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My mom’s been living with me for 33yrs. Up until about 8 yrs ago, mom was doing and saying some off the wall stuff so I took to have a MRI and it turns out she had vascular dementia. The past three yrs have been the worst. She started cursing at my daughter first then my husband and myself. I still put up with it until she fell. I took her to the ER and they admitted her for a fractured hip and it got bad. She totally flipped out on me for the Dr wanting her to stay. Every day I went to see her and she would continue yelling at me and trying to get up to walk out. It was horrible. They had to have a nurse sit with her 24 hrs a day. Then the Dr told me she had to have rehab for 6 to 8 weeks. I went to see her every other day and of course she was so mad because she was there. She would cuss at me and I'd leave crying. I decided to talk to the staff at the home and came to the conclusion that it was time for me to let someone else care for her as it was starting to affect my health. I'd go home with my chest hurting and feeling so helpless. She's been in a home now for six months. She has now fallen 4 times. Once she sliced the back of her head and was rushed to the ER. She had no idea how it happened. She is so unstable on her feet. And my older sister says that I abandoned my mom. I never would do that. I go see my mom every other day and she's an hr away from me now. Sister wants to take mom home with her to live, says she can work from home and take care of mom. I'm the POA and I tell my sister what moms drs are saying. That mom needs to be on a skilled nursing floor and needs 24hr care. I've sent drs notes and nurses notes to my sister to show her mom is where she needs to be and I can't get her to see the truth for what it is. She could never be able to work from home and take care of mom as mom is a full time job and she lives on a second floor appt. I've been caring for her for yrs and as bad as she is now, I know I couldn't do it alone. It breaks my heart not to be able to bring my mom back home. I keep the door to her room shut and don't go in there much cause all I do is cry. I miss her so much. 33 yrs together and she sure didn't deserve this. I just wish my sister wouldn't put this quilt trip on me. If I could make moms dementia go away, I'd do it in a heartbeat. Any advice on how to deal with my sister? It’s just a shame we can't all be on the same page and help mom through this together.

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Dear Older Sister,

Thankyou for CARING about Mom & the situation she is in.

However, when you use words like *abandon* this deeply hurts me.
(eg Your words were "I abandoned my mom")
This is a LIE.

The TRUTH is Mom's care level became too high. For me at home, for anyone at home. As advised by her MEDICAL TEAM. Due to her diagnosis of Vascular Dementia & falls. This is progressive. She will get worse. She will fall more. It is AWFUL.

I don't want to hear you accusing me or guilting me again in the way. If you do, I will no longer receive your calls. Am I clear? Cut that cr@p out right now.

Now as to taking Mom to live in YOUR home.. I STRONGLY suggest you go spend three full 12 hours days at Mom's facility to experience the care level she needs. See & experience how caring for someone with Vascular Dementia is.

I GET you WANT Mom out of there & back into a personal home.

I GET that some people feel like failures to place their Mom or Dad in a 'nursing home' But sometimes it becomes the last choice left. As it is with our Mom! It is the LAST option left.

I get that it might make you feel bad. (It makes me feel bad too). That is GRIEF. But we need to pull together to HELP Mom.

I HOPE we can work together for Mom's care.
Your younger sister,
Shelly
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Reply to Beatty
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Stop taking your sister’s calls for a week or decide how you want to limit talking with her. She is very clearly clueless.
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Reply to Southernwaver
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People see what they want to see, and they have to see it for themselves, at there own time.

I'm so sorry you and your family are going through this
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Reply to Anxietynacy
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Your sister is going through a grieving process too. She needs to figure out how to realistically deal with this loved one drifting away. It's a hard thing to go through and everyone's different.
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Reply to jwellsy
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Shelly69, welcome back to the forum. You sister mentioned that she would take Mom home to live with her. Have sister go to the skilled nursing facility and be with Mom for 24 to 48 hours straight (if the Staff allows that) to see actually how much work is involved. Then and only then would your sister understand how much is involved.


