My mom is in AL (dementia diabetic). She hates it there. She's paranoid that someone is stealing from her, no one is. I'm her POA and HCP. My local brother can't handle the situation (our dad just passed 6 months ago from stroke and cancer) and does nothing to help me with mom. My sister, lives out of town, is constantly berating me about mom's care and finances. I keep both of them informed of everything. Sister wants mom to go home and have me take care of her. I refused. She wants a copy of every receipt, invoice, check and all bank statements (2 file boxes worth). I've told her all of mom's expenses, bank balances etc. She's not satisfied. She has cut ties with me and is now convincing mom that she should live at home but I won't allow it. It's just too much for me to handle. I feel like I'm having a nervous breakdown. I could go on and on. Help!
sorry. Tongue in cheek.
I know the answer.
So do so many others on this page.
Stay strong. You are handling it very well.
I
Both kids had their turn taking care of Mom. That was great for that family. it was good.
So, if they are not willing to drop everything and be there for mom, then they should not complain or argue. It is tough and hard to do. And if they haven't done it, invite them and offer to pay their way here, and stay with Mom 24/7 to see how well they last. The ball will be in their court. Offer it. " I am more than happy to have physical help, please come out here and take care of Mom, schedule dr appointment, dental appointment, hair appointment, and don't forget the podiatrist and get those toe nails clipped. and mom needs meds, food, depends, bed pads, Ensure, food and meals, socialization, walks, strolls, etc.." Please do come out and help!! The more the merrier. Come out so, I can take a few days off to rejuvinate. "
Diving into these new situations is tough and no one should have to go through it alone. I'm so sorry that your family has withdrawn their support during this hard time, but please come here if you need it! Take a break(yes, it's allowed). Grab coffee and sit somewhere your comfortable at for 30min or so(away from mom if permitted). Talk to different people you encounter. Write out your thoughts. Breathe deeply or listen to music/podcast. Take 10min breaks whenever you feel you need it, and make time for it everyday. Some days won't be calm, others will. There will be rainy days(for your mom) but enjoy the sunny ones when they come around. And if someone wants to rain on that, don't let them!
You deserve you time too.
For now, I would just stop providing any information. They don't NEED mom's finances spelled out and if they are so concerned about her well-being, let them go visit her.
Best case is all family members work together in harmony and accept everything. Surprisingly there are families like that out there! Next best is working together, but perhaps questioning, but accepting the responses. As much as it would be nice to have one of those scenarios, the next best situation is like my own - the brothers don't do anything, but also don't hassle me. It is enough to have to handle everything, I wouldn't want the added burden of having to provide all that to them! Worst case is pretty much where you are. THEY know best and question, belittle, demand but have no clue.
If sister knows everything, let HER take mom in and give it a whirl! It shouldn't take very long for her to realize it isn't her cup of tea (probably already knows that, since she demands mom move home and YOU care for her!)
As for your brother, it might just be that he can't handle the situation. On hearing how much MC would cost, BOTH brothers immediately said for that kind of money they would take her in. Note it hasn't happened! I told them I wouldn't object, but suggested they understand what they are taking on first!
OB isn't local, so during one of his trips here to help clear out condo, I sent him to visit mom while I got ready. When I suggested it again, he refused saying he 'didn't know what to do with her.' Even if he lived locally, I seriously doubt he would visit again. YB doesn't get it either. When I mention it is too much managing it all myself (there IS a lot to do even when they live in a facility!) his response was that 'they take care of her.' Sure. Who manages all the money, juggling to get just the right amount in the account to pay for the place and necessities not provided? Who picks those necessities up and delivers them? Who manages her medication orders? Who arranges doctor/dentist/haircut appointments? Who transports her? Who has to respond/take care of issues that crop up? Clueless that one.
Sounds like maybe your brother is like my OB. Can't handle the situation and doesn't know how to "get along" with mom as she is now. This isn't the mom he knew.
But, back to the real problem - sister. Convincing mom she needs to go home and you won't allow it? With dementia, does this stick with her after sister is gone? Is sister the one planting the ideas about you stealing from her? Can you have a meeting with staff to find out what is going on when sister is there? If she is doing this, it might be possible to stop her visits (or at least require supervision.)
