It’s me again! My mother complains about not being able to make it to her toilet (bedside commode) and wets through her pad (Poise 6). I end up changing her clothes all day and night long. She says diapers and pads don’t hold more than one time she urinates. I change her immediately at her request.
She has mentioned this to her doctor and the doc has offered to write a script for meds. She has refused getting script.
She is in process of home health at this time due to falls. I mentioned this to her nurse and the nurse told her to go on meds for it. Now she says she may try them. Do these meds help?
This was suggested as a last option by her urologist. I'm not sure why it wasn't the first, at her age. She is now 96 and has had it in place for about 5 years. While it has its own set of special care requirements, in her case it has worked out for the best.
It may sound scary to have a full-time catheter, but it really has been a god-send in so many ways.
I am sorry I keep posting. One more thing comes to mind that may be a factor. I had forgotten about this. If any of your mom’s medications lists possible side effect of water retention, and this one happened to me, she may be retaining fluid during the day as a result. Once I would go to bed, with gravity no longer helping the fluid to pool in my legs, my kidneys could more easily deal with the extra fluid, causing a lot of urine production and bathroom need at night. The medication I was taking at the time, Amlodipine, is a blood pressure medicine. I have lost a bit of weight, and was able to eliminate the Amlodipine from my meds arsenal, and a lot of the major water retention and nighttime kidney catchup no longer plagues me. So, please check her medicines.
My mom actually doesn’t take a lot of meds, Parkinson’s meds, seizure meds, vitamins, that’s about all. Good idea to check that though. I’ll look into it but she can’t go off of her Parkinson’s meds. She hasn’t had a seizure since 1996 but she is scared to go off those meds, even though her doctor told her that she could try getting off of them.
Regarding UTIs: "Has to be terribly uncomfortable for those who get them.
Not necessarily - MANY years ago I got a call after my physical telling me they called in an Rx for UTI... I had absolutely NO symptoms!
As for those with dementia, UTIs often are not found because of "normal" symptoms, but bad sun-downing episodes! This was the case for our mother. We have Lorazepam on hand to keep her calm, but still have to get urine tested and if UTI, treated.
Mom was DXed years ago by a urologist, long before the dementia, with interstitial cystitis and given a list of things to eat/drink or not to eat/drink (and some medications, perhaps some OTC, I don't recall now as I was not involved in her care at that time.) She was also told she was not emptying her bladder and was to use some kind of catheter to "empty" herself. (note - kidneys don't produce urine on demand - if you sit on the commode for a minute or so after going, there is more urine produced!) She would still get UTIs. Eventually the "diet" and emptying via catheter went by the wayside. She has NOT had many UTIs since! She is on BP meds and most recently a "water pill", which increases her need to go... rock and hard place, treat one issue, make another! I am mostly in the 'less medications is better' camp, but some are a necessary evil. In your mom's case, sounds like many suggested meds would result in other issues, so most likely are better avoided. I also have read that some medications are counter-indicated with Parkinson's.
Definitely use adult "pull-ups" vs pads. Pads won't stop full urine flow, only catch the dribbles that might happen before getting to the toilet, so yes, she would soak everything! They come in various "strengths", so if hers is bad, go with the most absorbent. Our mother was not a fan of pads or pull-ups. She still knows the urge to go and makes the attempt, but sometimes cannot get there or undressed fast enough. After multiple monthly extra cleaning fees for her room carpet, we cold-turkeyed her (removed all underwear and replaced with pull-ups - so far no complaint.)
"Are there exercises that she could learn to strengthen those muscles?" Yes, kegels and core exercise can help, but with age and ability these might not help if she cannot do them. For others, these might help (kegels only work on the uro-genital muscles, core exercise strengthens all abdominal muscles, which can help even more.)
You would want to limit any caffeinated beverages (and foods, if there are any) as these will increase the need to urinate (my mornings while drinking my watered down coffee are spent with many trips to the bathroom!) Water is best, but don't overdo it!
Beware medications, as others have noted there are many side effects, and yes, your pharmacist is more knowledgeable about these than most doctors. Botox - beware this as well. They tried this in my esophagus, and I ended up with hives!! One time, that was it for me! Even before trying it, I was leery of this - from medlineplus: "Botox is a drug made from a toxin produced by the bacterium Clostridium botulinum. It's the same toxin that causes a life-threatening type of food poisoning..." I gave it one try, never again!
So, if you can find an appropriate urologist for exam/testing/possible treatment, and/or switch to adult pull-ups, combined with regular trips to the bathroom, you might get some relief.
Yes, that is my mother’s problem too. Even if she can get to the bedside commode in time, she can’t get undressed quickly enough. It’s tough for a 93 year old to move fast!
Of course her Parkinson’s magnifies the problem as well. As my mother says at times, “It’s hell to get old!”
