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That caravan sounds like a great idea...how about lets rent a big bus and go and call it "running away for my life". I doubt it would work but sounds like
a super big smile and a laugh out loud just to think about it. We all have to take a big box of tissues and wear crazy clothes and stop at simple places to
just be free.
The Lord is my strength and my salvation and he uses others on the journey.
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Jumary, there are so many of us in your shoes, you are not alone. The only thing that has kept me sane is my faith (which was challenged going through this) and mostly the support of my husband. You can’t do it alone. Get help. We have hired 2 caregivers to cover the main hours needed and what can be afforded, if we could afford 24hr care that would be ideal. I played around with the idea to put my dad in a care home, but that’s also very expensive and he’s not there yet. Hang in there and reach out for support. Don’t wait until it puts you in the hospital like it did me. Stress & Anxiety is a deadly mix.
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If u go take me too!! It has gone on 11 years with my father in law that lives with us. At least 5 years with dementia. Stroke 11 years ago. I have no life. Just got out of the nut house and they put me on all kinds of medications because we cant or wont place him in a nursing home. Too much guilt. It is so very hard. My only hope is that God will reward us. GET AWAY serious. If only for a day. God bless the caregivers!!!
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anonymous775483 Aug 2018
Ditto to that!
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My brother and I were both feeling like this. I was diagnosed with cancer in my spine, and yet my mother demanded constant attention on herself all the time. Finally, we moved her to assisted living. She has no phone there, so she can't call us unless she goes to the desk. They are taking good care of her there, and she has socialization. She only has money to do this for several months, and I don't know what will happen after that. But I do know that both my brother and I literally had to save our own lives from the very toxic situation. The relief when she moved in was unbelievable. I hope you can find a way to consider this. God bless you...
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So glad to hear I am not the only one. My husband and I are both 70, and the minute I retired from working 35 years, he needed care. He is suffering from brain tumors with dementia setting in. We have no relatives, and he has systematically gotten rid of all his friends; he only wants ME there will him . . . all the time.. I am so ANGRY. I was looking forward to this time in my life after trudging through a so-so job and (to be honest) a so-so, childless marriage. I lose my temper often, which puts him in a bad depressed mood. All I have to be proud of is that I sometimes go days before losing my temper. I try to keep up with a few activities, but I have so much damage control to do when I get home I wonder if it is worth it. My doctor and other have recommended a psychologist or group, but I get to leave so seldom that I don't want to send that time rehashing my complaints.
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Alzh101 Aug 2018
Hi, Some suppprt groups offer free care for your loved ones while you attend sessions in our area. You may want to search around and call your local Alzheimer’s association to see if they have such things in your area. That way you get respite and a place to vent and hear ideas and strategies that may be of use to you.
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Oh dear Lord have I felt that urge... Battling with my wife's condition for almost 3 years, she's a shell of who she was... maybe 5-10%. The Abbott & Costello routine all day long drives me insane. Constant questions though I have told 3.5 zillion times honey I cannot understand a word you are saying.

What keeps me form doing what you said that has crossed my mind a ton of times? Duty. She's my wife for better or worse. I made a commitment to her but also to The Lord. I'd hate myself if I left. At some point and it would grow and be a cancer in my soul.

I'd miss my kids, I'd miss my grandkids and my family. I'd hate what some of them thought of me... though I know many would understand... but they would also feel I walked away from them which I would have.

This is the hand I'm dealt with as you. I gotta believe The Lord has a plan here.

My advice? Get more help, take some more you time but don't quit. Your parents need you desperately. But get more help and get more time away to be a better you for you and them.

Remind me too as I forget the same.
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disgustedtoo Aug 2018
Here's your reminder iamdave!!!

