concerns me a little, is there something you are not telling us...??? Poor bunnies.
Jam, so happy to hear you got some "me" time with your sisters. And was Target wore out when you got home? Or was he out in the yard pulling weeds???
The outside cat, Mr. Man is tearing up the screen door for his breakfast so need to get going. Another fun day with Sonny the lineman, and Ms. M is smiling a lot more... so this is going to be a good thing... love you all, newcomers keep posting and letting it out... hugs across the miles to all of you.
She's starting to settle down again, hopefully she gets some more sleep and then we will try eating something.
Hope everyone has a peaceful day
When I got home yesterday thought I might find Target standing at the edge of the pond with a wistful look on his face......but no he was actually awake...:O....and on the computer. Said he didn't have any problems with the col and I didn't either last night, but the inner beast was lurking. I walked outside about an hour ago and he had taken breakfast to her and I could hear raised voices. She was desperately trying to feed parts of her bacon to the dog and he kept telling her to eat it and she said she wasn't hungry anymore, so he took it from her. She did eat most everything, cinnamon roll, bacon and fresh strawberries. But she was mad because "he begs so cute". Oh for heaven's sake, here we go again.
ASG......that's wonderful about your Aunt and the kids....I imagine your son was wondering what was going to befall him now when she put her hand on his face. Does she play the piano? That would be wonderful if she could interact with the kids with lessons. And the little sleepover guest.....awwww just one of the kids....:)
Starri........my heart goes out to you, it's so hard to watch them be in pain. The weekend before my mom passed, last Dec, and she was still in the hospital she appeared to be in so much pain and she was being given Haldol and no morphine. She was in that hospital only because my husband was on shift in the ER the night she got sick and it would be unethical for him to treat her, so I had to take her to another hospital and under the care of doctors that I didn't know and once there they have to do everything possible because it's illegal to just move her. On Monday, I called her own physician, told him I knew she was dying and there was nothing more to be done so we had her transferred back to the NH and hospice came in. That's the only time I have dealt with them and they were wonderful. Anyway, the first thing I asked for was ms and "not a problem" let's get it on board. And it was obvious she was in pain. She had aspiration pneumonia and was working so hard to breathe. The ms made it so much easier on her. And she passed peacefully about 14 hours after discharge back to the NH. I'm glad she didn't linger. But I still haven't had a chance to really grieve for her....my younger siblings, as well as 2 estranged daughters of mine started acting like complete lunatics and with having to still care for mil......well my grief got put on the back burner. It sounds like it's coming up front for your husband. I'm sure his mind is full and you are all hurting together....at least you do have each other to lean on. My heart aches for you all......and you're the "angel glue" that holds it all together. You will probably have to just give Mom the ms.....later she will figure out how much better she feels so maybe she will be more receptive.
Time to get col's laundry done........................
Love and Hugz,
Jam
hugs to you
Starri, I am sorry for your mother, but it's up to her to decide. It seems the morphine puts you in a state of dizziness and some people don't want it. We don't really know what we would choose in the same situation, so... (my father when he was very sick he didn't want pain killers)
Good night to everybody.
Last year we had trouble with the tomatoes riprning on the vine, so hubby took them off and set them on the patio furniture loveseat to ripen that way. The cushions were off so they sat in between the horizontal slats of the seat. Late one afternoon , aftr the heat of the day when the trees shade the patio, I watched a momma and baby rabbit for about 20-30 min. Momma finally stood on her back legs, under the seat now, and pushed a tomato to the end of the seat and baby got it and started eating. I was astounded. Then she goes to the front of the seat and reaches up with her 2 front paws (or Feet?..rabbit's foot) and grabs one for herself. I am watching them eat on the patio for the longest time. I quietly tell hubby about it and he hits the ceiling !! He yelled so loud, they heard him with the door shut, momma takes off, baby goes the wrong way and gets caught behind the grill, scaired (southern) to death and I have to herd him the right way. But it's ok if they eat my pea pods............so the saga has continued from last year.........
Starri, Hope you make every day a fun one for your family.
Ladee, At this point you sound so happy, we couldn't beat you down witha 2 x 4.
Jam, He is so cute...big ole meanie Target........
Now I am going to read my Kindle till 3 am and complain to mom about how tired I am tomorrow.......It is now 10:15......will see if I last till 10:30...
Everyone have a good night's zzzzzzzzzzzzzzzz
ASG....I'm sowwy Auntie's good humor didn't last longer. Don't you love it when they are happy and in a good mood? It just makes everything so much better to deal with. Then that old dark cloud has to descend at some point I guess.
Hi to Starri and burned.........hope you have had a good day and haven't had to deal with too much stress.
Hi Rossella!!!!!!! How's mom?
ladee......how was your day with Sonny? Playing more pick up sticks?
seeme.....say night night to the bunnies......
