My parents moved to Florida from Texas less than 3 years ago to be near us now that we've retired. My Dad has been on ALZ meds for 6+ years. Even though they were barely capable of the maintenance, they bought a house. Dad had several bad falls in the home and Mom was overwhelmed with worry and effort, so we moved them into Independent Living in the area. It's a new facility with activities and a clubhouse with a dining room if they want a meal out, not a traditional AL. We did all the right things for the right reasons. Within days, my Dad is insisting he is going back to Texas and he wants Mom to go. We all know he is insisting for Mom to go because he is incapable or unwilling to take care of himself. Mom does everything for him, he doesn't cook, clean, or wash clothes. He also wants a hip replacement and will expect Mom to rehab him at home, she was a nurse. We moved them into IL to give Mom a break. It's smaller, has monthly housekeeping, no maintenance, activities, and options to eat at the dining room. He wants to buy a truck (can't get into one because of the hip), drive back to Texas, and have Mom co-sign and buy a 1970s fixer-upper (because of the price). Is he delusional or just stubborn? My sisters and I have helped Mom set up bank accounts in her name only and are beginning to split their money 50/50. We are all prepared for Dad to begin his solo journey.
There seems to be a 'homing instinct' with those with dementia - they want to go 'back' but 'back' doesn't really exist - he is thinking of his happiest time of his life but with rose coloured glasses on -
He is forgetting about saving for 2 weeks to be able to go out for dinner rather he is remembering the dinners, he is forgetting going to a supply store & working to build a deck/family room/etc but remembers the good times that where there - it is a dream land he is wanting to go back to not a real time or place & if you take him back he will not be happy there either so save everyone the aggrievation -
How can he go? .... from what you say it seems he still has a driver's license so take that away ASAP before you have a bigger crisis on your hands
I plan to leave Texas after that...but who knows...by then, I might not have the energy to do so alone.
His plans are not realistic. He has no right to put the demands he has on your mom when those plans are beyond her ability and his too! Her family is in IL, right? Where is HIS FAMILY??? They need to get involved because that is who will wind up with him if he won’t stay there and work with his wife and children. It sounds like his living alone, in a home not equipped for handicap accessibility, in Texas, is a pipe dream at best.
I wish you luck!
as the saying goes....its better to have lived in Texas and moved, than to have never lived there at all!”
As for moving and his other big 'plans' - these are all most likely due to the dementia. I don't know what meds he is on, but there is no real treatment and certainly no cure for dementia - it WILL progressively get worse.
One of the circumstances that can contribute to a decline/significant change is moving. They moved 3 years ago. Then because of recent falls, they moved again. You state that 'within days' of that move he started the return to TX business. This clearly sounds like a decline in his mental capacity. Our mother's self image was getting in the way of helping her - she insisted she was fine, independent and could cook (nope.) Despite having AL in her future plans, that went out the window with dementia, and when it was brought up, she'd rather be poisoned than live in 'one of those places.' Once we had her in MC, she harped on my YB to take her back to her condo... for 9 months. Out of the blue, the condo was forgotten and she started asking about their previous home, and that continues to this day (along with asking about/for her mother!) Although the condo and house were in the same state, it IS the same situation, along with his brain thinking about 30 years ago, buying an inexpensive place and fixin' 'er up! He is no longer in the "here and now."
Whatever you can do to thwart his 'plans', do it. Ensure he doesn't have enough funds to buy any truck or even attempt moving. If mom or anyone has POA, use it to get assets away from him. Ensure he has no credit cards, especially if they have a lot of available balance! If he can't get there, buying the house is pretty much off the table (still in his mind, but off the table!) Setting up accounts in mom's name only is a good move, however the current plan seems to be:
"...split their money 50/50" and "We are all prepared for Dad to begin his solo journey."
This is NOT the best approach. He is NOT safe driving and he is NOT capable of caring for himself. The funds should be made inaccessible to him AND you should be circumventing these ludicrous plans of his. They are all figments of a distorted brain and should NOT be taken lightly nor should they be allowed to happen. Humor him and let him dream this will all come to pass? Sure. But allow it with little white lies, to distract and deter, making up excuses as to why it needs to be delayed. In no way should any one of you condone what he wants to do.
Meanwhile, get him thoroughly tested. The little test they do in the PCP office is not enough. Make hip surgery the reason he needs testing and get neuro-tested. He may be further along the decline than you realize, and may need to be moved to MC.
What you are going to find with your Dad is that he will start wandering and get lost if no one is paying attention and he will get worse. When that happens you will have to place him in a long term care where they have nurses round the clock. These places cost about $200/day each!! Your Mom may not be ready for that but your Dad will need more care. There is no getting better with Alzheimer’s it only gets worse. My Mom’s dementia is bad but she still knows who we all are! Good Luck!
Make sure mom is making friends in the community. They will be her lifeline. Dad may be trying to monopolize her time. If dad can't be left alone, see if the community has a day program to provide relief for caregiving spouses. If they don't, look at local adult day programs or bring in homeware for a couple of hours a day.
Dementia often kills the caregiver first.
I live in a beautiful IL place in a suburban area and I chose to move myself here. It is where I need to be and I now love it very much but the first 2 years, at night I would have dreams of NYC where I lived most of my life, trying to get back in my old apt. or looking for another one. I felt I had lost some of my old identity. Later I realized that I missed the person I used to be and doing the things I used to do, which I can't do now. In time those dreams stopped. I don't want to leave where I am now. Change can take time to adjust ourselves. That is true even without brain problems. As mentioned by others, music is wonderful help. The music the person loved. It can be played in the background. I would also add movies, old ones on DVD that the person loved. But I do think all of us miss who we used to be. Dad is so lucky to have Mom and you in his life. Maybe you can tell him that you don't want him to leave because you will all miss him. Beside that, your mom needs support to deal with him. She can't be his caretaker all the time. Help is available at least part time. It may be hard for him to make new friends there if he is in bad shape. Where I live, it is good that husbands and wives can make new friends seperatel , often through shared interests, old or new. But this takes time. Not sure how much he can participate. The move to FL was a big adjustment and changes are hard as we get older. Women seem to adjust faster, especially if they are in decent shape.
