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I take care of a 94 M at night. When he tells me he's ready for bed I'll put him in bed. When I turn off the light, he begins screaming help his arm hurts his leg hurts you get the picture. Lately he says he doesn't know if he knew he would tell me just rude about it. I sometimes turn on the tv, lay in a separate bed next to him or leave the light on. He will fall asleep for a hour then he's back up screaming & he wants to get up I'll pull his wheelchair up next to his bed just for him to lay back down. I will go to the living room when the screaming becomes too much. He then starts screaming help again, I will ignore it in hopes he'll stop but he doesn't. I'll eventually check in and ask what he needs help with.... he then closes his eyes but i can see him peeking to see if im standing over him, doesn't respond back as soon as I hit that corner he starts again. I'll rub his back to try to calm him down but it gets to a point where I can't help but be short with him and straight to the point of what he's going to do because I'm not playing his games & going back & forth all night he usually cuts me off screaming cursing. I'm human too and this has just become too much guys I've worked in a facility for 4 years but this one here is for the books

Yes to meds for anxiety/agitation/depression. He could be doing what's called "Shadowing", a common dementia behavior when they scream for you the minute they don't see you. My Aunt did this, it was a phase but lasted a while.

It would help you to learn about dementia so that you can learn strategies on how to interact with him in more peaceful and productive ways. Dementia robs people of their reason and logic, their memory, their ability to have empathy, their sense of time and space, their inhibitions, etc. Teepa Snow has some very good videos on YouTube and I learned a lot about dementia strategies from them.
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Reply to Geaton777
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I have been taking care of my mother in law for three years now and I know exactly what you are going through! I thought i knew her but her husband died and she is such s hateful mean person to everyone her family wanted nothing to do with her. She "falls" all the time, well it's only every once in a while now, but she wanted attention so bad she would make herself fall and even break bones doing it so she could go to the hospital and have all the attention of people and they do everything for her. I, begrudgingly moved in because her husband passed away and she had a broken hip from one of her "falls" but could still function to a degree. The only reason I moved in to be there for her is my DH was out of state for a pretty long time and couldn't be there to help her so he begged me to just move in with her so she could have the surgery done on her hip and have somebody who could take care of her until she heals. I moved in with our two boys who were 12 and 9 yrs old. I have bipolar disorder 2 which is more depression symptoms than manic. And general anxiety. I could literally write a book. There's just so much that I was dealing with and amazingly enough, I didn't fully break mentally and emotionally! Almost but not completely..... I caught her "falling" and I was blown away. I've never seen anything like it! So I call the ambulance and she goes to hospital. A nurse at the hospital called me and said that I needed to have a talk with her because she was being so hateful and degrading to the nurse because she felt like she wasn't babying her, not enough attention. So I had to talk to her and tell her to stop or they will make her leave. Needless to say she apologized to her and she was sent to a skilled nursing facility to recover. Not even a month there and the nurses and CNA are telling me that she had a 90 yr old roommate who they had to remove her from the room because she was so hateful her grandson insisted she move!!!! If that alone doesn't say it all, idk what will. The nurses eventually caught her in the act and her DR discharged her that day and said that he was not going to treat her anymore because she is doing this herself and won't listen to the nurses. So I had to go pick her up after a crazy phone call from the director of the nursing home advising me that because her DR refused to continue treating her, the insurance company stopped paying for her being there. They also sent a bill to her because after the DR discharged her, the insurance company was notified and refused to pay after two or three days. One of her neighbors was diagnosed with dementia. Not long after she started "forgetting" things. Still hurting herself so I put a camera in her room so I could watch her and see what she does exactly. I caught her on her bed early in the morning, (she had a cast on because she broke her arm) and she scooted herself so she was laying sideways and she literally pushed her feet off the wall and slid out of bed!!! She laid there not screaming just waiting for us to find her that way but she yelled at me for not helping her claiming she yelled all night!!! I am the daughter in law and we don't see eye to eye because I call her on her bullsh*t and she hates that. So she would tell my husband that I was so mean to her and I yell at her all the time she even went as far to tell him that she was afraid of me because she was sure that I was going to hurt her!!! She was 73 at the time, I have NEVER and would NEVER hurt anybody specially elderly people.... My husband didn't know what really was going on until he got home and I showed him the videos I got showing everything. She is a mentally abusive woman and I believe she suffers from manchsusim syndrome among many other things. You see a little old lady but inside she is the worst person I've ever met...... Sorry for the long response but I'm so overwhelmed and done with this situation.
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Reply to Susanfox491
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Have a doctor and social worker evaluate him.
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Reply to Patathome01
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LIZ2345: He needs to visit a neurologist.
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Reply to Llamalover47
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My 63 yr old husband does this. He has vascular dementia after a stroke 9 years ago. Prior to the stroke, he was always the guy in charge. He liked being in charge. Now he is completely dependent - and yells for help all the time!
A couple years ago, he went through a phase where he would intentionally slide out of his chair onto the floor, forcing me to get the hoyer lift and get him up off of the floor. He has also flipped himself over in his wheelchair, or slides out of the wheelchair onto the floor when he isn't getting his way.
But the constant yelling for help or attention is the worst part of caring for him!

