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Who are you caring for?
Which best describes their mobility?
How well are they maintaining their hygiene?
How are they managing their medications?
Does their living environment pose any safety concerns?
Fall risks, spoiled food, or other threats to wellbeing
Are they experiencing any memory loss?
Which best describes your loved one's social life?
Acknowledgment of Disclosures and Authorization
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment. You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
Remember, this assessment is not a substitute for professional advice.
Share a few details and we will match you to trusted home care in your area:
Phil, what specific long term care service do you feel you need? Assistance with finances to stay in Independent Living? Long term care for medical services? Have you applied for any disability services?
I'm not very knowledgeable on this situation but wanted to get a few clarifications and bump your post up so others can see and respond.
You might be able to get Palliative Care (not the same as Hospice Care) for your medical issues, but it won't be as extensive as if you had insurance, and on that issue, what kind of medical insurance do you have now? Is it unsatisfactory and/or insufficient?
Have you considered applying for Medicaid?
I don't know much about IL and whether there's financial support for it. Others here probably are more informed on that issue.
An adult with Autism is, imo, an underserved population when it comes to housing, medical, and supportive services. Nevertheless, there are support groups, even if you are the one with autism. You sound alone, usually there is family to advocate for you, but a support group can direct you in the right direction. So, go to a support group.
There is The Dept. of Rehabilitation and County Regional Services who can support you in your goals, whether it is to remain independent and become employed as much as possible; or if functioning is just now at a level requiring Soc.Sec. disability through your own work history or that of your parents-a possibility because of your young age.
If you require supportive housing, or cannot remain independent, you will qualify for Medicaid and long-term care ( when the time comes). Even then, supportive housing environments have special needs employment opportunities.
IMO, autism spectrum disorder and especially aspergers has you behaving competent one minute, and then there are serious downtimes-not your fault, it is part of the condition. So you will need an advocate to walk you through this. (Can be a friend).
Regional Services can help you with a case worker. Even though you are not mentally ill, having a psychiatrist to document your needs can help in the application for services, imo. (in my opinion). If you are on SS disability, that income will go to pay for housing. The other route is to go on welfare, SSI, but I am not as familiar with that plan.
I am surprised you not under some organization now. I am starting to get help with housing for disabled nephew, now we may lose my Mom's house where he has been living the last nine years. I was told to try our local Dept of Disabilities. Is there an Autistic organizaion in your area?
Phil, Your very young age is at issue because you have not been careful and have posted your name, age, location. You have done nothing wrong, but this is dangerous internet use, especially for you, considering the information you have shared and shared privately. I am positive you will be subject to exploitation.
Please change your screen name, remove your town from your profile, and your age. Can you do that? You can abandon this question, and ask a new one.
You can come back with a new question, new screen name, and maybe someone can help you find the resources you need, once you are able to describe your circumstances.
I think you should try: "Supported Housing". I am not sure LTC is what you need-that refers to the elderly going into a facility.
You have not said what advice you have tried so far, or what exactly health insurance you now have. Some are: Private health inurance. Medicare for disabled or elderly 65 + Medi-Cal (in California) for low income, very low income. Medicaid (combination Medicare and Medi-Cal for low income and disabled.)
I am sorry that so far, you have no one to walk you through the process. That is why I referred you to the Dept. of Rehabilitation and Regional Services.
Just want you to know, that even though you are struggling, step-by-step this can be managed, you can gave a good, valuable, and productive life, with just a very litle help from your friends.
In the meantime, watch "Mozart and the Whale", have you seen it?
Phil, In researching Medicaid Waiver, I have searched the AgingCare website and found this:
Ralph Robbins 387 HELPFUL ANSWERS Certified Financial Planner Follow this Expert 8 years ago As mentioned, it depends on the state in which you live. Many states have what are known as Medicaid waiver services. This means the state has gone to the feds with a plan to use Medicaid dollars in different ways. Sometimes these waiver services include nursing home long-term care diversion programs.
These programs are generically known as Home and Community Based Services and are intended to help those who would otherwise be eligible for nursing home benefits receive care in less intensive and therefore, hopefully, less expensive, venues.
