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Who are you caring for?
Which best describes their mobility?
How well are they maintaining their hygiene?
How are they managing their medications?
Does their living environment pose any safety concerns?
Fall risks, spoiled food, or other threats to wellbeing
Are they experiencing any memory loss?
Which best describes your loved one's social life?
Acknowledgment of Disclosures and Authorization
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment. You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
Remember, this assessment is not a substitute for professional advice.
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One of the best options you have is HOSPICE. If mom is in last stages Hospice can help you navigate End Of Life. They can try as best they can to make sure that she is comfortable and pain free. You will have the supplies you need and the support of a great team of dedicated people. If you are asking if there are any drugs or methods that will extend her life I am sure her doctors have done what they can and medication can only do so much. Let Hospice help her and you now.
I can only offer my experience. My mom is on the end of the spectrum with all Lewy body dementia and no Parkinson's symptoms, so she is not a candidate for the new, incredibly expensive ($1400 a month) drug Nuplazid (pimavanserin) according to her insurance. Remeron (mirtazapine) is supposedly helpful for the hallucinations also, but she hasn't tried that recently. For her, Seroquel has been very effective at controlling the hallucinations and delusions and stabilizing her mood, at least when she doesn't have a urinary tract infection. It's always worth checking for a urinary tract infection. Each time my mom has gone uncontrollably, violently combative with raging hallucinations and delusions (police came twice), on hospitalization she was treated for urinary tract infection and once again became a sweet little old lady. She is now on a daily antibiotic for prevention of urinary tract infection. We do have Depakote (divalproex) and Ativan (lorazepam) for use in emergency (they did help), but there's been no need to use them since starting the preventive antibiotic.
Those were pretty much the meds my dad had at the end of Parkinson's. For the last 2.5 months he was mostly in-patient hospice. Good luck with this and do not hesitate to ask for help. It will bring you such peace.
You should ask a neurologist or GP to make sure there is something else going on. My husband with Parkinson’s was in advanced stage now he is not, he got better with change of meds. Parkinson is unpredictable, but nobody dies from it. So not sure how they determine that?
My dad has PD with Parkinson's Dementia. He is on Sinement of course, and has taken Trazadone in the past for sleep. Seroquel can affect people differently - for some it helps with the delusions/hallucinations, for others it makes them worse. My uncle had a terrible experience with Seroquel, almost killed him, it made him much worse, he had dementia. My father is 90 and recently had to be placed in a NH due to end-stage Parkinson's, CHF, incontincence, T2 diabetes, and a very bad fall that left him unable to walk or transfer by himself. His dementia has worsened and the dr suggested Seroquel and I told her my reservations - she suggested some other meds like Seroquel and we are considering those. You may want to discuss with your mom's dr about the Seroquel - removing that may help if it seems to be worsening her symptoms, but for some it does help. There is another med that's specifically for PD dementia, but I don't know much about it. We are at the beginning of the journey with these types of meds as my dad did great for 11 years with PD on his own and only on the Siniment until this fall and the beginning of some dementia. Definitely talk to the neuro about other alternatives.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
If mom is in last stages Hospice can help you navigate End Of Life. They can try as best they can to make sure that she is comfortable and pain free.
You will have the supplies you need and the support of a great team of dedicated people.
If you are asking if there are any drugs or methods that will extend her life I am sure her doctors have done what they can and medication can only do so much.
Let Hospice help her and you now.
https://lewybodyresourcecenter.org/what-is-lbd/treatment-important-information/medications/
My husband with Parkinson’s was in advanced stage now he is not, he got better with change of meds.
Parkinson is unpredictable, but nobody dies from it. So not sure how they determine that?