Sometimes I just have to take a break and go outside and calm myself before I can deal with him again.

Of course, it goes without saying, making sure the person is comfortable and their needs are met is the first order of business.
I have tried several different medications before finding what worked for him.
A combination of Depakote and Trazodone, either one or together (at bedtime) as needed. My nickname for the Depakote is a STFU pill. Because it keeps him quiet and calm.

I give the same "I'm not playing this game" response! Lol! And, he doesn't want to hear it, so he just gets louder, moaning or just loud gibberish over me talking.

When he's like that I just walk away. Yes, I can still hear him, and yes it is still annoying. But again, Go outside if you have to! Talk a short walk or sit out on the patio, sit inside your car, whatever gets you away from the nonsense.

I like to use that time to remind myself how frustrated he must be and that I still care about him. Sometimes I do a google search and read experts advice on how they deal with a certain behavior. That helps me to have a more patient perspective, so I am better able to deal with him in a patient manner, without getting so frustrated myself.

If you're not already familiar with it, look up perseveration. Some people with dementia (or other brain disorder) really can't help themselves as they repeat something like a broken record. If that is the case, the best way to stop it is re-direction. Offer a snack, or to change the channel on the tv, or something to change their focus.
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Reply to CaringWifeAZ
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I agree with others that the first stop here is the doctor.
Sleep disturbances are very common to all dementias, as are night terrors and sundowning in the evening. This is something that medication may be able to address. There are problems of course with side effects from the dementia causing falls, but as this gentleman, from all you say, is wheelchair bound, he hopefully will not become confused about bed and thinking he can get out of it.

Sorry, but this is definitely something you can't "sooth away". As you are working in caregiving you know that. There is no "reasoning" with dementia.

Wishing you good luck.
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Reply to AlvaDeer
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Surely this mans doctor can prescribe some type of medication for him to help keep him more calm in the evenings. That would be the best place to start, so talk to whoever is his POA today to get that taken care of.
Other than that my only other thought is to just let him sleep in his recliner in the living room and see if he doesn't do better with that.
I spend time with a 100 year old woman who has been sleeping in her recliner in her living room for the past 8 years and she wouldn't have it any other way.
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Reply to funkygrandma59
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JoAnn29 Oct 16, 2024
My MIL slept in a recliner because of her hips. Sleeping in a bed was uncomforable for her.
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Sounds like he needs some type of anxiety medication.

My grandmother did this too! She’d scream to get up saying her back hurt and she needed to sit in recliner. As soon as she was in the recliner and caregiver was situated on the sofa and dozing off, she would scream that she needed to lie down! There were also visits to the toilet between each of these. It was horrible.
I think doctor prescribed Xanax.
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Reply to XenaJada
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