With dementia, it is not good to move a person from one place to another, it just confuses the person more. All the new sights, sounds, foods, etc. If your Mom says she wants to go home, the home she is thinking about is her childhood home. So if she brings that up, just do a "therapeutic fib" saying the road is close due to repair.


When my Mom was in a skilled nursing facility with late stage dementia every day runs into the next. Eventually I cut down my visits to once a week. Going every day after work was becoming too exhausting for me as I was a senior myself. I knew my Mom was in a safe place with good care :)
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Reply to freqflyer
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I'd personally let your sister have a go at it. Go for it Sis! I'm 68yrs old taking care of my 96yr old Dad with severe Lewy Body Dementia. However, the 1st requirement as POA is that I would tell her she first needs to move into a one level place because Mom cannot be expected to climb stairs in her condition. Otherwise, let her have a go! I'm 100% sure she'll see very quickly exactly what you've been going through for years! She'll either be calling you to place her into full-time nursing care again very quickly, or she'll suck it up and make it work. If she can make it work I'd also resign as POA and let your sister take over full control! That way you can get on with your life - you've done enough for 33+ years. Go out and enjoy the rest of your life! I hope it all works out. Good luck!
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Reply to Mamacrow
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BurntCaregiver Oct 6, 2024
@Mamacrow

The mother wouldn't have to climb stairs. What would probably happen is the sister's livingroom, den, or home office (where she plans to work from) becomes a bedroom which so often happens when an elder moves into a place and they can't dos stairs.

This means a bed and commode (if there's no same-floor bathroom or the dementia is too advanced for mom to use one without assistance) in the living room. Then get used to a home that smells like sh*t all the time no matter how much you clean.

Forget about entertaining and having company over anymore too. Believe me no one wants to socialize or come for dinner when there's a person crapping in the living room.

Entertaining at home is something a person usually has to give up when they take an elder with dementia to live with them. They don't think about it at first. When one day runs into the next and it's the same caregiving drudgery 24/7-365 you think about it then. It's not worth it.

You're spot on that the OP should resign the POA to the sister though. She should not keep any kind of responsibility for the mother if the sister wants to take her out of the LTC and move her in.
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I'm very sorry for your situation. I know what it's like when there's siblings who are civilians (non-caregivers) tell the person doing everything single-handed on their own for years that they can do better.

You could do this two ways. Number one, you're the POA so you make the decision whether or not your mother stays in LTC because she needs to be.

Or, you could let your sister put her money where her mouth is as they say, and take her home with her. Tell your sister plainly that you'll be helping out as she did with the caregiving, which is to say you will be doing absolutely nothing. Make sure she understands that you ar done caregiving and if she takes your mother out of care she will be totally on her own.

Please show your sister this response and she should know that it is written by a homecare agency owner who did patient/client homecare for 25 years in the field and was also a family caregiver.

She will fail abyssmally at this. It won't be her fault, or your mother's, or anyone else's for that matter. It's the old-age, illness, and dementia's fault. This is who is to blame for your mother. What will your sister do when it becomes too much for her and ot will? An 'ER dump' at the local hospital?

When you take a person in your mother's condition out of a care facility and bring them home to be cared for, it always fails. Your mother can't afford to have a staff of caregivers with her 24/7 which is why you were doing it for so long. This will surely fail.

Please don't allow her to be taken out of care.
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Reply to BurntCaregiver
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Bottom line you are your moms POA and you have the final say. And right now your moms well being and safety are of utmost importance, so she must stay where she is at.
Your sister is fooling herself into thinking that she could single handily take care of your mom in her home and also get her job done. That's beyond ridiculous.
Just continue to put your moms best interests first and you'll never go wrong.