Like you, I feel it is a huge responsibility to manage everything, but fortunately for me, at least for now, the brothers don't ask and I don't offer. The best you can do is stop providing updates, both medical and financial and just keep good records of everything. As others have posted, some siblings are nasty enough to drag it all to court. So long as you have good records and they can't prove anything, it might end up costing her/them all the court/attorney fees. If any questions arise about not getting updates, just say that when you provided them before, no one believed you anyway, so why bother having those extra tasks for nothing?
Ask sister (and brother) and any other concerned family to meet with you and a counsellor about mom's care. Make copies of those financials for your sister and give them to her at the meeting. Have the counsellor explain what POA and HCP covers. Explain how you are managing mom's situation. Ask the siblings for their help. Decide what is the "best" way to communicate mom's needs and health care changes.
Sadly, I have a brother-in-law who is managing his mom's affairs without POA or HCP and keeps us in the dark. Mom has dementia and is cared for at home by a live-in caretaker in Hawaii - paid for by Dad's life insurance (he passed a couple of years ago). You don't want to be the "secretive sister" but you also shouldn't be the "doormat sister."
So your mom doesn't like it in AL - you know she is safe & well taken care of every minute of every day so ignore her saying that people are stealing from her - she is hiding things then forgets the they are 'stolen' - it goes with the territory of dementia - nobody ever said 'when I get old I want to live in a NH/AL' - you may have to stop her calls from sis if mom is being bother by sis
Keep every receipt & medical report as the money hungry vultures that are your siblings will ask for an accounting at some time - good luck
I suspect their concern is that you are spending mom's money on her care (as you rightly should) and so there's less left for them at the end. You can't worry about that. Keep doing what you are doing and ignore the noise and drama they are bringing to you. If they don't like how you did things they can sue you after she dies, at which point they MIGHT be entitled to see receipts etc. Don't let them distract you with this nonsense now.
Also it doesn't matter what they tell your mom about where to live...or what she wants at this point. If she's not in a mental state to know what's best for her you have to override her and not feel guilty about it. It's hard switching roles with a parent (from child to 'parental figure') but it can and often must be done.
Good luck! I feel for you, but you are hardly alone in this dynamic.
It might be calm the waters if you give both your brother and your sister a brief written (or email) summary each month. You don't owe her every receipt & check. You are the POA. She may have "cut ties" with you but a little note or an email once a month is reasonable.
Taking care of parents, especially with questionable siblings, isn’t for sissies.
I also had the hospital system limit who can make and change appointments for her. It’s in her chart so hopefully, they will notice if she tries to do that again.
People lose their minds when money is involved.
lol about your brother. Mine is a 63 yr old bachelor living locally but can’t handle so much as taking my mother anywhere but lunch on a weekend every few weeks , that she pays for btw. My husband meanwhile has to take time off work to help her out , no pay, rarely even a thank you
Do not let your mom move in with your sister. If you think it’s bad now, it would get worse. Even if you have both POAs, you would lose control. Your mom chose you for a reason. I would suggest consulting with an Elder Law attorney to better understand your role and rights.
You might even consider blocking your sister from talking with your mom to see if this improves your mom’s state of mind regarding AL. If you haven’t already, meet with the AL staff to determine if your mom is really in the right environment. If not, you can investigate other communities.
Sad as it is, this often happens in families. For you, it’s time to establish some serious boundaries with your sister and seek counseling for yourself to be able to deal with your situation.
Absolutely. Why is his grief so special? It's probably just an excuse so that he doesn't have to do anything for his mother.
When I read about situations like yours, I grateful to be an only child.
