I am the caregiver for my 88 year old mom who has diabetes, macular degeneration, heart disease - you name it, honey, she's got it. I'm single and I moved back home to care for her and dad before he died. I love my mom, and I do my best for her, but I am so tired of being treated like an only child by my siblings. My brother and sister rarely call or come over. If I plan far enough in advance my sister will take mom to the doctor, but then she acts like she's an authority on mom's health issues while at the doctor, when she really isn't. She also thinks mom can go to the mall and run around afterward, which she's not able to do. My brother is useless - would it break his back to mow the yard? They are both married but they have no children, and my brother is retired so he has time on his hands. I complained about this once and my sister said I had chosen my life, and it wasn't her fault. True enough, but again it's HER mom too. I'm not sure I even know what my question is, I'm just so tired of handling this all alone. I find myself wishing my mom would die, just so I could have my life back. Then I feel awful for thinking such things. It's been nearly 10 years of this, and I am at the end of my rope. I have lost touch with all my friends and haven't had a date in 8 years. I just feel so alone, and I resent my siblings so much that when mom does die, I really have no intention of keeping in touch with them. I'm sorry for rambling, I just needed to vent.
Here is my side of it. I, myself, am disabled. I am in constant pain in several places in my body. My husband has dementia and I have to take care of him. I have a very large deductible on my health insurance, I can't get sick. I haven't got much money. I can't work b/c of the disablement. In other words I already have a lot on my plate. Mom is very crabby and cranky. I go away from visiting her and shake and cry. I cannot afford to get sick. I really prefer to remember my dear mother as she was when I was a child, sweet and lovely, not as the person who is yelling at me. My sister only contacts me when she wants something. She won't invite me to her Easter, Thanksgiving, or Christmas dinners yet she invites half the town while I sit alone. But the next day she will "tell" me what to do. She avoids me in public. But when she wants something, then she is quick to tell me what to do and try to guilt me into it. Then when I do something, she says I do it wrong. Sister treats me like dirt. So then I am reluctant to try to help her or my mother. I love them both but I just don't need the stress. So there you have it, that is why I have stopped trying and maybe that is why your loved ones have stopped too.
I am in a similar situation. I have been caring for my mom for the last 3 years. She had a botched spine surgery back in 2009 and was in hospitals and rehab facilities for 6 months. My aunt stayed with her in the hospital in NYC for one month. I would travel 1 hour every day to bring food or help out or to give my aunt a break. I have a brother and sister who came to see her but two or three times within that time. After she was transferred to a rehab facility closer to home, they would still find excuses to not visit. My aunt went home to FL as she had my brother and sister promise they would help which they did not. Two weeks later, my aunt returned and contined to stay for a few months to help. Again, I would see my mom daily. We then chose to transfer my mom to a facility in FL as I could not care for her by myself. There was some resistance from my sister and brother but, I didn't care what they had to say as they were not doing anything. Mom did very well and came out of the rehab facility in two months and then home to NY after 5 mos. At that point, I moved in with her and have been with her ever since. It has now been over 1 year and my brother and sister barely see her. They say that because I am single that I must care for her. I have to work in order to pay my bills. My brother had taken over my father's business after he passed and claims he is unable to leave or take a day to help mom. However, should he choose to take a day for himself or my SIL family, he does. My sister is in sales and has a flexible schedule. She is remarried and her ex lives nearby. Her children are with her ex daily and come home at night. She has never been involved in any of my mom's care. I have asked and begged for help to no avail. I take mom to all of her doctor's appointments, shopping, etc. Anytime my sister has been asked to take mom to an appointment, she'll make the appointment to her convenience then, the night before will say she is unable to go and I must take her. I have not had a break in over a year. I used to have an active social life and I now have no friends. It is so unfair and I do not know where to turn to any longer. I've become extremely depressed and have considered taking myself out of the equation.
Still, churches can be a great resource for when you need that extra source of strength. There's a lot of people who are quite knowledgeable and respect your opinions; yet believe helping others in need is also a path to salvation.