Get more help, take some more you time but don't quit. Your wife needs you desperately. But get more help and get more time away to be a better you for you and her!!!.
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What’s keeping you from doing that? I completely relate to what you are saying. That’s the question I’ve had to ask myself over and over. Another thing I found helpful is playing that out it my head... plan it out. It might be the right thing for you to do... maybe it is time to step back a little to preserve your health and sanity. You don’t have to completely back out, you can find a way to step back a little or a lot too. It’s your life and your choice no matter how others treat you and no matter what other people say. There might be some local resources to help you do this in a way that will give you more peace and support as well.
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Those feelings are real and from other reader's responses, quite universal. But that feeling of wanting to run away is something you should listen to. It means that you need some assistance in the care of your parents, and you shouldn't ignore it. If you haven't yet done so, contact your local senior center or outreach person or senior council on the county level to find out what services your parents are eligible for. The metaphor that you want to "drive away" is a message to yourself that you don't feel as if you are "in the driver's seat." So my advice is to take charge and find some ways to lessen your burden. Think meals on wheels, medication dispensing machines, adult day care, help in the home, senior transportation to day activities, application to medicaid (if applicable), investigate other programs that allow more income. Formulate a working list of possible options. Find a way to share the burden; it doesn't have to be a big change, any change is a start and a validation of your feelings. It's so easy to burn out and I've been there.
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WilmaDean Aug 2018
Wow sounds so simple.. maybe for some but when your an only child taking care of 73yo mom whom just sits in her recliner ALL DAY AND NIGHT..Waited on hand and foot eats sleeps in the chair porta pot 2 steps away and she can't get there on get own.. to financially well off for any programs even if she weren't she wouldn't want to go anywhere but her CHAIR... Tried meals on wheels lasted 2 times didn't like them. 4 years in this and I no longer have any empathy for this situation.. have 1 girl that will sit with her any amount of time needed she's tried to get her to play games do puzzles etc.. AMD is always nonono..I want to watch tv. Even today hard a doc appointment got her in the car 2 min up the road she's playing the sick card starts throwing up came home sick all day doesn't want the hospital and it's her choice I can't make her go! I'm ready to bail! She has COPD.. so wow
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I hear you!! I came to this website on a day when I was so frustrated with my Mom’s AND my Mother in laws demands that I wanted to pack up my husband, son and the dog and just leave and never come back. Of course, that would never have happened but I was at my last straw. The words of the people on this site are so very helpful and I’ve even posted several times when I just had to “vent”. What everyone is saying about your finding a balance and more personal time is so true. It’s not easy and you will face a battle of wills when you back away a bit but you have to - for your own sanity and health. At this point for me, my MIL had to go into AL with dementia support for her own safety and health. She became too much for my husband and I to take good care of. It’s been a mix of emotions because we have to go through her stuff at her house and determine what is kept, thrown out or donated. Even though she’s alive it still feels as though we are taking care of her affairs after death. She’s been at the AL since May and has only now begun to accept it. She went through a lot of mean and nasty “acting out” at first. With all this, I have to say that we are far less stressed and she is safe and well cared for. My Mom is still with us and she does get under my skin a lot but I’ve been able to distance myself when she demands too much of me. She is able to care for herself but would much rather I do it for her. Ongoing battles but it’s just what you do. Best of luck to you in your caregiving journey. Just remember to take care of yourself first. Be sure your parent is safe but also be sure you are giving yourself what you need to preserve your sanity and your health.
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Boy do I get that. The only thing I can share is my answer to myself and that is to "dig deep"....there is strong growth in our caregiving experience. We may not recognize it presently but I feel sure that more will be revealed to us as we give, sometimes from reserves we doubt we even have, of ourselves. May God bless you with the patience, understanding, stamina and love that it takes to do what you are called to do 💕
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Good morning Jumary - While I do not have answers or solutions, I just wanted to reach out to let you know that you are not alone in these feelings.  While I do not face a lot of the criticism issues, I too, and suspect many others, would like to leave.  I even look at the planes as they pass overhead and wish I were on one going to some far away land (one way)....
While it sounds trite, and I am sure you have been given this advice many times before.... you absolutely HAVE to find a way to maintain being your own person.  I don't know if your parents are living with you (hope not), but even if they do, you have got to find a way to detach some, and get outside help, if possible.  I know it is so easy to say, and so hard to do, and also when you know it is not a total solution to the issues.  But anything at all can be helpful.  MY MIL lives with us, and I work from home, I have had to literally get in my car, ride to the end of our street and sit there a bit just to get out of the same space with him. 
Older parents do not have a given RIGHT to treat you with disrespect, and I read this all of the time.... so many people taking care of parents who are just mean, uncooperative and unmanageable.  While I do not profess to under the mind of the elderly, my human side says that they use it as an excuse to be mean, AND I might add that while some disagree, it is not the same as when they cared for you as a child, because children are to be taken care of by their parents (if the parents are worth anything that is).  Adults with adult issues are not the same.  Provided you had a good relationship growing up with them, I think it is a sound decision to, in turn, help them.... but that does not include being a whipping post.
