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I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
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My sister is having trouble accepting that our big, strong daddy is no longer our big, strong daddy. She has a lot of anger inside, and has no patience when dealing with him. I am hoping there is a helpful book she (we) can read.
The very first book I read after my late husband was diagnosed with vascular dementia was The 36 Hour Day by Nancy L Mace and Peter V. Rabins. That is a great place to start. Teepa Snow(a dementia expert)also has many great books and videos on YouTube that are very helpful as well. Education is key with this horrible disease of dementia, so good for you to want to educate your family members about it as that will help everyone as they take this journey with your dad.
Teepa Snow Is doing a ZOOM Class thru the Alzheimers association in Brewster , Ma. anyone can sign up for free . I forget the date - I did it Last year and it was a good class . She should Join that Class . She should get educated - there are support groups On FaceBook . This Forum is remarkably helpful . No One can automatically wrap their head around the fact that the person they Love their brain Is dying .
There is a great general book on Aging by Atul Gwande. It's called On Being Mortal-- What matters in the end.
Dr. Gwande brings your vision up from "in the weeds", where many of us start during a crisis like a sudden dementia diagnosis-- to looking at the big picture of what really matters.
I suggest you read this 33 page booklet to learn all about dementia. Lots of Do's and Don't tips for dealing with dementia sufferers are suggested in the booklet.
Understanding the Dementia Experience, by Jennifer Ghent-Fuller
https://www.smashwords.com/books/view/210580
Jennifer is a nurse who worked for many years as an educator and counsellor for people with dementia and their families, as well as others in caring roles. She addresses the emotional and grief issues in the contexts in which they arise for families living with dementia.
The reviews for her books are phenomenal b/c they are written in plain English & very easy to read/understand. Her writings have been VERY helpful for me.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
Education is key with this horrible disease of dementia, so good for you to want to educate your family members about it as that will help everyone as they take this journey with your dad.
Stick around because many posters have recommended books that will be helpful. Hopefully, they will see your question and tell you the titles.
I will suggest that you also look at listening to podcasts on caregiving. There are tons of great podcasts on this topic.
Do a search. I believe I even saw a list of podcasts related to caregiving listed somewhere on the AgingCare website.
You could also do a YouTube search on caregiving.
Wishing you and your family all the best.
Dr. Gwande brings your vision up from "in the weeds", where many of us start during a crisis like a sudden dementia diagnosis-- to looking at the big picture of what really matters.
Understanding the Dementia Experience, by Jennifer Ghent-Fuller
https://www.smashwords.com/books/view/210580
Jennifer is a nurse who worked for many years as an educator and counsellor for people with dementia and their families, as well as others in caring roles. She addresses the emotional and grief issues in the contexts in which they arise for families living with dementia.
The reviews for her books are phenomenal b/c they are written in plain English & very easy to read/understand. Her writings have been VERY helpful for me.
The full copy of her book is available here:
https://www.amazon.com/Thoughtful-Dementia-Care-Understanding-Experience/dp/B09WN439CC/ref=sr_1_2?crid=2E7WWE9X5UFXR&keywords=jennifer+ghent+fuller+books&qid=1657468364&sprefix=jennifer+ghent%2Caps%2C631&sr=8-2
Best of luck.
https://www.youtube.com/playlist?list=PLVl8vTLjje8ESAEvpjVoVTEK-_6X2jTdl
https://www.betterhelp.com