Are there activities at the facility that he used to enjoy? Dominoes, cards, etc? Make it a family event to try some of the activities and help get him around new people and back into some of the things he might like.
Try establishing more of his usual routine in his new "home". Talk to his doctor about anti-anxiety medications to help him relax in the "new place". Try to make the new "home" look a little more like the "old home". Routines and "sameness" are what will help him to cope... and stay.
It was a mess. She has been better with us but does miss her own home I know. He has sent us money "for her care". My husband opened an account for her here and uses the funds for copays etc..
We are not being paid. FIL says he will replenish the $$ as needed.
There has been no talk of divorce from there 63 year marriage.
He did say the other day that they had a fight on their honeymoon and he should have ended it right then and there!
sometimes a rational explanation can give an out. Or just an indefinite “ we need time to set it up” or make him make all arrangements which he probably can no longer do
Like, Dad wanting to buy a truck and move back to Texas.... you can say "Dad you can't move until the doctor says you are doing better".
Does Dad have a Florida driver's license? If not, tell Dad he needs to do the written test, and the driving test. Just fib saying everyone needs to do that when they move from out-of-state. Give the Dept of Motor Vehicle's a heads-up regarding Dad's condition, you can hand them a note. And what would be the chances of Dad passing the written exam?
Your dad can no longer make rational decisions, that is what happens with dementia/alzheimers. It is time to figure out how to redirect him in the moment. Mom is going to have to just say no. If you go honey, you go alone. I am staying here and really hope you will also.
His executive function is hugely comprised at this stage, the drugs only slow the progression but they don't change the outcome. You and mom will have to be the decision makers for his safety. I am sorry, this is so hard to live through and do everything that needs to be done.
Please do whatever it takes to keep him from traveling off alone, he could kill someone.
What does his doctor say about the alzheimer treatment, is it still helping? My granny got to the stage that it only kept her agitated all the time, once it was discontinued she calmed down.
Change is very difficult for a broken brain, I would make sure that he is in a place that he can stay as he gets worse. He will settle in eventually and you don't want to have to move him just when things are starting to feel familiar for him. Something to think about.
Best of luck, stay strong and contact the Alzheimer's association for information about the journey you all are on. Knowledge is power in this situation.
Hugs!
https://www.bing.com/search?q=PBS%2C%20free%20movement%20painting%20for%20dementia%20painting&qs=n&form=QBRE&sp=-1&pq=pbs%2C%20free%20movement%20painting%20for%20dementia%20painting&sc=0-49&sk=&cvid=1B4BE44BCBDC4CE69A9DF54E42840269
When my father was in rehab after a several month journey through hospitals and long term care hospitals, I took my music to his rehab home and played the piano as often as I could. Sometimes I played soothing semi-classical, but the music to which most people responded was from their younger days: Bicycle Built for Two, Little Brown Jug.... music of that long ago era. Black Hawk Waltz even stimulated one visitor to get up and begin waltzing, alone.
Patriotic songs and military hymns really stimulated the men, especially the Marine Corps Hymn. I remember a few men standing up and saluting.
Bringing a portable CD player with old music would allow him to listen in his room, if he so chose.
Movement, especially that of the PD for Parkinson's program, can apply to anyone. It's to me an extraordinary and insightful way to use music, camaraderie and creativity to reach deep into basic humanity and how music and dance can stimulate.
Dance for PD doesn't necessarily have to be limited to someone with PD. I've watched the programs, and was so impressed how music stimulated people to give themselves over to the sounds, to let themselves be guided by the music, and just relax.
https://danceforparkinsons.org/
Watch the video, do some background reading, and see if there's a class near you. It might even be possible to work with the IL staff to get some professional training onsite, to engage more of the community.
I watched a video of one of their performances; it was heartwarming to the point of tears to see people just so given over and captured by the music and the movement.
And I would give your father a little longer, while trying new approaches, before thinking serious about their splitting up. It could crush both of them emotionally as well as accelerate his dementia.
Still, even though he might be hopefully dreaming and reminiscing, the fact is that his desires need to be addressed and dealt with, as his dissatisfaction could probably and likely worsen.
Trying to bring reality to his visions probably won't help and could only hurt, causing him to see his current situation as even more unlikeable, frustrating, and challenging., and more harking back to the good old days in Texas.
What I'd consider is trying to enhance his life here, which could mean that you become involved in some activities initially to help him through this challenging time. This might mean taking him to activities he could enjoy, acting as intermediary to help him to develop new friends. A Senior Center might be appropriate as well, but you'd have to help to engage with others (as I assume he'd resist).
Helping him engage in planning for future activities might also help to create a sense of purpose. Just be careful to choose activities that uplift him as opposed to depressing him and focusing more on the current situation's negative aspects (as he sees them).
The fact that it was only days after moving into the IL suggests to me that this was for him a challenge that he couldn't face, alone.
What activities did he enjoy, that still might be done with AL, that you could help him with? is the staff approachable and cooperative in terms of helping him devise a plan, even something as simple as coming to their room during musical events and ensuring that they make it safely to the community rooms?
Music to me is one of the best ways to address and calm agitated minds.