We had successfully transitioned mom to an ALF on December 1. She loved the community and was settling in nicely. She fell on December 9 and has been in rehab since.
She tested positive for Covid December 23 and has been in quarantine for the past 14 days. She appears to be coming out of that, thankfully.
She has a pattern of calling multiple times during the night — usually starting around 10:30 PM. I wake up in the morning to find six or more “missed calls“ and voicemails. I had to shut my phone off to be able to sleep.
The troubling thing is that she has no concept of time. She often forgets where she is. Sometimes I think she might be “sleep calling“ and gets stuck in that loop, auto calling every 30 minutes or so until she finally falls asleep. She doesn’t remember making the calls the next day.
Worse, the voicemails she leaves make me feel awful. They’re often cries for help — “call someone to get me some water”, “no one is coming to help me”, “please get me out of here”.
I can’t bear to listen to them, and I don’t know what to do.
She’s likely going to be in rehab for another month before she returns to AL. Now that she’s past quarantine, she will begin a fairly aggressive PT and OT schedule to help her recover from the fall. I’m hoping that will help remedy the problem, as she’ll be physically and mentally fatigued by the time she goes to bed.
Any suggestions in the meantime? I’m really worn out over this.
I understand how difficult it is to try to reassure someone who will not be reassured.
It is not as simple as simply answering the phone and lying to her to tell her everything will be okay, when you nor she have any way of knowing everything will be okay.
As another person suggested call the hospital to ask if she is being tended to properly.
The thing to remember is that the patient is probably scared and in unfamiliar surroundings. At night, whoever is on duty is probably down at one end of the hall and not checking patients often, if at all. There are all types of patients there—the lady across the hall from my fiance would scream and moan all night long! It's no wonder that he would awaken and be terrified.
He was also suffering from the delirium that often temporarily follows prolonged anesthesia, and who knows what medicines he was on that might have contributed.
Bottom line: Try to contact the night nurse on duty and ask her to go check your mom and reassure her.
I tried to do that and discovered to my horror that the only line into the rehab facility rang the front desk, which of course was closed at night. If you can't reach anyone at night, I urge you to contact the corporate headquarters and complain forcefully. There needs to be an after-hours phone number that will reach a person who is there! A patient could be having a bonafide emergency, called you to tell you, and there would be no way to let the night nurse know.
Try to get some rest during the day and try picking up the phone while you're still awake at night. Reassure your mom that you care about her very much but ask her not to call you any more because you need your sleep. And find a way to tell the facility that they need to check on her more frequently.
I would let the rehab know that she is not fully understanding how she can contact them for her immediate needs and ask them to help her with that.
I have seen people in rehab that were left with no water, so I wouldn't ignore her but, make the facility do everything possible to ensure that she is being cared for in the best way. Speaking to the DON or someone in their social services department can ensure that the simple things are getting done.
One thing that really helped me not feel bad about turning my phone off was that I knew the facility would contact me if anything happened that needed me.
I completely understand your distress. Mom was calling me (6-hour drive away), my siblings, friends, and even her financial advisor who lived an hour away for help!
I would let the rehab know that she is not fully understanding how she can contact them for her immediate needs and ask them to help her with that.
I have seen people in rehab that were left with no water, so I wouldn't ignore her but, make the facility do everything possible to ensure that she is being cared for in the best way. Speaking to the DON or someone in their social services department can ensure that the simple things are getting done.
One thing that really helped me not feel bad about turning my phone off was that I knew the facility would contact me if anything happened that needed me.
We are in touch with the staff regularly, plus visited almost daily before COVID. Her problem was she did not know "where she was," and "wanted to come home." She called looking for my deceased father. Since her memory was no more than a few seconds, she would call and ask the same questions over and over. Suggest you consider discontinuing the phone service. The phone calls don't serve any useful purpose.
as for the rest I will never not believe anyone who complains about rehabs care or food. I did a recent stint at a young 63 recuperating from a cardiothoracic surgery. My instinct was to go directly home from the hospital and it will be one of my biggest regrets I didn't. I feel traumatized by the whole rehab experience where the food was just beyond dreadful. Seriously these idiots are in it for the $$$ alone and they staff as minimally as they can get away with. Kindness and compassion were absent. They would have been better off serving frozen entrees than what they were. EX: they act like they care by asking if you have any dietary issues. I said I don't eat meat or pork. Nearly every other meal was a cold rubbery grilled cheese. So much for the heart healthy diet right? I was not even allowed to go outside and breath some fresh air. If I had more energy I'd be looking into suing them.
A lot of these place put people in bed for the night, no lights, no tv before 730 pm and seldom, if at all, check on them until the next morning 11-13 hours later, alone, in the dark, unable to get anything for themselves, pressing a call button can go unanswered for hours.