Blessings and best of luck to you.  While this does not offer a hard and fast solution, maybe it will uplift you some....
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I totally get what you're saying Jumary! I have a hubby who has Huntington's - lately, I have been thinking of packing up the car, placing a teddy bear in the passenger's seat, and driving across Canada - just me & teddy, away from the problems of home - I'll never do it, but I do enjoy thinking about it!
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TracyHD Aug 2018
Hang in there Janell. I was my brother's caregiver/POA when he struggled with HD. I understand, but the self-respect you will find at the end of the journey is well work the perseverance. Take a break, get respite care, take care of yourself.
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echo everything here. My mother 83 y/o dementia and blind in one eye, mostly in other. After several falls, she’s had to have a spinal procedure, rehab and now AL. She’s angry, defiant, and the most frustrating deceptive person I’ve ever been around. I too, have been in a battle of wills with her with medical drs support, but it doesn’t matter. The damage she’s done to me is ongoing. She’s hiring a mover to take her back home(I can just imagine how this will turn out) and I’m backing away.
Mom trying to figure out how she will manage meds(not done too great before!) and was told she can no longer drive but did anyway. How do I stay away? Do I still go to Drs? I want to just change my name and run. Yes, I am POA, but I would expect her to change that soon. I am only surviving child.
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sidelined Aug 2018
Good morning AT1234 - chiming in here because I see how frustrated you are.  It makes your job 100% impossible when they behave like this.  So many times I never hear anyone discuss how sweet and thankful their parents (loved one) is, but mostly the same issues you mentioned here.  I think running away, even if in our minds, is totally normal.  Maybe you could seek counsel with an elder care attorney or your local Council on Aging regarding where your obligations end.... if anything if may give you comfort to know if she insists on doing things her own way, you will know what to do?  Best wishes!
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also get that POA it would be good to have ..do you have other family members ???? but get the pills
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hi i did that with my dog went for an hour walk came back she forgot that she was going to throw me out of the house ..well please pay attention it cost less than 10.00 so what you need to do is run away to walmart go to the vitamin section!! there is pills for you to give them ..i know it works my mom had dementia & now gone so it is melatonin a sleep aid so an hour before there sundown thing give them a pill usually about 5 mgs or what ever it has a fruit flavor it will calm them down & safe too ..so hang in there ..so have they been to a psychiatrist ??? you need to make a appointment to be seen so they get eval & the right kind of medicine but the melatonin will work so try it ok .. everytime i get on here i try to tell people like you that
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I bet I am not the only one to think this is another "Me Too" movement. You make me feel grateful that as snippy and obnoxious as my mother with dementia can be (and as forever clueless as my father is about that), he is appreciative and grateful. But I have to admit I have moments of wanting a day REALLLLLLYYYY off. Maybe you need to figure out a way to do that...and of course I realize one day is not enough. I am feeling concerned and guilty, even though they manage fairly well for going 45 minutes away for a few days this coming weekend. You need a break. Wouldn't it be wonderful if hotels would phone in to the Alzheimer's Assn or something to say we've got 3 rooms available, have a waiting list of documented caregivers, and call them and say hey...you've got a night off. Charge a nominal or not amount....
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Setting new boundaries is a necessity... so as challenging as it is, it's mandatory that you delegate some of your responsibilities to others and that may include other family members, senior services organizations, church or synogogue members, etc. The point is you have to care for yourself first... remember the admonition we are all given on airplanes, that should oxygen be required and you are traveling with a dependent, place the oxygen mask over YOUR face FIRST... Wishing you ease through this challenging, stressful and overwhelming time...
and we breathe...
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Right there with you!
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Im a member of this club too. I am just now, setting my boundaries. I was emotionally abused by my sane and then abusive dad, one last time. I'm given up so much of my life, to help them, and now just him. They didn't ask me too, and I'm no martyr, but I'm realizing now I'm damaged, from the constant roller coaster of unknown,, coupled with arguing, and me trying to take the lead...of something I really don't want. I was never close to my Sad, but I was always close in proximity as I was close to.my mom. But..just want you to know, I've stepped back, after his last extreme outburst to me. He's old, and living independently in a retirement Villa...but doesn't have dimentia...he's always had explosive outbursts to my mother..and me..then is fine. I realized I'm pushing his buttons, as I try to control his well being. He's old, health is failing, and I'm trying to help...but it's not working..I've stepped away..for awhile. I'm becoming like my brother. Dealing with him from a distance. He adores my brother, and there's never a fight...as he's removed. So..so am I..
I feel your stress. And hope you can step away for awhile too
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disgustedtoo Aug 2018
Wise choice to back away. Being POA does not mean one has to be there 24/7 and/or take abuse! In our case, mom is in MC, she is not the issue (she refused to move in with one of my brothers or have help come in, but could not stay alone so we had to move her.)

