So, every week someone from hospice asks, "Do you need any supplies?"
Uhm, maybe? Sure? What do you mean by supplies? What can I order? There's apparently no answer for that.
"Is there a list?" No, there is not a list. So apparently our hospice company was just absorbed by another hospice company. There is no list of "commonly needed items"or "approved items", etc.
The CNA was like ,"At least before we could look things up on Medline but now..." and I get a vaugely frustrated shrug from a girl that really needs to worry less about this and focus more on what she can do as a CNA.
The nurses are equally flummoxed. (is that the right word?) So like, skin prep? Allegedly? But it never arrived so I had to order some from Amazon before my mom's red spot with teeny little scab-y areas ballooned into something huge (I caught that just in time) slides/chucks, diapers, wipes, sure. (though I told the girl my mom is 80lbs soaking wet and they sent adult mediums. Is the diaper mafia looking for adult mediums? I've got you covered.)
Dry shampoo suddenly went from a yes to a, "uhhh maybe". I have no idea what else is even available or on offer or common useful or needed for a patient at my mom's state. (End stage COPD. Can still walk around a bit. 5-10 steps comfortably, could run out if there's a fire but won't get further, as movement goes. Adrenaline actually can make her run around in circles but that's a different story for a different day o.o)
So as I have read through enough here to see just how agitated a lot of folks are with hospice, and for the record yes the hospice company we had, now absorbed by someone else, also seem to be becoming agitated with their own existence o.o before at least these decent nurses/aides quit in a rage, does anyone here have a cheat-sheet of the "covered stuff" that is usually get-able for someone in hospice care?
Thanks. Also I'm about three millimeters from a nervous breakdown. :D
Check out this list.
Chux pads
Pull-ups
white barrier cream
Gloves
Thanks for the info <3