And on a side note....I can't believe that you had your mom live with you for 33 years. To me something doesn't sound right about that at all, and makes me wonder if you have a co-dependent relationship with her.
If that is the case I hope you'll seek some counseling to untangle all of that, and now put your husband and marriage first and your child second.
Your mom has had her life and now it's time for you and your husband to enjoy whatever life you both have left together.
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Reply to funkygrandma59
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Shelly69 Oct 5, 2024
My mom was in a abusive relationship. My dad drank a lot and beat her so one note while he was gone my husband helped her get away from all of it and she's lived with me ever since.
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Shelly,

Sorry you are going through this.

"Sis, Mom's doctor ______ says Mom is not eligible to go home. Mom's health requires her to live in a SNF with daily access and oversite by RN's and needs to be cared for daily by CNA's."

Keep it simple.
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Reply to brandee
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As POA, you get to tell sis no, that it's not safe for mom to be living anywhere but where she's at. Period. If your sister was involved at all with her mother the past few years, she'd KNOW you are right and ditch the savior complex immediately. Everyone thinks it's so easy to care for an elder with dementia.....until they actually DO SO. Then they're struggling and freaking out, realizing they're in way over their heads!

I had my mother in Memory Care Assisted Living for just under 3 years. She received great care there, thankfully, and I was able to preserve my sanity and my marriage at the same time. I could also maintain somewhat of a relationship with mom with her not living with me. We weren't constantly at each others throats and her foul words to me weren't daily. Dementia is a wretched experience for all involved, which your sister would know had she been involved with her mom's care all along. You wont get her to understand unless she spends a good deal of time caring for mom in the SNF. Only THEN will she learn thru scar tissue what's going on.

Don't YOU feel guilty or buy into the tactics sister is using on You! After 33 years, it's long overdue that mom is in care. Sister can visit whenever the urge strikes her, but leave YOU out of the discussion. You've made up your mind as POA and it's not changeable.

Your sister should be on her knees THANKING you for your decades of care for her mother instead of playing a guilt card on you! Ridiculous.

Best of luck with a difficult situation and the horrible disease of dementia. I hate it with every fiber of my being.
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Reply to lealonnie1
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Shelly69 Oct 5, 2024
Thank u for your kind words. They help a lot.
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Thank u my friend. You most certainly gave me the best advice I so needed to hear. U have no idea how badly I needed the advice.. and I will take every word. This is by far the worst thing I've ever tried to deal with and ur advice has really meant a lot to me. Thank u so very much.
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Reply to Shelly69
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It's well past time for permanent placement now. I know you know this.
You didn't cause any of this.
You can't fix any of this.
Guilt requires that you caused something evil on purpose and you refuse to either stop or to fix it. That doesn't pertain here, so guilt is off the table.
We are not God and it is hubris to pretend we have that power. We are humans with limitations and I am quite amazed you have surpassed your own so long.

Your sister is unlikely to change. What she thinks, says or does is not in your control. You need to try to let go of controlling that as well.

I think that your long years of caregiving may have left you almost ill with anxiety and enmeshment, and I honestly think you owe it to yourself now to get good psychological counseling from an excellent therapist (none of this online nonsense; they are paid poorly and worth less than they are paid).

You couldn't be more right; it is a dreadful shame that your sister has no understanding of this and isn't on the same page with you. However, she hasn't done the work and hasn't learned the same lessons you have. We can forgive her that. You are the POA. You will simply tell your poor Sis that this is the way it must be now. I doubt that she will ever forgive you in all honesty, but we have two chances at family, the one we are dealt on the assembly line before we are born, and the one we create for ourselves. Your sis will have to seek her OWN healing. She isn't my concern.

You have a choice now. Stay ruminating and marinating in all this, or move on with a quality life. No one can make that choice for you. I hope you make the choice that brings you the best chance at some happiness now. You well deserve it.

I cannot know if your sister is at all capable of doing this care, but of course there is one more Plan B here. If she would like to assume care she certainly can do so. Your POA would allow you to place her with Sister, and assess how that goes. She may come to an agreement soon. However, it is just my "guess" that Sis won't, for whatever reasons, see her way clear to give that a try. It was almost kind of a reach for levity to suggest it!
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