As to your description of dad: "he's always had explosive outbursts to my mother..and me..then is fine.", then you say you realize you are pushing his buttons - you may want to rethink that. If he's always done this to both of you, were either of you really pushing buttons? Even if you did, there's really no excuse for that behavior. Verbal/physical/psychological abuse generally leads the abused to think THEY are responsible for this. NO.

Why do I feel this way? My older brother was physically and verbally abusive to me when we were young. After we left the nest, went to college and later went our separate ways, these 'incidents' did not happen since we were not "together". The few times we might get together, it would be a family thing and we were not alone together, but it was not often, so this never came up over the years.

Since moving mom early last year, he has come up (2 day drive) several times to help clearing out the condo. All the other times he was here, he would sometimes get very testy, once threw an empty box at me and was nasty at times, but, like you said, later he was "fine." I did not recognize the pattern during those 'visits', but this last time he not only got very nasty, he physically threw me to the floor twice. Hurt my leg, seriously bruised my ankle. I ordered him out of my house. While packing he kept coming back to yell nasty things at me. Extremely nasty, verbally abusive things. He could not just pack his stuff and go. He should KNOW that I would be mad about being thrown to the floor, but no, he had to get the loudest nastiest words out and blame me! He had another week planned up here, so he stayed at the condo. A few days later he started coming back here with boxes of stuff from mom's - I would NOT answer the door (first time he got to my driveway just ahead of me - didn't realize it was him until he turned in, so I went to a neighbor's house instead. After an hour he was STILL here, so I went to get police escort - they had to take a statement and they wanted me to press charges! I declined saying once he is back home he won't be welcome back, ever. They wanted to call him after coming here and finding him gone. I also declined because I did not want to rile him up, just wanted him to finish his time and GO HOME!) Obviously the returns to my place were 'later' and now he too is 'fine', but I am NOT. I will not allow him in my house (he came several days in a row with stuff, so I asked other brother to tell him to go away as he was sitting here for an hour or more each time! I don't want him in my proximity. Other brother only told him I did not want any more stuff.) At this point I realize this is HIS issue, it never went away, it was just under the surface all this time, so I am DONE. It is who he is. I even made inquiries about other instances - his exwife and daughter, and I think perhaps HE drove the wife away and now know he has had incidents with my niece too. I told her what happened and told her to watch out for herself! Thankfully he does live 2 days away. I have NO plan to reunite or be around him or talk to him ever again! Forgive? Maybe. Forget? Not a chance. And he will never get a chance to do this to me again!

So, if your dad does/has done this explosive thing and then is fine, this is most likely what/who he is. Don't blame yourself.
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Jumary, hope you have a big car cuz lots of us want to join you on your joy ride across the country! The problem is - or at least one of them, and you know this - is that we can't run away from our problems. I'm glad for you that you'll be teaching again soon. That will provide a much needed distraction and may even make you think differently about how you teach! You'll have much more to offer your kids from a whole new perspective - something they can't get from a text book. That may help.

Also, the "compassionate lying" thing. At first, it drove me nuts, too. That's not my preferred way of dealing with things. But I realized it's the best thing for my mother. It relieves her worry about certain things - worry has always eaten her alive - and in most cases, there's no harm done in doing that. Is it that it feels patronizing to you? I felt I was patronizing Mom, but her brain simply can't process like it used to (which, frankly, never was very good). And she's a critical, negative person, too.

I share DPOA with my brother and sister - we all three have a great relationship and there will none of the typical sibling rivalry fights when the time comes to start taking action. That's a help. But I think when you enact POA, there's not much turning back, so only take that step when it's necessary.