You gave great info, especially echoing what many others have said about meds, definitely can be a tricky situation to correct. It’s all a balancing act!
VESIcare.com.
Or WebMD.com
Yes, there were at least 10 side effects. I tried to copy & paste, but it failed.
Parkinson’s is already a neurological problem so why add to that. She is blessed not to have any form of dimentia but I am aware that some Parkinson’s patients do have dimentia. After reading these posts I don’t think I am comfortable filling a script for the incontinence meds.
So many good ideas here. Sure is getting expensive to get old in the US, what with diabetes supplies times two people, home oxygen, the dang meds for liver malfunction and IBS-D....
This is not for your mom, but for others as a preventative, this exercise has helped me with urgency. I do bridge hip lifts and contract my abdomen and the pelvic muscles that are used to stop urine flow. It has helped me a lot. Similar to doing kegel exercises.
I wrote this question to help find solutions for my mom. She is miserable. I hope you, my mom and all others find a way to deal with this inconvenience.
My mom is a bit nervous about taking new meds too, which is completely understandable because of side effects. She has a primary care doctor appointment this month and will bring up the topic again.
Needhelpwithmom; You also mentioned that you have had some difficulty completely emptying your bladder. I have had experience working for a Urologist and there is an in office procedure- Urethral Dilatation(dialation). A little anesthetic gel is applied to "metal sounds" of different sizes to gently stretch the urethra to allow more urine to flow, emptying the bladder completely. As we age, the urethra can narrow in a section or a "stricture" can form & the urethral sounds help with gently widening it.
Thanks. Looks like a trip to urologist is a good thing to do. Appreciate the info on product. I haven’t seen that but going to look for it and read reviews.
You can Google that and get some ideas. There are garlic capsules, too, in case your Mom isn't a fan of garlic.
Two other urinary issues that can be resolved naturally :
Incontinence, the inability to retain urine, is caused by a deficiency of magnesium, which also treats leg cramps.
An inability to pass urine is the result of low potassium, Vitamin B2 and pantothenic acid, which is Vitamin B5. Amounts of B2 and B6 should always be the same, so if you give one, give the other in equal amount. All of this is from Adelle Davis, "Let's Get Well". Worth it's weight in gold!
Medications are usually for people that can not completely void the bladder. Or for other reasons have a weak urine stream.
She should be getting up every 2 hours to go to the bathroom even if she says she does not have to go. If you have to set a timer to remind you and her to get up and at least try going to the bathroom, and for you to check to see if she is dry. If she is wet then it is easier to change just the pad rather than all the clothes. Is it possible that she may need more than a pad to contain the urine?
I see. Are there exercises that she could learn to strengthen those muscles?
I keep hearing about UTI’s in the elderly on this site. How common is it? Has to be terribly uncomfortable for those who get them. Are they easy to detect and cure? Whew! I have a bunch of questions and hoping that you can explain it to me since you have experience with it.
It sure is expensive to age, isn’t it? So sad.
I hope your dad and my mom finds relief somehow.
Unfortunately, I also need Requip for restless leg, and the two meds interact to cause some dementia, which can become permanent. I decided on diapers rather than dementia. If she doesn't take a med like requip, go for the incontinence med. Yes, they work.
Sounds like a lot of people prefer diapers to pads. I buy the highest number pads but they aren’t doing the trick anymore. I will buy diapers next time I go to store or order online. Expensive to age, huh? Buying all these extras. I wish she didn’t have this to deal with.
These drugs block acetylcholines which are important in the brain for memory and learning . However if she has Parkinson’s this may be the least of your worries now but it could speed up decline. They do make pull-ups that are ultra absorptive. Definitely find a urologist who will do more than write a Rx. Making sure she doesn’t have something else wrong. They can even use Botox injections now for urinary incontinence. And yes ...a pharmacist knows more about medications than any physician. So frustrating for you and her.
I like the idea of a urologist. How could I have not thought of that? I will see if my mom would like her doctor to recommend a urologist for her to see.
There are genitourinary specialists who are very good at getting to the source of the problem. Has infection been ruled out?
She prescribed Oxybutynin ER (I think the brand name is Detrol)-- 1 tablet a day and it has helped so much - I still wear the pull ups, but without the pads and very little leaking. Talk to her doctor and try something like that for a month to see if it helps.
She has tried decreasing her fluids, especially before bedtime but does not seem to make much of a difference.
One thing that I have noticed as well is that she doesn’t seem to be emptying her bladder completely. She will go and then go again immediately afterward. Is that a natural part of aging? I’m 63 and that happens to me sometimes and I think to myself, geeeez! I just went to the bathroom and have to go right back. It’s annoying to say the least.
Trying to think if what will help her and also give me relief from changing her undies and pants, sometimes even her compression stockings or socks too!
Pharmacist is a good idea. Will see what her doc has to say, also speak to pharmacy.