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So as it stands I spoke with my Husband and we are trying to work through our situation and he is open to the idea of placement but only if it does not have the look and feel of a hospital yet has protections in place to prevent wandering has an abundance of activities both indoor and out. I have been having a hard time finding such a place that does not exceed 20k a month.
What type of placement is ideal for someone that has dementia and needs to be kept safe from wandering and needs a lot of prompting yet is still active and capable. Preferably looking for a place that does not feel like a hospital.
I am trying to come up with viable options of placement that offer what his mother needs in terms of both safety and engagement. While also trying to limit the confusion. She will not understand why she is in a hospital setting because outside her dementia she is perfectly healthy. Also trying to find a place that feels comfortable for visitors. Since what I have noticed many of her friends don't like to go to nursing homes. That was one of their concerns when I spoke with them.
I get they are not fun places to visit. I am putting in the work to try and save our marriage cause I do love my husband. Just don't understand how normal people avoid some of these places for the long term.

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She isn’t perfectly healthy aside from her dementia. You can’t say that about someone whose brain is dying.
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Reply to Bulldog54321
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Fawnby Dec 18, 2024
So true! Many people who come to this site insist their LO who has dementia is "healthy." I guess they mean that the person can still get around well enough, or is able to enjoy their old activities somewhat, or whatever it takes to soften the truth. People need to plan for the future as they look for memory care for their LOs. Move them to a place that has features they'll need in a year or two rather than what they need right now. Decline will happen, and moving them again a year from now should be avoided because a change in living situation can bring on a setback.
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There are group homes, small maybe 4 or 5 people, limited activities but provide a homey feel.

Keep in mind with dementia, eventually she won't recognize her friends. It is not about what your husband wants, it is about what your MIL's needs are.

Here in Florida there are many facilities that look like a hotel, beautiful inside with many activities, my mother is in one, AL, my stepmother was in the same one in MC, very nice surroundings. My stepmother was paying $6,000 a month in MC.

Good Luck in finding what your husband wants, I am sure it is out there somewhere.
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Reply to MeDolly
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There are smaller Group homes. You can check to see if there are any in your area.
But take a tour of some of the Memory Care facilities. Many of the new ones are not "hospital like" and more home like, warmer and inviting.
Even the large ones will have "wings" so that residents in one area are in that 1 wing and it is decorated and assigned a "theme" another wing will have another theme.
Now if you mean "hospital like" because of tile floors, no carpet, wide halls, safety railings along the wall, wide doorways, hospital beds, fire alarms, nurses stations, staff wearing uniforms and name badges, nurses, CNA's, wheelchairs, walkers that is going to happen in a facility setting. They are there for the safety of the resident as well as making it safe and easier for staff to care for the resident.
She will get used to a setting. It may take a little while and she may decline a bit but almost any change can cause a decline.
AND...because she is entering a whole new "germ pool" expect her to get sick in the first month or so. Just like almost every kid gets sick the first few week when school starts again. The same with anyone entering a facility setting.
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Reply to Grandma1954
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Look into faith-based facilities. They are non-profit and see the care as a mission so have a different approach to it. My MIL is in one of many Presbyterian Homes in the upper midwest. Well-run, lots of activities, special events, great care. It may still not look like home but my MIL (in LTC on Medicaid) gets top-notch care and the staff and admins treat her like gold.

To get recommendations, join Nextdoor.com and post "ISO recommendations for elder care facilities" and you will quickly get lots of helpful and honest input from actual neighbors in your local community (and non-anonymous).

I wish you all the best as you both search.
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Reply to Geaton777
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No matter where she goes for memory care, some residents will be in wheelchairs, some will need a hospital bed, some will be incontinent and need to be taken to their rooms or the bathroom by aides at regular times. Even a homelike care situation will not be exactly like her home.