In the meantime, there's no harm in running away in your mind... look at websites, order brochures, and plan your ideal relief trip when this is over. Maybe that anticipation and excitement will get you over some hurdles. Good luck to you.
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sidelined Aug 2018
Just had to reply about the "big car" comment - I need to be picked up too!  I am thinking maybe a caravan would be in order!
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Wow! amc716 I am in awe of your response. I am an only child and have been responsible for my mother for the past 13 years since my father died. My life hasn’t been my own since. I vascillate between sympathy and anger in dealing with her mood swings. Right now she’s verbally abusive when she does speak to me. She’s in a very good AL but I always feel like I’m on edge when she’s like this. I’m 72 and I feel like my life is on hold. When she’s in a depressive state I feel sorry for her and and feel guilty when I don’t spend more time with her. I know that I’m projecting these feeling on myself, and I applaud your decision live your life. I know the feeling of wanting to get in the car and just keep on going!
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Love2Garden, I love your statement "Recognize your parents are broken, you can't fix them". OMG. I think that's a big part of the mental anguish in this caregiving situation. No, it's not going to get better, it's only going to get worse, and YOU have to watch one or two people become something other than the people who raised you, AND you get to slowly watch them die. Zippity-Doo-Dah!
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Hmm, I thought about doing just that on Friday. I live in central Florida and was driving toward Daytona Beach for a work appointment. I seriously thought about just keeping driving and disappearing at the beach. My dog would starve, otherwise, I may have done it. I'm an only child taking care of a dad with dementia (living in memory care) and an alcoholic mom who lives alone and within walking distance. I dread each day and cringe whenever my phone rings.
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keepingup Aug 2018
Here's a hug, sure sounds like you need one. Do you have any support system at all, a social,safe place or person to vent? I take care of a pretty nasty person with dementia. Don't know if I'd sound as sane as you do without a (pro bono) therapist,one good friend and this website. Rest assured anyone who reads your post is sending you understanding.
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Man- do I understand. It was the toughest job I ever had to do... and the most gut wrenching. I never felt so overwhelmed, sad and alone. But I did it.. and you can too. My folks are both gone now - they passed in 2017. I am glad it’s over..for them mostly- it’s an awful disease.. I have no regrets that I did the hard job. Hang in there!! Big hugs!! People always said- “Take care of yourself..” That is easier said than done. If I had to do it over again - I would have taken more time for myself..
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I feel for you! Everyday for the past 12 years, I still want to run away. My 93 yr old mother lives with me. She's on the opposite end of the spectrum, not mean at all but a martyr. The constant negativity is beyond my last nerve. The woe is me attitude. Yes caregiver burnout is very real. It attacks you before you realize what is happening to you. It made me into an ugly person, someone by nature I'm not. It changed my personality. If someone would of told me long ago this was going to happen, I wouldn't believed them. I'm still caring for my mother in my house. My advice to you is take care of yourself. Change your mental outlook. Safeguard your mental sanity. Start by taking care of yourself first. It's not easy and will take some work. Recognize your parents are broken, you can't fix them. You can't control what they say. You can only control yourself and how you react to them. You do your best and leave it at that.
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This2shallpass Aug 2018
Great response! As many others on this site, I find myself in a unexpected caregiver role I did not plan for. My 88 year old mother with dementia lives with me and loves to travel down the "poor me" path. I have always tried to be a very positive person so I don't have much tolerance for pity parties. Now when she says her familiar statement "Who would have ever thought I would have ended up like this?" I laugh at the irony and respond with "and who would have thought I would have ever ended up like this!" It's like they say "If you don't laugh, you'll cry".........as difficult as it can get, I'm still trying to laugh every chance I get.
Bless you all.
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don't lie to your dad , change the subject , he can believe whatever he wants , it is ok .. he is not who he was .
Arguing , lying are not needed if you understand that usually there is no big issue for things they are used to .
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This job is hard and that is why you have it and nobody else does .
Call Social Services. Senior Citizen help in your community for advice . Have them come to your home to view the stress level ..
You need help now .
If you are not an only child , hand the house keys and list of duties to your family so they can understand you are done as you leave for a new job where you have your home .
No warning because they won't listen and excuses and accusations will come .
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I was in a very similar situation. Plus, my mother has always been critical of me and unaccepting of who I am. I am POA. It has been rough. She lived with me and my husband for 2 years. After three weeks, she began picking on my husband every single day. This is the man who invited her to come live with us, built her an arbor in her back yard, landscaped her front yard, and painted her bedroom not once, but twice b/c halve way through she changed her mind on the color!

After two years for the stress and with very little help from my brothers, I became very depressed. I spent almost three days thinking through options regarding the situation and trying to predict the outcome of my decision. Finally, it came up in conversation that she wanted to move. I used that as an opportunity to move her.

I have ave no regrets. It was the best thing for me and my marriage at the time. I still see mom twice a week and often take homecooked food.
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If you feel the need to go, GO. If you feel the need to say ENOUGH, say it! It's YOUR life, not theirs. A POA does not mean you have to be in their lives or under their roof, only respectful of what is theirs.
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Look into Respite?

My my mother had been critical all her life of me. But, I forgave her and moved in to take care of her until she passed under my watch.

I know now that I had done my duty as her daughter and I am at peace. Her issues where her issues not mine.


may peace be still for you.
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