Love and Hugz,
Jam
It sounds like you ladies have your hands full, with never knowing how your family might be like at any time, so far Mom is just mainly nasty with me. Of course that isn't really anything new, she's a lot nicer to strangers than what she is family.
Hope all are getting some rest this evening
Ladeeda, lol,thanks, I'm sowwy to you guys, how's the new charges???
Seemer, funny how the whole nap thing pisses them off but its ok if we go to thhem and they are sleeping in their chair! Oh that's right they wernt really sleeping just had their eyes closed we only thought they were, my nap story will follow!
Rosella I hope you are right about the kids. They have already learned how to tell fibs to get her off each others backs:( no he didn't leave the door open it poped open by itself! Hope everything is well with you.
Burned, I hope you are getting some rest.
Starri, wish I couldgive aunt some of that morphine!!!!! Tonight id like to give her some pillow therapy also!
Ok, so here was the rest, after the little boy left, my boys for once layed down and fell asleep, so did I. The other little boy"the little fat boy" so she called him didn't fall asleep till after 2 a.m.(his first sleepover) but I didn't tell aunt that! Anyways, I fell asleep to and woke up a little later than I wanted but still early enough to grill what I had planned for supper. So I'm laying there deciding I need to get up when I hear her walker, in a voice loud enough to see if I'm here but not loud enough to wake me, she says "are you sleeping?" Repeat! Then I hear some clangy noises, so I get up to see if she is in the cabinet again, this time she has the refrigerator and freezer doors open! Ok for all who dont know me anyone is welcome to get in my fridge and have whatever is there. She could get in and have anything she sees and I don't mind. She has her own fridge in her room that we keep stocked with yogurt and snacks. So its unusual for her to be in there. But what infuriated me was how she yells at the kids when they reach in to get a popcycle. She says they are wasting electricity. Yet she stands there for a good minute or two with both doors wide open. For no good reason. I come in and she's like oh your awake! I was just looking to see if you had somthing layed out for supper. I said yep its ready to cook. She's like well I wondered if you were gonna make anything for supper(like I've ever forgot) I said well I knew I had time to get a nap in. "Oh, so you were sleeping" I don't know why you need a nap, you get just as much sleep as I do!!!! What?!?! Really. I don't get done putting her to bed till almost 10. She wakes up all through the night, yes but then cat naps all day then denies it. She wants to be crappy cause I finnally got one in. She didn't get me up before I dozed off this time! She is so chold like selfish somtimes.then aftr supper I didn't get right back to her room as fast as she thought I should so she was being crappy again. Comes out saying never mind, if your to busy, you do have a kitty in here. But I will do it. Then I go in and she's all I was just gonna do it myself and put her right back in. The same thing at bedtime, comes out 10 min early playing the your to busy for me guilt trip that's so obvious. I'm so wound up somtimes I can't sleep when I do get a chance to go early. That was my day in a nut shell!!! So sowwwy:) it took so long to put it there. Can you imagine the long version of my day with her. Nope this wasn't it! Good nigh everyone. Big big hugs to all.
Love and Hugz,
Jam
The dead bolt sounds like the way to go, I am beginning to wonder if I am going to need to box up all of mom's meds and take them with me when I leave the house, everytime I leave my brother with mom, I make sure that I have all her medications laid out and instructions left, only to come back and find out they dug through the others trying to figure out what she is suppose to have.. I'm really worried that they might between the two of them, give/take to much..
Will have to look at that I guess in the morning and figure out what it is I can do, really hate to go to that length, but might have too. My brother really wants to help, he just can't help the way his illness has affected him, and the worse part I guess is that he doesn't even realize it has. Mom at least knows that she is falling apart.. but that doesn't make it any easier.
Guess I ought to try and close my eyes for a little, tomorrow/today is going to be a very long day, have mom's cna due out to give her a bath, and then the nurse is due out, she tried calling the other day and got my brother, she finally gave up trying to tell him anything, just kept repeating she'd talk to me.. Hope that you have all gotten some kinda rest.
I have to share about "Sonny", he is the husband of the couple I take care of...He has Alz, but is at the first stages and is so sweet and funny. Him and I go for a walk every morning before it gets too hot. We'll be walking along, chatting, and he will just stop. I stop to see what he is doing.. he is looking at leaves that the wind or squirrels have knocked down from the trees.. sometimes he picks them up, and then sometimes he will say he wonders how those things got out of that tree....Sometimes I have to "fill in the blank" as he will loose a word. It got up to 101 yesterday so we didn't get to spend much time outside... so when I got ready to leave he follows me out the door. I said " do you need something Sonny?" His reply, " no, I'm going with you", Took a few minutes to get him back in the house, Ms. M , his wife, is so patient with him... " Sonny, she doesn't live here, but she will be back tomorrow". He looked so sad... but went back in the house...
