Wow! Just reading this site is helpful in seeing that elderly probems with an aging parent is SO common! I have few friends who are going through this... but there are so many people who are. I feel badly for you ALL. It certainly is not something we planned for. My sister & I have both been to counseling to try to learn how to deal with our hypochondriac 87-yr old-mother. The main advice was to limit visits. Unfortunately mom emails us many times a day with complaints... she hates living in a seniors residence & has accused us of "putting her away" when in fact she agreed to move there. She was falling constantly at home & needed proper meals, an apartment with no stairs & a nurse on site to deal with her constant hypochondria complaints. Moving her hasn't helped. She reminds us daily how much she hates it there. The nurse is in to see her constantly & she takes her temperature 10 times a day... and reports the readings to us along with bowel movements, pain, loneliness, depression etc. The complaints never end. I try to only read & respond to her emails once a day. I visit once a week unless my sister is away. I am sure she has a dementia going on but her doctor is treating depression as he feels her memory loss & poor judgement are related to depression. She has been depressed since I was a child! Her behavior is indicating that more is going on. Because she has difficulty walking any distance even with a walker, we recently had an OT & PT visit. She is getting an electric wheelchair (we have rented one until she gets her own) to decrease her isolation... she sits in her apartment all day in the Seniors Residence. Her emails are "desperate". She refuses to go to any activities. We try to take her & she wants to return to her room within 15 minutes. She does NOTHING to help herself. We feel badly she is unhappy. But at what point do we somehow refuse to let her control & ruin our own lives? It's hard to stop this rollercoaster! She has no friends as the only thing she talks about is complaints... no one there wants to hear it! These elderly people are all trying to cope with life as an elderly person who no longer can manage in their own homes! Every time my sister or I take a vacation, something happens to her & she is in "unbearable pain" and "needs us". We're worn out & exhausted with her complaints. She was a terrible mother when we were young but she is still our mother. All of you seem to have very similar issues. She's medically well... arthritis is her only major issue. I am sure she has a dementia starting but there is no help... mother would refuse to go for testing in any case. And she can refuse as she is not diagnosed. We're in a real dilemma here. Suggestions? Thanks!
I love 97yroldmom's suggestion to print out all emails and compile data on what kind of complaints your mother has. And then give them to the doctor.
I had to learn to set boundaries and this was very difficult, as I knew she was lonely and bored as well as having some health issues, but it was partly her illness and partly the stubborn choices she was making. I couldn't "force" her to make positive changes or change her outlook. So I made a choice for what I would and wouldn't do for her at the time and stuck to it. I visited, I tried to help, but I would not be "on call" like she wanted.
Fast forward and her dementia has gotten worse but things have changed. After a series of falls, hospitalizations, and other crazy incidents, I stepped forward and became her legal guardian. (Years ago she had things set up for a springing POA but now when it was needed, she wouldn't let us even see any of her legal documents and even hid some of them. What's the point of setting up legal docs if you don't let your family access them?!)
Now I actually can supposedly "force" certain changes - but that doesn't make it easy!!! It is very very hard. So I guess what I am saying is, decide in advance what you will and won't do - how much of yourself you will invest. And then stick to it.
Is her psychiatrist treating her for it? I know of one person who was treated successfully and one who is not doing too well. It does help to read about these type of conditions, though. It makes it easier to understand where the patient is coming from. It's still frustrating, but, it helps some. The depression that your mom's doctor described can cause them to really believe they are ill. Their brain makes them think they are sick, hurt or in pain.
I see that your mom does have arthritis, but, does it prevent her from using her feet to propel herself around in the wheelchair? I'd suggest that, with doctor's consent, before going with the electric wheelchair. I know that my LO, who is in Memory Care, first went into AL, I wondered why all the footrests were removed from the wheelchairs. I learned that they do that mainly, because it's important for the resident to keep their muscles moving as much as possible. If they don't move them, they get stiff and immobile. They told me, that if they don't use it, they will lose it.
As I'm sure you've figured out the old expression "the only person you can change is yourself" is very true.
Your mother is your mother. Moving to senior housing won't make her personality change.
So could it be that you need to remind yourself daily that mom is safe, that she is getting medical attention, that she has options to isolating? No more stairs. Nurse on site. I would say things have changed in that she is safer.
What you could do is not tell mom you are going on vacation. Why tell her if it causes her anxiety? I assume you and sister don't go on vacation together?
When you take her to an activity you don't have to leave in 15 min. Tell her ahead of time you are staying 30 min. Or whatever is appropriate for the event. If she has dementia you can adjust your behavior as appropriate. If she doesn't she needs to learn what you want is just as important as what she wants.
Also don't read her emails everyday if once a day is too stressful. She's using them to vent but they make you feel bad. Quit doing things that make you feel bad. The staff will alert you if anything is wrong, right?
If you feel you must read them, do something useful with them. Here is an example.
Print them out. Put them in a 3 ring binder. Highlight in red all
" emergencies " in blue all the "emotional blackmail" etc.
Make a summary page for every week or month.
144 requests to move. 326 Complaints about sister. 222 stomach aches. Etc.
You will now have a pattern to show her dr. You will be looking at the data and not dwelling on your emotional response.
I would set aside an hour to look at her emails once a week, not daily.
Each day, if you like, you can send her one. Not as a response to what she's written. Send her a review on a resturant you'd like to take her to. A funny video you saw online. A tidbit one of the grandkids said. Something funny or sweet. Make your email not about her complaints but about fun uplifting things.
A geriatric psychiatrist would be a good choice of a new dr to take her to.
Just take her. No discussion. Lie if you need to. What is she going to do? Not speak to you again?
You need a second opinion. She may not want one but you need it to manage her care.
About the OT and PT visit. Did they not think she needed therapy or did she have therapy recently? Or did she send them away?
If she can afford it, hire an aid to visit her everyday. To take her to the events or to just watch tv with her. Someone she can visit with. Talk about her daughters to. As she becomes more comfortable with the aid she might be willing to venture out more.
I hope you are able to make positive change for yourself regardless of moms reaction. Sometimes all we can do is just see that they have ADL help and accept that it is their life, their choices and try to use it as a lesson on how we conduct our own lives.
It is common for those in senior living to grumble about wanting to move back home. They are hoping if they grumble enough you will cave in. When you go on vacation, don't tell Mom otherwise it sounds like she has separation anxiety.
What I use to do with my Dad when he was in senior living was ask him what improvements would he like to see living there. Most of the time Dad no complaints and every now and then a minor one that he said was no big deal. Dad really appreciated that I had asked :)
Once my Dad asked about moving back to his house. I asked him did he really want to go back to the house to worry about lawn service, snow shoveling, paying property taxes? And bringing in caregivers 24 hours a day, 7 days a week at $20k per month? As soon as he heard the dollar figures, that changed his mind. His senior apartment looked so much better !!
Now she DOES have dementia. Not bad--but she can't remember names and places and she has no sense of time passing---BUT she's really sweet now. I feel so bad that 90% of my memories of her are negative. I'm trying to enjoy the "demented" mother I now have.
We could never make her happy. Nobody could. Only one person can make you happy and that's yourself.
I wouldn't beat myself up over your mom's misery. Seems like she's chosen this path, and she's getting what she paid for.
I also wouldn't increase my visits, nor my calls. I'd actually call screen her, if I were you. Learn to let go of the guilt, if needs be. She is right where she chose to be. Lonely, alone and depressed. So sad. It could all be different, if she chose to make it so.
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