So, for instance, here in Florida we have nursing home long-term care diversion program. It is managed by private companies that receive a monthly fee (called a "capitation") from the state to offer a continuum of long-term care services to those eligible for both Medicare and Medicaid ("dual eligibles").
Services may be provided in the home, in an assisted living facility, or a nursing home. Most diversion programs will pay approximately $1,000 towards the cost of an assisted living facility.
To participate in long-term care diversion the applicant must meet the same Medicaid requirements as for institutional care; both medical and financial.
Phil, Is this what you are dealing with in Florida? If you have income, SSI or SSDI income, maybe you don't need an institution. For example, share renting a room could be affordable for you.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
I'm not very knowledgeable on this situation but wanted to get a few clarifications and bump your post up so others can see and respond.
Have you considered applying for Medicaid?
I don't know much about IL and whether there's financial support for it. Others here probably are more informed on that issue.
There is The Dept. of Rehabilitation and County Regional Services who can support you in your goals, whether it is to remain independent and become employed as much as possible; or if functioning is just now at a level requiring Soc.Sec. disability through your own work history or that of your parents-a possibility because of your young age.
If you require supportive housing, or cannot remain independent, you will qualify for Medicaid and long-term care ( when the time comes). Even then, supportive housing environments have special needs employment opportunities.
IMO, autism spectrum disorder and especially aspergers has you behaving competent one minute, and then there are serious downtimes-not your fault, it is part of the condition. So you will need an advocate to walk you through this. (Can be a friend).
Regional Services can help you with a case worker. Even though you are not mentally ill, having a psychiatrist to document your needs can help in the application for services, imo. (in my opinion).
If you are on SS disability, that income will go to pay for housing.
The other route is to go on welfare, SSI, but I am not as familiar with that plan.
Hope this was helpful.
Your very young age is at issue because you have not been careful and have posted your name, age, location. You have done nothing wrong, but this is dangerous internet use, especially for you, considering the information you have shared and shared privately. I am positive you will be subject to exploitation.
Please change your screen name, remove your town from your profile, and your age.
Can you do that? You can abandon this question, and ask a new one.
You can come back with a new question, new screen name, and maybe someone can help you find the resources you need, once you are able to describe your circumstances.
I think you should try: "Supported Housing".
I am not sure LTC is what you need-that refers to the elderly going into a facility.
You have not said what advice you have tried so far, or what exactly health insurance you now have.
Some are:
Private health inurance.
Medicare for disabled or elderly 65 +
Medi-Cal (in California) for low income, very low income.
Medicaid (combination Medicare and Medi-Cal for low income and disabled.)
I am sorry that so far, you have no one to walk you through the process.
That is why I referred you to the Dept. of Rehabilitation and Regional Services.
Just want you to know, that even though you are struggling, step-by-step this can be managed, you can gave a good, valuable, and productive life, with just a very litle help from your friends.
In the meantime, watch "Mozart and the Whale", have you seen it?
Ralph Robbins 387 HELPFUL ANSWERS
Certified Financial Planner
Follow this Expert
8 years ago
As mentioned, it depends on the state in which you live. Many states have what are known as Medicaid waiver services. This means the state has gone to the feds with a plan to use Medicaid dollars in different ways. Sometimes these waiver services include nursing home long-term care diversion programs.
These programs are generically known as Home and Community Based Services and are intended to help those who would otherwise be eligible for nursing home benefits receive care in less intensive and therefore, hopefully, less expensive, venues.
So, for instance, here in Florida we have nursing home long-term care diversion program. It is managed by private companies that receive a monthly fee (called a "capitation") from the state to offer a continuum of long-term care services to those eligible for both Medicare and Medicaid ("dual eligibles").
Services may be provided in the home, in an assisted living facility, or a nursing home. Most diversion programs will pay approximately $1,000 towards the cost of an assisted living facility.
To participate in long-term care diversion the applicant must meet the same Medicaid requirements as for institutional care; both medical and financial.
Phil,
Is this what you are dealing with in Florida?
If you have income, SSI or SSDI income, maybe you don't need an institution.
For example, share renting a room could be affordable for you.
How are you doing so far?