Escalating things with your sister just doesn't accomplish anything other than to make your life harder, maybe putting the ball back in her court will put a muzzle on her and who knows maybe it will get her to step up and actually be productive and help. I wouldn't turn over any legal responsibility or power to her but you could certainly give her the approval to have medical info shared and ability to "see the books" without doing the work yourself, let her contact doctors , the facility etc and let her look through the financial records if she is that interested you don't need to create more work for yourself as long as you are keeping records. I do think that these tensions can happen easily when a sibling lives further away and another is knee deep in all the day to day hands on work. The sibling who lives far away may feel some guilt for not being more involved and the sibling in the trenches day to day is just trying to hold their head above water, the one who lives far away doesn't offer any practical help because they have no clue what might be helpful and the hands on caretaker doesn't ask for specific help because it doesn't occur to them or because it seems like it's more time consuming to explain what you need that just doing it yourself. In the meantime the sibling who isn't doing anything and only chat's with Mom on the phone weekly (when she's prepared and at her best) visits for the first time in 6-8 mos and is shocked by the change in Mom. Maybe the onsite caregiver minimized the decline not wanting to admit themselves or answering for that moment in time when Mom was doing well comparatively, maybe if they are like me they don't want to put that worry and guilt on a sibling who can't do anything anyway. Whatever the various event's the distant sibling who hasn't been up to date with day to day stuff and has no real understanding of the factors that made you decide it was time for professional care hears Mom complaining and is picturing the mom she knew 2 years ago and it's easier to think sibling jumped the gun than face that Mom needs to be institutionalized. If she had been more a part of the progression and the decisions maybe she wouldn't be fighting it so much but maybe she still would, no right or wrong answer here, just what you've got. It helps though to try and put yourself in her shoes and it would help if she could try to put herself in yours which brings me back to my opening, maybe it will get her to that a little. You may be better off including not fighting them both and not expecting much return.
We used to have a good relationship, but I resent being the one stuck with all of mom's issues while they get to do whatever they please. I resent being the one who has to deal with the doctors, lawyers, trustee, bank, insurance company, and facility staff. I have no special background or knowledge that qualifies me more than them and I don't have POA. I just try to listen, take advice from people who have that kind of knowledge, and make the best decisions I can. I'm sure I've made mistakes, and I know I'll hear about them some day, but at least I tried and was honest in doing so. Best thing to do is just do your best, follow your instincts, make sure there are records of everything, and ignore the snotty remarks and neglect of your mom from the siblings. Yes, it will mean more work for you, but failing to engage with them over things like doc appointments or paying the hairdresser, whose turn it is to bring her home from the ER, and who never takes her shopping takes a certain amount of stress away. Grit your teeth, do what needs to be done and know in your heart that you did what's right even if it was difficult or inconvenient. You know you're going to get stuck with it anyways, might as well not have the stress of dealing with the siblings on top of it.
If she did not request this I would send a certified letter to both siblings explaining that you have recently learned that you can not just share moms private information and you will no longer be doing so. Maybe get a certified elder law attorney (www.nelf.org) to help you understand what your responsibilities are as moms POA. There is a reason mom assigned you when she was in her right mind. You can use mom's money to do this, you are ensuring that she is protected from everyone, including yourself by having a disinterested trained professional take a look and guide you. This also helps you if your sister decides to go to law with her asinine requests and meddling. Hard to say the attorney was breaking the law. Most attorneys will give you a free consultation, schedule with every attorney in your area that is certified for elder law and have all your documents and questions written down, you are interviewing them to be your paid assistant, so if they don't offer a free consultation don't bother with them and choose one that is a fit for your needs, displays competence and understanding of your situation, you will know.
As POA you are able to limit or cut off contact for anyone that is harming your mom. If your sister doesn't stop keeping mom agitated and discontented because of her nonsense you are within your rights to stop her from having contact. This is extreme and last resort, but she is hurting your mom by sowing seeds that are dead on arrival and giving her false hope and keeping her stirred up all the time. It is something to discuss with the attorney.
As others have said, she can go live with your sister, however, if she is demented you have POAs and that can not be changed because mom is not able to make that decision. So you would have to resign and that would leave mom with no representative, not a good idea.
You are doing right by your mom and yourself, don't let your sister make it any harder than it already is. Hopefully, she will come around and see that mom is in the best place possible. It is challenging when you are not there to see what is going on and only hearing about it from the person that doesn't want all this change life is shoving down her world.