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I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
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I have a mother-in-law with Parkinson's and dementia. She makes a mess with her food and drink. She should be fed, but I don't know if she will let me.
Is she having excessive tremors? Can this be addressed with her neurologist adjusting her meds? Can she use any adaptive utensils? Have you consulted an Occupational Therapist? Are there any swallowing issues?
There are special utensils made for Parkinsons. They are specialy balanced. It a spoon it moves with the tremor, i think. I agree to ask her doctor for an order for a therapist to come and help you determine what type of utensils would be best for her. A little PT may help too.
You might need to ask her medical care provider for a 'home nurse' (or other medically trained professional) visit to assist you in figuring this out. They have a lot of experience and will be able to support you.
* You likely won't know if she'll let you until you try. - Do that with lots of kind words, gentleness, compassion. She will pick up on how you feel, touch, speak to her. - If she pushes you away, don't negatively respond. Perhaps stop for a moment and look into her eyes and smile and say: "It's okay. We'll get through this TOGETHER" - - She needs assurance she isn't alone. - Her anxiety (and of the unknown(s) need to be acknowledged by you through patient compassion.
* Hopefully between a medically trained professional and you compassionately working with her, she will soon / eventually ease up her (possible) resistance to this support - if she resists at all. She may not.
* Please note I do not have any personal experience in this specific area. Others responding likely do.
Your best option may to ask your LO's doctor for a referral to a speech therapist. The speech therapist can evaluate swallowing - something that degrades as PD progresses - and recommend the best diet consistency and tools to help with feeding. Your LO may be more willing to allow you to feed him/her after this evaluation.
I would try handling it like I did with my children learning to eat. Allow her to continue to try while you also feed her bites and sips between the ones she manages on her own. With my children I was trying to help them become independent without a complete mess, where with an adult I would be trying to help them adjust and accept my feeding as their abilities decline. Hopefully in time she may decide it is a lot easier to accept your help.
As others have suggested, there are special utensils that may help along with a consultation with an Occupational Therapist. The therapist can recommend items appropriate for her needs and perhaps some may even be covered by Medicare if prescribed. A consultation with a nutritionist may help you find the most appropriate foods for her that would be less messy.
Mammajae: Perhaps you can do a test run to see how it presents. Also, specialized spoons are available for the patient to maintain a level of independence, but quite possibly your MIL's skill level could not accommodate them.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
* You likely won't know if she'll let you until you try.
- Do that with lots of kind words, gentleness, compassion. She will pick up on how you feel, touch, speak to her.
- If she pushes you away, don't negatively respond. Perhaps stop for a moment and look into her eyes and smile and say: "It's okay. We'll get through this TOGETHER" -
- She needs assurance she isn't alone.
- Her anxiety (and of the unknown(s) need to be acknowledged by you through patient compassion.
* Hopefully between a medically trained professional and you compassionately working with her, she will soon / eventually ease up her (possible) resistance to this support - if she resists at all. She may not.
* Please note I do not have any personal experience in this specific area. Others responding likely do.
Gena / Touch Matters
Or a dietician?
Or a speech/language/swallowing therapist?
As others have suggested, there are special utensils that may help along with a consultation with an Occupational Therapist. The therapist can recommend items appropriate for her needs and perhaps some may even be covered by Medicare if prescribed. A consultation with a nutritionist may help you find the most appropriate foods for her that would be less messy.