The reason I'm suggesting churches is because caregiving often requires an army. Doing the best you can with the few resources at your disposal, right now your only company is the love in your heart. Even if you could go back to what you used to be and do you'll notice a much stronger, resilient, caring and loving woman. Caregiving transforms you and tests your mettle all the time. It teaches you to enforce boundaries; to take what you want to get what you need; and rethink or refine your philosophy of what life is or should be.
Even if only for 5 minutes a day, you have the right to be happy. Rewind the tape on any particular day, and I'm sure you'll find some "senior moments" worth laughing about; one of those days when, going through chores like an automaton, your brain was still on sleep mode. For now, try to live every moment to the fullest. That way you won't have to wonder about the years you have left, and cherish the time spent caring for your Mom.
-- Ed
Don't know if you go to church, but this is a good time to join one. It'll help reconnect with yourself and hopefully find a good samaritan who can come by and help with the caregiving since your sibs won't share such a huge responsibility. Your resentment towards them will continue to fester as long as your Mom lives, but please stop and check yourself whenever you have a feeling of taking it out on her. She's already suffering enough, and the last thing she needs is for someone to treat her like a cross to bear.
It's probably too much to ask right now, but try to mend fences whenever possible. Never does the human soul appear so strong as when it forgoes revenge, and dares forgive an injury.
In the meantime, join us. We're here to collaborate, commiserate, and vociferate. ... And this forum is a wonderful place to learn some tips and coping skills.
-- Ed
You can find services like COPES to come in once a week and give you a break - you can contact senior services in your area - for advice and an Elder Day Care - it gets seniors out of the house, and gives them activities to do, and gives you caregiver's while you work, shop, or spend some needed time to yourself. Hang in there - my family experience, made me an advocate for BETTER ELDER CARE. Good Luck
As far as your siblings go... it may be very difficult for them to cope with the fact that your mom isn't the same. I'm having the same issues with my family. My grandparents have 6 kids and out of them only 2 are actively helping. It is very difficult for them to be able to see their wonderful, strong parents in the weak, helpless state they are in. Plus with the dementia, a lot of times I think they feel that it doesn't matter if they visit. A lot of people are uncomfortable with death and being around old people.
I'm not trying to make excuses for them, but maybe you are the stronger one in the family. They should be helping but maybe they aren't strong enough to handle it. Again, I am not trying to make excuses but maybe it will help you to forgive them a bit to know that maybe they aren't purposely trying to be jerks, but they just aren't as strong as you to be able to handle it. Also, it is different when you are with your mom every day and the change in her is slightly worse every day/week/etc... it is a shock to most people to see the decline in someone when they only see them once in awhile. My cousin won't even come over because it makes him so sad to see my grandpa the way he is. I think it is ridiculous but you can't help how people react to things.
Anyway, take care of yourself. Make sure to take a little time for yourself when mom is sleeping or something to go for a walk or do something for yourself. Try to forgive your siblings because it will only make you feel bad to hold that inside of you.
At some point if you want to avoid becoming so depressed that you have to start taking meds to compensate for it, you'll have to FORGIVE your siblings for being such a disappointment to you. Reach out to the friends that you've let slide away, hire some help if need be and move on. When your mom does die, you'll always be glad that you stepped up when they didn't. That doesn't mean that you have to be a martyr and never have a life while she's alive, you need to find middle ground.
I know the stress and annoyance you are feeling is very draining now, find a local support group where you can SIT with others in the similar situation and talk to them about your concerns.
Coming online is VERY helpful. I have found this website to be a light in the dark for me, and yet I STILL wish there was a live chat room where 'we' could gather to exchange emotions realtime. I will continue to ask for this for the sake of everyone's benefit.
My role was much more involved with my mother's care than my other 3 siblings, and unfortunately I am not concerned with the 'lack of contact' from them since Mom passed away. They didn't talk to me much before, WHAT would they have to discuss with me now???? LOL..... funny... yet sad!
YOU are not alone in your feelings. Please understand that, and try to get some respise as you can. Ask for help from local senior agencies in your area, churches that offer help, and even 'senior daycare' centers may provide you with the rest YOU need.
God bless you for doing all you can.... you won't be sorry.