My mom is in a wonderful board and care with a wonderful caregiver ,but when I go she graps on to me cries and says I am leaving her there to die. She is 90 with dementia. I have taken care of my parents for over twenty years. They moved in with me when they started to have health problems. My aunt moved in to help, but she got cancer (which was another stress for me). I am so tired and not feeling well anymore myself. I am 71. My aunt died, my dad died (which so terrible to watch on a daily basis). I finally had to put my mom in a board and care with hospice. She is very angry and tries to make me feel guilty when I go there. I feel so stressed that I am having migraines. I went today to the gastroenterologist because my stomach is hurting so much. I don't want to stop seeing her, but I don't know what else to do. Anyone have any advice? Thank you.
Your mom suffers from dementia, so she isn't cognizant of the grief she is causing you, and GRIEF is the right g-word for what you are feeling. Guilt infers that you are responsible for this, that you caused it and can fix it. Neither of those things are true, so use the right word, because words we tell ourselves matter, and this is worth grieving.
When your mom is sad and stressed I would keep my visits short. Tell her that you love her and will return when she is feeling better. She likely is no longer rational enough to explain all the reasons that this has to be the way of things. And if your visits ALWAYS trigger more unhappiness, I would make fewer visits for mom's own good.
If you need help I would suggest a few counseling sessions with a Licensed Social Worker in private counseling practice. You aren't needing Freudian therapy about your early toilet training; you are needing clues about how to handle life transitions that you cannot make better.
This may help you step out of habitual ways of blaming yourself, and into acceptance that this is hard, cannot be fixed, and must be endured; hopefully with as little damage as possible.
I am so sorry. I hope for peace for you both.
Wishing you peace as you continue on in this difficult journey of caregiving.
My suggestion would be to say yes, that’s right. What other options do you think there are? She is just as 'guilty' as you are, if she can't come up with workable alternatives. It might just stop the repeat repeat repeat that’s killing YOU. It won’t make the slightest difference to HER prospects.
She has dementia. Perhaps redirection would work. Bring up something else is conversation.
I agree with leaving when she starts guilting you. It doesn't help her and it is destructive to you.
I know this is tough. Please put you and your health as a priority now. About 40% of caregivers die before those they care for. The stress is great.
Three years ago your profile says you were burnt out. Your health is not going to get better unless you make some drastic changes.
If looking after yourself means taking a break from visiting your mother till your health improves that's OK. You matter too. I think stopping seeing her at least temporarily is in your best interests.
40% to 50% of caregivers do die before the people they are caregivers too.
The OP is not a caregiver though. Her mother is in a home and the problem is she can't stand the negativity, misery, and guilt-tripping from mom every time she goes.
The solution to that problem is pretty easy.
Stop visiting. Or when she starts get up and leave.
If her effect on you is so stressful toxic that you get migraines, and stomach issues then I'd say it's time to stop visiting for your own health. Try phone calls for a couple of weeks. Its easier to hang up then it is to get up and leave when the toxic bullcrap starts up.
Your situation really isn't hard to remedy.
I would factor that fact into any decisions you make about stopping or curtailing visits. If you still feel you cannot visit everyday, then you should not. Your physical and mental health comes first.
Good luck to you.
How did I deal with it?
* I enlisted volunteers to visit.
* I took a respite 'day' when he had visitors
* I was as present as anyone could possibly be when I was there - to appreciate each moment, never knowing when the last one would be.
* The cruel reality is that we, individually, do what we can - to support another while concurrently supporting our self (self-care: exercise, diet, sleep, support).
Gena / Touch Matters
My mom is in an ALF and last night when I visited I got a similar display and a pleading to come live with me. This has the opposite effect on me. Rather than want to take her back, I want to run away bc it shows no consideration for me and an expectation that my sole purpose in life is to care for her. It actually helps me have some boundaries. I visit. I bring her to my house. She is napping right now at my house with the dog beside her. But I will take her back to the ALF and she will never live with me again bc it was way too much for me.
You count, too. Your mom’s outbursts may even subside if she sees she’s not getting the desired response. But also, all this may be beyond her mentally. If she was a loving mother, and I am guessing she was to have such a caring daughter, then she would want you to be healthy and happy. Attribute these displays to her dementia and love her without accepting her stress as yours.
Wishing you peace on this journey.
Your mother isn't doing anything to you - to feel any specific way: You are.
When you take responsibility for how you feel, you can make decisions in your best health interest/need.
Yes, there are TRIGGERS, emotional and psychological, when dealing with a loved one / parent, however for your own quality of life / health, you need to make decisions to support your self. She HAS dementia.
You need to realize that her brain has changed and she expresses herself out of fear, anger and confusion. She is trying to do everything she can to keep you in her world - and wouldn't we all do that? It is the changing brain chemistry and a survival mechanism.
This means you MUST (learn how to) set boundaries / limits on visiting - the time you spend with her.
In some respects, from experience, there is 'no' middle ground her --- (we) you are torn if you don't visit and feel guilt or hear that little voice "You should visit your mother" if you do not visit. And then what do you do?