If she can dial a phone, chances are this is what is happening to her
1 leave a bathroom light or night light on
And leave a note on the wall for staff to leave a light on at night
2 leave a tv or radio on
3 have things she might want at arms length for her on night stand or bedside tray
For drinks juice boxes or Capri Sun are good, less spills, and easy snacks, salty and sweet (we got little Debbie snacks)
Keep her supply of snacks in sealed tupperware style containers so they dont attract bugs, and on days you cant go to see her arrange for staff to set out a drink or two and 1 or 2 snacks that she can easily reach without getting out of bed during the night.
These places are nightmares at night time.
You may want to put a nanny cam or 2 in her room so you can check in on her
Is there any way to have her phone shut off at night too? This is just CRAZY! It might be helpful if you could block her number, not in a mean way but for your sanity? If there's an actual problem, staff WILL call you. You can call her every day to check in, if you wish to.
It doesn’t sound like your mom is calling without reason. She’s not voicing purely emotional complaints about the place being bad. She’s got specific complaints about people not answering her call button, for example. That means they aren’t answering her call button. How would you feel about lying in bed for hours waiting for someone to help you to the toilet? Eventually having to pee yourself and then being chastised by an overworked aide? Maybe being forced to wear a diaper because they can’t or won’t help, and your personal discomfort is a small price to pay?
Of course if you call the facility they will assert that nothing is wrong. I personally spent time with my mom when she was in rehab for a short time. I come in, her call light is on, no one is there to help her to the toilet and I’m not allowed to help. The hallway is filled with people in wheelchairs parked by the staff. (I found out later the place was being investigated for over medication to keep patients docile.) At the nurse’s station are three people sitting and chatting about the weekend. And how much do they charge for this level of care? I relay my mom’s request for toilet help, they say they are getting to it, it’s another 20 minutes. If that’s how they act when there is family present and observing, how do you think they act when a patient is alone and helpless?
When a patient has specific complaints about lack of attention and bad food, at least investigate, and that doesn’t mean call the manager. Go there at meal time and see what the food is like. Taste it. Does it look appetizing? Is it dried out and tough? Cold? How long does it take someone to respond to a call button - both the initial speakerphone response and having a person show up? With COVID you might not be able to get into the facility. Is there a window you can stand outside of?
Check with the local regulatory bodies for complaints filed, lawsuits, judgements, fines, warnings and the like. AARP has a dedicated page on their website with helpful advice and contact info. Maybe your mom could be moved to a better-run facility. A lonely and frightened person calling in the middle of the night for comfort, you might have to not take the calls. But if there really is neglect, and the facility is covering it up, it’s cruel.
One suggestion...I bought my parents a “GrandPad” which is a tablet with restricted functionality for seniors. They can listen to music, read articles, play games, get email and photos and phone or video calls but only from a restricted list of group members. The cellular service is from Consumer Cellular but the GrandPad support is a separate line. When I first got it for them, Support called several times to see if they needed any help. They called me to ask if we needed any help with the device. They stressed that my parents should call them any time with questions. I said, be careful, they might call to talk your ear off. The rep laughed and said that would be fine. I’m not suggesting they are a suitable replacement for middle of the night help, but maybe just knowing that someone is available would be reassuring. Patients could also send messages or pictures. “I just pushed the call button and it’s 8 pm”. “It’s 9:30 and no one has been here” “Here’s what they brought me to eat.” The Support people can walk your parent through how to do all that, and the device can use voice commands as well as the screen keyboard,
youll have to remember to replug it in of course and set up another way for emergency calls.
‘Buy your mom a large digital wristwatch with a lighted dial. ( I had one sent via Amazon right to facility and I called to ask someone help her get it set correctly.) My mom often does not understand if it’s morning or evening.
Call your mom to say good night to her every night. Tell her you will call her in the morning, Tell her what time it is.
I had awful calls but I had to answer. I did not ever ever want my mother to feel abandoned. Even if it was not true, I never want her to think that. She can call me anytime she wants. And yes, I have had some very rough calls, You would not believe it.
With these tips, (It’s what I did) , my mother soon stopped calling me at night.
She has to know that you will always be there for her, when she is reassured that you are taking care of her by constant communication with staff , she will stop,
others need something stronger but they normally won’t give it to them because the risk of fall goes way up if she bed ridden then maybe you can fight for it.
if your concern the facility is not doing your job put a spy camera in it. Some of these places are really horrible and we should always believe our loved one first until otherwise.
my mother in law used to call my husband 300 times a day.
I’m not making up that number. We watched her on the camera and she actually would sit hit dial it would ring and she would hang up and do it all again. She denied doing it even when we showed her the video. Needless to say I took her phone away. You could request that her phone be removed from her room.
to be frank when people feel guilty what they do if it becomes to much is hide and avoid. You have every RIGHT in order to help her to ignore a nuisance phone calls as long as you know and have proof the rehab is doing there jobs. She should be sleeping at night and you can’t be her VOICE if you feel guilty. Please know my heart and hugs go out to you. If you ever need to talk I would be happy to listen.