You’re all going to have to suck it up and admit what is, not what you wish it is. She needs 24/7 care, and there’s only so much you can hope to camouflage.
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Reply to Fawnby
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We had a different set of circumstances, but I’d say it’ll likely still apply to your MIL. No matter how homey and comfortable the setting, go into it expecting her friends to mostly ditch her. It’s interesting psychology that people don’t like to visit those in care as they subconsciously see themselves in such a setting and fear it may “rub off” on them. Having a friend or family member in care becomes a convenient excuse for backing out of their lives. My mother’s lifelong friends disappeared quickly, telling me “it’s upsetting to see her there” “I think my visits upset her” etc. Prepare yourself for this sad reality. As for places to move, nothing beats visiting, getting a feel for the place, and talking with the families of residents
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Reply to Daughterof1930
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A lot of newer facilities (including both skilled nursing homes and MC) are being built with a self-contanied "household" model, where there are small unit "communities" within a larger facility (maybe 20 or so residents). There will be a communal living room and dining room, kitchen, etc. , decorated and set up as in a home and not institution. The layout of the "household" has rooms and corridors arranged so people can freely walk all around--not long corridors as in an institution. There is usually an enclosed outdoor space for each "household." Residents who wander or who are an escape risk are grouped into households where the main entrance is locked, while other households are open.

Whereabouts do you live? Try googling "household model memory care" for your location and see what there might be. I'm in Maine, which is pretty rural, and I think almost all the new facilities built recently are set up this way. My brother in law has Parkinson's and is in a lovely new Vets home like this, and a nursing home down our drive just opened has this set up. I think even some older places are trying to retrofit their existing spaces to try to approximate this model.
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Reply to newbiewife
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No matter which way you look at it the type of place you search for will never be home to you MIL. Keep in mind there are different levels of care. If you choose a place that is assisted living, that is not 24/7 care. That means they are getting a certain amount of hours care per week. Anything else is over and above. You will be charged accordingly . I work at a not for profit assisted living facility. Also, assisted living means there is supposed to be an expectation that the resident has a certain level of independence and we are there to “assist” with cares. However, these types of care facilities are starting to become the new nursing home model. Families become disillusioned by the care promised vs care delivered. Increasingly these residents being admitted are requiring higher levels of care with unrealistic expectations for caregivers to carry out in a care plan. This results in over worked caregivers who can barely provide services. With complicated care plans that belong in the nursing home arena. So promises are made to families, then broken once their loved one is moved in. So if your loved one requires a higher level of care, assisted living might sound more attractive and less intrusive but realistically, the nursing home is a better model for those who require more care. It is a disservice to a loved one to send them to a place where the services don’t meet the needs. My opinion is not of any one place but rather a particular model of care. I ask you to carefully look into the definition of the types of care available for your loved one and make sure it matches up with what they need. Otherwise you won’t be happy. Your loved one won’t get the benefit they need.
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Reply to Dementia153
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Thanks, I will look into all the suggestions and see what I can find a schedule tours for the new year.
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Reply to Caregivingsucks
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I can only suggest that you try some of the companies such as A Place for Mom (letting you know they OWN and manage this site, but I have not used them personally). You must understand you are letting them know your assets and what you can afford up front and they USED to take you around to facilities. From what I hear it is more now that they have facilities contact YOU.

Other than this there is the old fashioned process of going to the facilities by appointment. They will be happy to show you some rooms and etc online, but you must go to understand look, meals, activities. And this research is on your OWN, which is how my brother and I did it when he was diagnosed with Early Lewy's Dementia.

What we found FIVE YEARS AGO (say that because I am certain prices are now more) was the very beautiful Palm Springs, CA facility of Pacifica Senior Living (they have a Facebook presence if you want to look) where they had beautiful large grounds full of Roses and Jacaranda trees, a Gazebo, a main clubhouse where offices, kitchens, large communal room, happy hours, etc were, then outlying cottages that decidedly DID NOT look like Hospitals. His ALF unit had two good size rooms, good window views, and were in the corner of a cottage with room for 14 different units arranged in a circle round on one end a communal TV room with fireplace and on the other end the dining room/game room area. Office in the middle of the middle and a bath room with walk in tube if you wanted a soak instead of shower.

The activities were many. Going to movies, tour of the stars homes, etc. As well as animal visits and bingo and games and happy hour and donuts in a.m. and art and jewelry and exercise. Too many really. ONE of the cottages was larger and was locked memory care. I don't know its cost, but my bro paid just under 5,000 for his two rooms on level I care (basically self caring).

So that's a snap shot. The people were WITHOUT exception wonderful and it was a MISSION for them, not just caregiving. They were in process of making once cottage intermediate care with more staff and care and locked unit but not the needs or the cost of memory care.

I can only wish you good luck in your own search. This is something you do on your own in your own area making use of companies such as A Place for Mom if you wish, not if you don't, and etc.
Best of luck.
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