I cut his fingernails yesterday, got them all looking nice, and you would have thought he won the lottery!!! He is very sweet and kept saying thank you. Then he goes in and shows Ms. M, like it was the first time he had ever had his nails cut, he was so proud, kept showing her until she finally said, "Sonny, didn't you want to lay down for awhile", then like the little happy camper he is, off to the couch he goes, lays down, and is out like a light... He wouldn't eat his lunch, so I suggested an ensure. He LOVES chocolate, so gave him one and he just went on and on about how good it was....
I am seeing Ms.M easing out a little more each day. She has MDS, has had it for about 8 years, has to have blood transfusions every two weeks,so there are days she is very tired.. but she has her mind, sharp as a tack... she is not bossy, and I ask her many questions about how she wants things done.. we will get into a routine, then I will be complaining that I am bored. Going from my lady Ruth who could raise the roof, pee on the porch if I turned my back for two seconds, and hide bananas in her depends, threatening to cut my throat with a butcher knife... to Sonny and Ms. M,
I keep waiting for the other shoe to drop....!!!!! But have worked with Alz. enough to know this will change for Sonny. But I feel Ms. M will be receptive to things I may suggest about Sonny's care..... not like BG fighting me about everything....If I wake up from this dream, just shoot me... I am getting too old to keep having to change jobs...
Payday,,, yeha, haven't had a REAL one of those in so long I won't know how to act...I'll probably do a "Sonny" and just stare at my check, then go throw it over into the neighbors yard....
Jam, At least if the col was in the concrete up to her little ankles, you would know where she was...something for you to think about...
Sorry seeme that I wasn't up to play last night... don't have to work weekends so we can get caught up in the next few days...
ASG, oh lady, you are so much more patient than I am.. How about I send you some tapes with MY voice saying.. "WHAT ARE YOU DOING"....".DON'T TALK TO THE KIDS THAT WAY" .... "THE CAT HAS RUN AWAY"....."YOU ARE WASTING ELECTRICITY"..... " WHY ARE YOU IN MY ROOM".... and anything else you need. I have a deep voice, she may think it was God talking to her, and scare the pants off her and she would stop being such a nasty meanie...I can do that for you, just let me know...
starri,I hope you do not feel I am being disrespectful of your situation.My heart breaks for you, your mom and your brother.I do not know how you do it and I have nothing but respect for you and the load you carry. Hoping some of the silliness will help you to laugh, and you get a temporary respite from the day to day stuff. Laughter saved my life when I was with my lady Ruth. I will miss her for the rest of my life...
If I missed anyone, sorry. will have more time this weekend and will get caught up on everyone... and starri, I am sorry the meds are not staying down, is she still refusing the morphine ..??? She would be so much more comfortable, and you would be less stressed... hugs and prayers to all of you... check in later this evening...
ASG.....I think I have told you before that I LOVE your stories !! Please keep them coming...
Jam...I thought about you fitting col with concrete shoes, but Ladee beat me to it. Is Target supervising?
ladee.......I didn't think fast enough last night.........the concrete has already set up and now I can't get her out there! She would have made a nice perch for the birds.
I'm so glad that you are in a happy position....do you eat bananas? I think of Ruth every time I do!
Woke up this morning to an orange front yard. Called the "straw boss" and landed in his lap......if momma isn't happy, ain't nobody happy!!!!!!! I'm normally pretty easy to get along with, but I do not want my front yard looking like something a toddler would have drawn. They got the stamp off kilter in a couple of spots and didn't bother to fix it. So they all should be here shortly and we will have a nice little talk.
starri......I put out the col's meds in a weekly container. Then I have one of those small ones for am and pm. In the evening I take her meds for that night and watch her take them and then leave her am meds. I keep track of them that way and sometimes she will get up very early in the morning, like 2 am, and be confused and take the am meds and then start beeping me on the intercom around 11 that "I don't have any morning pills". Yes you do, I gave them to you last night, and you took them already. "I don't think so". That the scenario EVERY SINGLE TIME she does that. But doling them out that way keeps me on track so I know for a fact when she takes her morning. And I know she won't take extra. When we first moved her here, she was still capable of medicating herself and when I went to get her bottle to refill I saw that she had gone 10 days without her pm meds....so I took control of them. If we go anywhere for more than one night, I will give the weekly container to the woman who watches her and she does the same thing I do with the smaller container.
Bout time for my front yard boys to be here, better get my Valium on board...:)
seeme.......how's the bunnies? Going to go check my peas in a little while, probably need to water them.
Love and Hugz,
Jam
I now care for my moma and thank god she has all her facilties but is phically disabled and over her life time she now is dependent on me for all the help with the basis of living. i get flustrated because i am not a home body at all and she is content to sit at home. but i have no money and her income is all we have to live on for the month. so i try to really extended the first part of the month when we go somewhere and take all day doing outings so i can at least go somewhere out and away from the house an moma has learned that YES we will go OUT and eat when we are out.
HANG IN THERE JAM AND WE ARE ALL BEHIND YOU AND YOUR LOVED ONE we also think of you on a daily basis even if we are not on the site
caregiver and friend TRUECOLORS