* You shift your immediate environment (feelings in it) to:
- Go to a garden or a park (for 5 minutes or a couple of hours) - experience natural beauty to get out of your head and shift out of the feelings of being 'torn'
- You go to a gym or take a walk / hike - get the energy out / shift it.
- You acknowledge that you can do so much and that you DESERVE and need a life - a quality life - and do what you need to do to achieve that 'as best you can.'
- Understand dementia. Your mother will 'always' respond to you like she is. She won't change, you need to.
- She likely doesn't remember when you visit so tell her "I'll come back tomorrow' ... or 'it was good to see you yesterday.'
* She is in the moment, not thinking of yesterday, a minute from now, tomorrow.
Important: Expect and allow the guilt or whatever feelings you have that exhausts you by visiting / seeing her as (often as) you do ... to be with those feelings. Don't push them away. Acknowledge them: Yes, I feel xxx and Yes, I need to re-group, re-new, re-energize myself. And, Yes: I feel very sad. Go toward the feelings, not run away from them (that is how they get stuck.)
In my experience, you need to do what doesn't FEEL RIGHT in the moment, which is taking care of yourself. Even meditating for 5 minutes or an hour break. Learn what works for you to lessen the stressors/guilt. We can shift out of these feelings when we learn to value our self and do what we need to do. This doesn't mean it is easy or feels 'fine.' It doesn't. We are emotionally pulled.
Still, the bottom line is that she isn't 'doing anything to do,' you are. You are the only person who can change (your behavior). Do little changes ... 5 minutes of deep breathing ... buying yourself a bouquet of flowers and just absorb their beauty, call a friend, take a nap. And, lastly, pray for strength to do what you need to do, remembering it is a moment-to-moment decision.
- DO acknowledge yourself OFTEN of what you have done, how you have extended yourself, and when you do visit, SMILE and hold her hand ... no matter how much she screams and reacts to you. It is her confusion and fears 'talking to you.' Feel / see her through compassionate eyes for how she experiences her life - knowing you are her lifeline.
- Smile, use a calm voice, tell her how much you love spending time with her.
- Then when you need to, leave (if just for a break to 'shift' emotionally or DO leave for the day).
- Have a plan to do something nice for yourself, even if going to a gym or exercising somehow, or get a massage.
- When you start to feel stress being with her, leave. You may resist as this is new behavior. Do it anyway. You need self-pampering / self care.
Gena / Touch Matters
Have you actually worked in any kind of care facility as a caregiver? A hands-on employee? Not sitting in an office and smiling at resident families when they come in to sign paperwork or something. Really been on "the floor" as those of us say. I have and for many years so I'm going to lay a truth on you here.
I have seen scores of elderly people both with and without dementia who have wonderful lives in their care facility. They go to all the activities, they laugh and joke with the aides. They form friendships and even little 'cliques' with certain groups.
The second one of their adult kids shows up, it all changes. The guilt-tripping, the gloom and doom, the misery, etc... they turn it on and off like a light switch.
So really, the whole 'seeing her through her eyes' and 'trying to keep her in her world'... Let's put that away for a second.
The OP should ask the caregivers what her mom is like when she isn't there. This is really the only way to get an accurate picture of the situation.
If it turns out that mom isn't crying all day long and absolutely miserable, it will be a whole lot easier for the OP to walk away and not beat herself up with guilt.
Try to get her out of there and find a place where she will be safe and happy!
" consequences " with behavior.
You deserve a life with some quality also. Perhaps visiting her less frequently ( that is not every day) perhaps once during week and once on weekends for example) for shorter visits may help...
Set your personal boundaries for your health purposes. Believe it or not it will help you to have quality visits.
I have no idea how much it costs for her to be in private board, but would it be enough to pay for a good quantity of hours and allow her to live where you are again? It might be better than making yourself sick with guilt and anxiety. Just a thought.
You don't mention what meds she is on, but the doctor can give her anti-depressants and anti-anxiety meds if needed.
No no matter what it’ll never be right.
But when others visited, everything was peachy keen.
Now she doesn’t remember who I am and I’ve asked the staff not to say “Your daughter is here!” because it has started too many arguments. She thinks I’m just some nice old lady who pops by weekly. (she often thinks she’s in her 20s) So I am no longer subjected to the complaints.
DO NOT allow this so called guilt to sicken you, don’t be so hard on yourself speak peace (repeat the first paragraph)❤️ truth be told, if you become ill you may not get to visit ( you deserve to live in “perfect peace” and happiness and at 71 you deserve it!). I’m sure you did “all” the good that you could, remind yourself of that when that feeling of quilt grabs you.. and reject it, stomp on it, give it a 1-2 punch. Do not allow your mind to make you become your own worse enemy… Don’t do it!!! Lift your own spirit, trust God, trust the Universe!!❤️
Most of us have more years behind us than in front of us…. Make a plan to live the years in front of us in peace and with a clear conscious! God may grant us a few extra 😊
Stay encouraged❤️